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Navigating the World: Living With Retinitis Pigmentosa 

Blind Focus with Rob Sears
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Hi everyone, I'm Rob, and this channel is a window into my life with Retinitis Pigmentosa (RP), a journey that's taken me from the classrooms of my school days, through the halls of university, to the life I lead now. It's a path that has been both challenging and enlightening, as my vision has progressively diminished, leading me toward being officially classified as a blind man.
From those early days, I've learned the importance of adaptation. As my condition has worsened, I've continuously discovered new ways to navigate the challenges it presents. This channel is all about sharing those adaptations, the innovative methods I've employed to live a full life despite Retinitis Pigmentosa. It's a journey of constant learning and evolving, and I'm here to share every step with you.
This video is a candid look at my life with RP, sharing the struggles of dealing with a deteriorating condition while striving to achieve my dreams. From learning to navigate with a blind cane, to adapting study habits, to embracing technology designed for the visually impaired, every stage of my journey has been a lesson in resilience.
But this isn't just my story. It's a call to anyone facing their own battles, whether with RP, another form of blindness, or any challenge life has thrown at you. It's about finding your strength, your community, and your path forward. I've faced moments of frustration and fear, but also moments of triumph and joy. Through it all, I've learned that how we face our challenges defines us.
Join me as I share my ongoing journey, from the lows of facing an uncertain future to the highs of overcoming each hurdle. My vision may be narrowing, but my perspectives are broadening. I hope to inspire, to connect, and to show that even in the face of adversity, we can find ways to excel and to live a life full of meaning.
Let's navigate this world together, sharing stories, support, and strength. Subscribe to follow my journey with Retinitis Pigmentosa, as I look back on where I've been and forward to where I'm going, always with an eye toward inspiring others to overcome and to thrive.
#RetinitisPigmentosa #NavigatingLife #BlindnessAwareness #UniversityLife #OvercomingChallenges #Inspiration #VisualImpairment #Adaptation #Resilience #rp #blindfocus

