my week in the hospital with gastroparesis (vlog) & getting a G/J feeding tube 

I cannot thank you enough for the overwhelming support I got on my last video. I am so thankful for all of you and truly feel as if we are all in this fight together. And also thank you so much for 600 subscribers!! I seriously can’t thank you enough for all the love and support. I hope you all have a beautiful weekend💚

How is your channel not famous 🥺 I love your vibe ❤️

I cannot thank you thank you enough For the I got on my video I am so thankful for all of you Ass Together And also Thank you So much for 600 Subscribers

Yours and your boyfriend, I swear this is the sweetest relationship 💕💕💕 I love you two so much.

Thank you so much for sharing! You’ve really cast light on such an ambiguous disease. I’m beginning this journey with my daughter who is 19. We didn’t even have so much of the information that you’ve shared with us through our G.I. staff. At least now we feel better prepared about specific questions we can ask and also try to find someone that actually has some Gastro paresis knowledge and background to help guide us through this somewhat arduous journey🙏🏼🥰

I love your videos so much and you genuinely brighten my day every time you post. Your content is amazing and I appreciate how vulnerable you are! So thank you! I hope you’re doing well and recovering all right!

I found you yesterday and I’m in love with you??? Like, damn. I really appreciate your existence and I think you’re pretty great 😊 Hang in there dude!! You got this! Stay strong!! 💪💪💪

Finding this video and seeing you had to go through all this after thinking you G Poem was gonna keep you going, this broke my heart. :( I am so sorry you had to go through all of this. I want to say again how much it means that with all you are going through, you share your journey with us all. This is EVERYTHING to me because right now I am able to relate so much. I learned more from your videos than you can imagine. I also am in FL. About to go to Mayo in 3 1/2 weeks. Scared to death! If I could talk to you, I would have SO many questions. Not one person in 8 years has hospitalized me, or run test or done any procedures yet. I am looking for answers but giving up hope. I watch you and your spirit and it is contagious. I am like, If she can keep going, SO CAN I! I could talk to you for days. Please please take care and I am wishing you nothing but the best! I have so many questions for ya! HUGS!!!

Hi, Kenna. My name is Sofia-Cristin (Sofia) I recently got diagnosed with Gastroparesis, too and my stomach has 72% food left in my stomach after four hours (according to the “test”) and I just wanna say for some reason your videos rlly comfort me. I’m supposed to get a tube on September 18th (NG for a few months but if I need something long-term I’m gonna need a surgical tube) and apparently my Gastroparesis was caused due to Anorexia Nervosa (I’ve had it since 11 and I turned 13 this year and I’m in inpatient rn for it but I also have to be in IP because I was at the lake this week with friends and I ended up almost drowning and was under the water for kind of a while which I do have some health side effects) and I am a bit anxious but at the same time, I kinda am a bit happy I’m going to recovery (normally you won’t get the incurable type of Gastroparesis due to Anorexia, but you still can which I did and it’s like super bad and I also have difficulty swallowing which isn’t due to GP so I have an Endoscopy on the Wednesday after next Wednesday. Once again, stay strong, Kenna! We got you and are on your side:)

You're so brave going through all of this, I'm going to remind your strength as I try to get the g-poem . It's going to be crazy hard because where I live they don't do the gastric gammagraphy or know about the surgery , so I don't even have a diagnosis yet,.Thank your for making this disease visible and making me not give up. By the way, I really hope that you're feeling much better .❤️

Omg I feel so incredibly bad for you! The NG tube they put down you was extremely big! You should have been given a tiny thin one. When I get an NG tube it's always the really thin yellow ones. It's much less painful. That aside, I'm so glad I found your channel! Thank you for sharing all of this with us. Ps your roommate seems pretty awesome 😄

Hi Kenna my name is Nellie I just had my gtube placed in yesterday. I’m in so much pain I have Dysphagia & weak esophageal peristalsis. I admire your happiness energy to share your life update. I hope you’re doing well I enjoy watching your vlogs. 🤗🌸

The two of you are the cutest!!!!

Thank you for this. I found it really helpful. In the UK/NHS hospitals there are usually 4/6 beds in a bay & there is also usually mainly just 1 loo. I have a phobia about doing a no 2 (poo) when anyone else is around, so after my gastric bypass op 4 years ago I couldn’t go at all. I also couldn’t sleep.

Thanks for sharing your life, love the realness of your vlogs😊 hope you get to feeling better!

You deserve the support for.talking about pooping so much🤭 Glad your surgery went well and your home. Your boyfriend is a touch immature, but loyal and supportive which is the main thing. Look forward to watching your journey 👁

I admire your positivity despite everything!! Best wishes hope you get better soon :)

I have severe Gastroparesis myself and I’m curious what they did for pain management for you. I know there tends to be a concern about opioid pain medication slowing down the GI tract.

Hello. I have gastroparesis and am treated in Florida. I’m currently waiting on a doctors appointment to find out the next step in my journey. I have a gastric simulator but it’s dying and the pain and bloat is becoming unbearable. Thanks for the videos showing it can and will be okay. I’m so worried but u are a definite comfort for me 🥰 thank you.

Watching this from hospital, been admitted again cause my potassium was so low. The dr I really don’t like is on for the weekend so that sucks, he doesn’t think gastroparesis is a thing and told me I need to be eating more potassium rich food (I vomit everything I eat) so eating is kinda the problem. To make things worse Auckland has gone back into lockdown so have to do this alone again. So frustrating!

