My Tarlov Cyst Disease Journey: Pre & Post Surgery Favorites 

I’m so grateful I found your page! I was just diagnosed with this disease after years & years of pain. You give me hope! Thank you for all the tips!

I'm so glad I found you on here. Thank you so much for posting your journey. I'm in the NE area of the US and the doctors that myself and my mom have been to have acted as if these are no big deal. And even have had a doctor say what is that I've never heard of a tarlov cyst before. Do ty,ty,ty And I hope you are feeling much better!

Hello, my name is Cary Dinning and I am from the Mississippi Delta. I had a MRI done on lower spine and also my C-spine in the spring of this year. On my report it said I have a Tarlov Cyst, and I had never ever heard this disease. On my cspine MRI it showed 2 budging discs, which I also had no idea I had. The reason I had either of the scans was because I was having multiple bouts of numbness in my left arm and horrible lower back pain. I have been an EMT since 1999 and honestly just thought the pain was from years of lifting pts, equipment and all of the physical activity I do with my job. But of course some of the pain had to do with that, but in trying to research the cyst the pain kinda made some sense for the low back pain. I actually now work in a doctors office and not on an ambulance all of the time, just every now and again on a truck. When I first got my report I asked all of our providers in my clinic, and none of them had ever heard of the Tarlov cyst. We also have a pain management clinic here in our small town area and I also talked to him and that doctor also had not heard of the cyst. I’m at a point where my pain is getting a little bit worse but it’s not something that is an unbearable pain just a nagging pain. It makes me feel extremely stiff in my lower back and sometimes it feels better to kinda walk bent over some. Having said all of this I do have a few questions. First do I just start with going to a spine specialist or do I need to wait until the pain gets worse? I don’t want to go on pain meds cause I’m scared of the potential consequences of what all that entails. My family doctor wanted me referred to a place called NewSouth Neuro Spine Center in Jackson, MS. He did say don’t let someone just jump straight out of the gate and say do surgery, even with the budging discs in my neck. So honestly I didn’t even do the referral because it kinda scared me. But now here I am, pain is getting a little worse as time goes on, and I am truly worried about what’s to come. Any advice would be a tremendous help and greatly appreciated. You are a true inspiration to me and thank you for reading my all over the place comment. God Bless you in your healing and recovery. 😊

You have so much helpful information Katie. I love that you are doing this for everyone out here!! Thank you for all the sharing and recommendations :) . You look amazing and it is wonderful to see you progressing so well!! I am exactly 30 days behind you in surgery date and it is nice to see your markers in trying to set realistic goals. - Lisa (Michigan)

Hi Katie, I've been dealing with TC's for a while and suffering quite a lot. I'm meeting with Dr. Schrot next week and I'm ready to get the surgery done and begin healing. Thank you for your video journey- it's been so helpful. In you video here you mention that are going to put the rolling bed tray in your shopping list but I don't see it. Can you tell me which one your sister purchased for you? There are quite a few and I just want a basic one. Thank you so much! You've given me hope.

Thank you for all of the helpful tips on things to consider for purchasing for our recovery. These all look very helpful. It seems that you are recovering quite nicely. I am so happy for you. I am dreading my surgery. It will be my 5th back surgery. Thank you for all of you4 time and good recommendations on the items. Many of them I am going to pick up. Blessings to you.

I was just diagnosed with tc , have been suffering since March . Now I’m trying to schedule an appointment with doctor F in Dallas . I’m so scared of the surgery but also I want my life back . How are you doing now ?

I have not watched all your videos, but wondering what was your main symptom for getting the surgery? Are you on Facebook ? I would like to discuss over private messenger. Your videos have been so wonderful and you are so inspiring !

hola desde la Republica Dominicana 😘 fui diagnosticada con quiste de tarlov y me gustaria saber cuanto costo su cirugia

Thanks so much for sharing your story. Just found out today I have Tarlov cysts - I love your positivity and helpful recommendations. ❤️

Amazing pain spray recipe on Fibro Mom " essential oils". In comments section