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6 окт 2024

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Комментарии : 58   
@Tazimful
@Tazimful 7 месяцев назад
Your presence has always commanded immense respect in my eyes, but today, my admiration for you has soared to new heights. You exemplify excellence in every aspect, serving as an awe-inspiring role model for us all. Your genuine compassion and unwavering dedication make you a beacon of goodness in this world. I feel incredibly fortunate to have crossed paths with someone as remarkable as you. You truly are one of the finest individuals I've ever had the privilege to know. With utmost respect and admiration, I tip my hat to you, recognizing your legendary status as truly untouchable.
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much my friend!!
@MickSears
@MickSears 7 месяцев назад
Rob, this continues to be amazing. Resilience is definitely on show here for all to see. What an example for us!!!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you!!
@InspirationalInsights90
@InspirationalInsights90 7 месяцев назад
Rob, your journey truly exemplifies the strength of relentless determination. Continue to radiate your inspiring light! ❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much my friend ❤️
@colingordon5798
@colingordon5798 7 месяцев назад
Thank you for sharing your story with the world and being so brave. I salute your courage and not letting your condition hold you back from living and enjoying life!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much my friend!! ❤️❤️
@PlanetUntamed
@PlanetUntamed 7 месяцев назад
Rob, you're truly incredible. Thank you for sharing this with us.❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you my friend! Thank you for your continued support ❤️
@carrieannsharpe
@carrieannsharpe 7 месяцев назад
I admire your resilience my RP brother. Keep up the great work.
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much! Really appreciate that Carrie ❤️
@IPDLOVELYVIDS
@IPDLOVELYVIDS 7 месяцев назад
I love how you detail your video and make it clear
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you my friend! ❤️
@jorow36
@jorow36 7 месяцев назад
Will be following! What an inspiration!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Awww thanks Jo!! ❤️
@Dougsegal
@Dougsegal 7 месяцев назад
This is amazing content Rob. Really authentic, vulnerable & genuinely inspiring. 👏👏👏
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you my friend! Genuinely appreciate that Doug ❤️
@carolburton7296
@carolburton7296 7 месяцев назад
thank you for sharing your journey Rob. I've now shared your video in the hope that my family/friends can find some understanding about how I see. I'm 62, but like you I only have central vision, I lost my husband in September suddenly 2023 and along went my 'secruity' with life.... changes had to be made as I also have the care of our 4 year old grandson.... so now our wheels are a mobility scooter to get us around, yes asking for help is a huge thing.... also working on this.. I wish you the the best and look forward to seeing more of your videos
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Firstly Carol, I’m sorry about your husband. Secondly, thank you for reaching out and sharing your experience. That certainly sounds tough emotionally and physically. I hope my story somehow lands with your family and really helps them be understanding of what you’re going through. I hope my future videos will continue to be useful. R ❤️
@SandieSears
@SandieSears 7 месяцев назад
Thank you for sharing an insight of your journey. Just remember you are an amazing person. For the many years I have known you, you have never said "why me" and have just got on with life and dealt with at times, an incredibly hard journey. I hope your followers will see the person within you and continue to support, follow and share your journey with you. Thank you also for all the Videos and help you are giving us to help us try and have a better life too. Just incredible xx
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Awwww thank you ❤️❤️❤️
@lucyl5507
@lucyl5507 7 месяцев назад
I already had tremendous respect for you....but this is off the scale. You set such an incredible example to us all. You are very genuinely one the best humans I know, and I consider myself very lucky to have met you when I did. Hats off, your legendary status is untouchable xx
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
This makes me happy! I massively appreciate your kindness and constant support ❤️
@AlisonGough
@AlisonGough 7 месяцев назад
Thank you for sharing the incredible journey through your life. Your positivity, resilience & inspiration to deal with such difficult times in your life is incredible. Thank you for your determination to help others. You are amazing x x
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
What a beautiful comment - THANK YOU SO MUCH! ❤️
@matthewoconnor2955
@matthewoconnor2955 7 месяцев назад
Great life story and motivation Rob!!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thanks Matt my friend!
@LisaQuinton-s3p
@LisaQuinton-s3p 7 месяцев назад
What a video, so powerful
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much ❤️❤️
@garryhockney6751
@garryhockney6751 7 месяцев назад
I can relate to this video with also having RP diagnosed aged 28 now 33 and finding things extremely hard and embarrassing at times, it's hard when you say about trying to hide our disability and not ask for help. Iv subscribed to your channel and will be sure to catch up and watch any future videos
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much for reaching out my friend. Now I’m in my 40’s I feel more confident and care less about the world knowing. I wasn’t the same in my 30s!!! Glad to have you here ❤️
@emmahowes3587
@emmahowes3587 7 месяцев назад
Hearing about your personal journey is really inspiring, and your positive attitude really shines through. Thank you for sharing your story so far ❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you for watching and your continued support! Really appreciate you taking time to reach out ❤️
@aminafzal3376
@aminafzal3376 7 месяцев назад
Keep up the good work. Well done .
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much my friend!
@retinoises
@retinoises 7 месяцев назад
Loved your story of overcoming my friend! It's very inspiring and gives us strength to keep fighting, especially for people like our singer and guitarist, Rudolph who also suffers from retinitis pigmentosa. We are on this same road together! Thank you so much for sharing this video! Congratulations! 👁️🔥👁️👏👏👏👏
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
CANNOT wait to feature your music in my upcoming videos guys. Keep up the awesome work!!
@shelleyhughes3574
@shelleyhughes3574 7 месяцев назад
We are very lucky to have a super human like you..teaching us and helping us you are amazing ❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you so much ❤️❤️
@gillart99
@gillart99 7 месяцев назад
Thank you for this!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
You are very welcome ❤️
@JoslynSky
@JoslynSky 7 месяцев назад
I’m 5 min in and Im breaking down in tears because I understand completely what your going through and grinding up and his oriole are like oh I can’t see at night either I’m like no like I’m blind already no center vision in right and my peripheral is off in left I have only center in left of vision and some side vision aside the blind line in my right. I totally get you… with glasses. Not wanting to wear them because I was so used to not having them when young and growing up… I am unable to drive because things move too fast and even when I walk non moving things appear out of nowhere or people. I can see the best out of this and life but don’t get me wrong, I have my break downs and that’s okay !!!
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
You are an absolute diamond my friend ❤️
@JoslynSky
@JoslynSky 7 месяцев назад
@@BlindFocusRS aweee thank you 😊 you too!!! Let’s do this together!!!!
@jaceten
@jaceten 7 месяцев назад
I have RP also. I really suggest a blind school where you can learn cane travel and useful info. Your cane is a tool, learn to use it. I moved to Denver, Colorado, got my medical marijuana card, and have been doing great. My floaters went away completely, no more headaches, eye strain is reduced. I'm at about 10-15 degrees for 12+ years now. I feel great and my doctors are very happy with where I am. Good luck with your adventure! I wish you well.
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Jason thank you for all that info. Did the marijuana help rid the floaters or something else? I am due to start my long cane training later this year ❤️
@jaceten
@jaceten 7 месяцев назад
@@BlindFocusRS Yes, medical grade marijuana helped. My doctor said smoking it lets the eyes get a better dose. I take Diamox for edema, 125g twice daily. I also take Vitamin D twice daily, 4000IU. Having both my cataracts removed in 2010 helped a lot too. I went through bling school for 9 months in 2008-9. I learned Braille, but haven't used it, sense my central vision is so good. Cane travel, computer, and even shop class, helped me learn a lot. Knowledge you can pull out of your mental filing cabinet, if it comes up. Thanks!
@TrishL333
@TrishL333 7 месяцев назад
I have RP I love how you created this video and are so comfortable in genuine in front of the camera front of the camera🎉 3:44 front of the camera
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
That’s AAZING thank you ❤️
@TrishL333
@TrishL333 7 месяцев назад
I liked subscribed and shared
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
LOVE THIS!!
@LorenSears-o4s
@LorenSears-o4s 7 месяцев назад
❤❤❤❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you ❤️
@bernadettewinchester3169
@bernadettewinchester3169 6 месяцев назад
I also have RP, arthritis and type 2 diabetes.😊
@BlindFocusRS
@BlindFocusRS 6 месяцев назад
TWINS!! Hope you’re managing ok my friend?
@focus4fitness-norwich462
@focus4fitness-norwich462 7 месяцев назад
❤❤❤❤
@BlindFocusRS
@BlindFocusRS 7 месяцев назад
Thank you ❤️❤️❤️
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