As someone with ulceritive colitis who has had a good number of colonoscopies, I felt the "every time I lay back down, I feel like I have to poop" on a spiritual level, even when I'm not drinking prep sometimes a normal day is just like that too 🤣🤣

Have you spoken to your gastro about adding tpn via a port for the added nutrition since the jejunum isn’t going to absorb as much that just the way it is. Mom to a daughter with gaseroparesis which has been DX we are fighting for the GJ tube and then the port with TPN. She also has POTS AND EDS as well as fluid in the lining of her heart as well as the living or both lungs and connecting tissue damage to god organs. Dairy free due to inability to process dairy proteins, allergies to soy and wheat not gluten or celiac. Recently we cannot keep her weight stabilized and she is having both tachycardia and bradycardia episodes where it used to be only Brady episodes. Stay strong hun you got this! Do as much research through reputable sources such as web md , other universities such as OHSU AND ANY other hospitals where they have articles written by well known gastroenterologist and are well known hospitals for extremely positive long s as well as short term outcomes. My heart hurts for you, but don’t take that as I pity you I know what you are going through as being a genetic illness my child inherited it from myself, my brother, my father and sadly the two letter were misdiagnosed due to developing ulcers prior to going to the doc. The rare cancer that got my dad at 48 is directly connected to gasteroparesisc but the common issue is, especially when my dad was DX with ulcerative colitis as well as my brother, they would see the ulcers and such and not like any further assuming they had already found the DX. My heart does go out to you, I see my 18 year old go spend one day having lunch and hanging out with friends only to come home and be so exhausted she cannot do much more than spend most of her time in bed which breaks my heart. Those your age should be out there enjoying life and full of energy and sometimes it’s just not the case. We have to push through but at the same time taking care of our health is above any of the rest as you can’t to anything for any one with no energy for you. Research the port and TPN (if you don’t already have those things) they deliver the nutrients into your body that the NJ/GJ feeds cannot provide alone. Not long term. Research and speak with your specialists about your energy levels etc. something seemingly as small as a vitamin D3 deficiency specifically D3 can halt the production of serotonin altogether. This happened to my daughter and it was terrifying! It took just months for a happy, energetic (even with all the health issues) child who was playing volleyball and going to public school to suddenly become suicidal and so depressed she couldn’t even get up. We went through hell because rather than listening to me and building her vD3. Levels back up first via infusions in the hospital they placed her on a hardcore psych med I knew was dangerous but they threatened me, didn’t even tell her actual doctor and even threatened me it I didn’t give her the medications they would call cps and have both my kids taken for failure to follow medical advice for the “safety” of a minor. This lead to my staying awake for 14 days straight attempting to watch her all night when she was not at school she the one night i fell sleep for an hour. She made an attempt that only failed thankfully due to being born so prematurely her arteries and vessels are very fragile and thank everything collapsed and sealed in both wrists. Had they not she wouldn’t be here today. Low and behold they listened to me finally, removed the mental health medications and gave vitamin D3 infusions and she has struggled like everyone with chronic illnesses here and there but NOTHING like what she and the rest of us went through that year. Plus stay strong, reach out for help when you need the extra support and try to remember there’s a light at the end of the ridiculously long max of healthcare tunnels. Just keep your chin up and enjoy as much wed you can when you can and don’t be afraid to admit and take time to relax when your body tells you it is time to sit down and chill or sleep. Take care my friend and I truly wish so much happiness and a remission of sorts if that’s the correct wording 😂. But honestly I do. Take care hun.

How long after the G-Poem did this happen? I had the G-Poem done on 5/27/22 and I’ve been even more miserable than before. I have lost even more weight since the surgery and getting weaker. I do see my gastroparesis gastro on Monday & cannot wait to see him. I’m hoping he can help or shed some light on why I feel this way. This disease is awful. I hope you’re doing better today. Congratulations on the engagement!!!! Also when r sweatshirts coming back in stock? I want one. Thx.

I've gotten so use to NG tubes that I put my own in now. I've had so many of them. I have to use a pediatric ng tube because the adult ones are too big. Didn't they give you any pain meds after the surgery? If not that way not right

Thanks for the book recommendation.

I was in the hospital for gastroparesis over Valentine’s Day aswell then I went back in for a month a couple weeks later an nj was placed

sending lots of love 💖

I felt so bad for you kenna I’ve been hospital myself and I didn’t stay in I was too. Scared of hospitals my bowels are lazy too the problems could. Be linked 5 days with no loo I’m like 6 weeks now since my stomach is huge and I can’t eat so I’ve had to have picolax the only thing that works but it doesn’t work fully so have they said what they think is wrong with your stomach why it’s acting like there’s a block as my Bowels are lazy I don’t know how lazy my stomach is no results back yet it’s always more tests I feel bad on you in hospital over valentines you seem down bless you since this happened I understand as you have had everything missing now but you will get better well manageable your strong for going through this and have a lovely partner who’s a joker like mine but that’s what I like making fun of a bad situation I hope to see you more 💕💕💕💕get well kenna and rest love ❤️

Get Better Soon!

Hi I watch all your videos I just got my gastroperisis empty thingy done but I haven’t pooped in like 5 days and I’m very bloated and uncomfortable can you pls help me

thanks for sharing all of this! I have GP too, and I was wondering if your endoscopy showed food just sitting in your stomach? I know you mentioned the CT showed food just sits there so I was curious what the scope showed?

Iam in the hospital and I have that tube but in blue in the same place now

Do you like the feeding tube

Just diagnosed after 22yrs of hell but I have pyloroplasty in next 2 wks so nervous

Joanna eye red lunch big trouble

I almost got the feeding tube

Hey I’m waiting for an appointment in bad pain I’ve been given zofran that helps tho

I really love Three Little Words. Have you read the sequel?

I haven't had a single solid food in a year and 4 months

I'd have sniped my roommate

Gastroparesis is the new thing.

Just an FYI, having a GJ tube placed is NOT surgery, It's a medical procedure. As a nurse, you should know that.