Glimpses (Inside the world of Multiple System Atrophy)

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This is a Documentary about my Uncle Gregory, who is suffering from a rare and aggressive neurological disease - Multiple System Atrophy (MSA). 'Glimpses' is Gregory's battle with MSA in his own words and experiences. It is a window into his day to day struggles and a chance for us the viewer to understand what it is like to live with MSA. Gregory's thoughts are expressed as narration as we experience a very personal first hand account of his life living with this debilitating illness.
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3:33 Glimpses Documentary
01:00:33 Outro

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24 май 2023

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Комментарии : 43

@rickhayes3398 21 день назад

My wife was diagnose with MSA in 2020 but symptoms were present in 2017. Now her condition has deteriorated to where she has trouble walking and talking. She is the most loving and honest person I have ever met. She is fighting and working at PT everyday to continue to have some quality of life. She has gone through cancer and won, a heart condition that was thought to require a transplant and won, but this is different. It's as if the gods, bent on destroying good people, have increased the anti and decided to play a game where they can't lose. MSA treatment has gone nowhere in the last 30 years. Good people are dying a horrible death. And let's not forget the caretakers who must sacrifice their lives and income to arrive at homelessness and aloneness. What a wonderful world.

@thesavagefilmmaker 19 дней назад

Very sorry to hear. MSA is a terrible disease. Best wishes for you and your wife on this unforgiving journey. Enjoy all the things you can while you can.

@katycauchon902 3 месяца назад

My husband has MSA type C…..your documentary has show me the strength of this family . I don’t know how long it is gonna be for my beloved husband of the last 33 years, but I hope i will be as courageous as Kate…my name is Katy and I will face this as good and brave as I can. My sympathies to this family

@thesavagefilmmaker 3 месяца назад

Thank you for your kind words Katy. And best wishes for you and your husband on this incredibly difficult journey. I'm sure your courage and strength will be what you both hold onto and appreciate. I hope you're seeking and finding support through the places like the Defeat MSA trust and healthcare system.

@PoetSkyMSA0227 3 месяца назад

4 weeks ago I lost my partner to Msa . He was 71 and suffered 4 plus years . I miss him with a pain that can never be described .

@thesavagefilmmaker 3 месяца назад

So sorry to hear about your loss and the fact he had to endure this terrible illness. My condolences.

@SuziGeorge-nw2bi Год назад

Thank you for making this so others can see what a beastly horrific disease this is. I’m still not ok after losing the love of my life to this.

@thesavagefilmmaker Год назад

I'm sorry to hear about your loss Suzi, it will never be okay, but we can remember and celebrate the bravery and courage of those we've lost.

@Sandyhennessy1 11 месяцев назад

Thank you for sharing and getting the information out about MSA. I lost my husband 5years ago to this disease. Such suffering this causes. Not only physical but emotionally also.

@anamegoeshere 10 месяцев назад

@@thesavagefilmmaker no you dont care about ur uncle you care how famous this will make you one day and its about the $$$

@thesavagefilmmaker 3 месяца назад

Money, or fame mean absolutely nothing when compared to the loss of a loved one. This film was made to celebrate my Uncle's life, his perspective and document his battle with MSA. I made it for him, not for me.

@katebloor7933 Месяц назад

Thank you so much for sharing this...we have a family member who has been diagnosed with this 6 months ago and whilst we can't cure him it's so so helpful to understand better and be prepared ❤

@lisaraiexox_ Год назад

As a fellow MSA warrior- I say thank you 🙏

@thesavagefilmmaker Год назад

Thank you and keep fighting!

@DynamicUnreal 3 дня назад

I’m 2 and a half years in at 37 years old. I have some of the symptoms but not all. Some of the symptoms have gotten slightly better (hand tremors and pins and needles) and others have gotten a lot worse (autonomic dysfunction, dysphagia, fatigue). That fluctuation in symptoms gives me some hope that it may not be MSA. I have young children that still need me.

@thesavagefilmmaker 3 дня назад

Best wishes my friend. Keeping my fingers crossed, be there for your family. The world needs you too.

@DynamicUnreal 3 дня назад

@@thesavagefilmmaker Thank you so much! You don’t know how much those words mean to me.

@christineibbotson1588 Месяц назад

My mother had MSA and this is such a cruel disease. So very brave of Gregory and his loved ones to share his journey. My thoughts to all who are suffering from this and their families.

@thesavagefilmmaker Месяц назад

Thank you and my condolences, and best wishes for you and your family.

@BoristheBlade Год назад

What a truly incredible and humbling documentary. Your family is very lucky to have such a talented filmmaker like yourself to make this for them and tell their story. And I'm sure being able to watch this over the years will help Rita come to terms with such a difficult period of her life.

@thesavagefilmmaker Год назад

Thanks Ben, appreciate your kind words.

@wendiesioux Год назад

Thank you so much for sharing your thoughts on this film. I saw the screening last year during the defeat MSA annual conference and was moved by your poignant story telling. Thank you for sharing Gregory's story; your uncle was a remarkable, intelligent man, gone too soon. My husband was diagnosed with MSA last year and I think it's important that we all share our stories.

@thesavagefilmmaker Год назад

Thanks Wendy, I'm sorry to hear about your husbands diagnosis, best wishes for you both and I agree, lets keep sharing our stories.

@FightingMSA Год назад

A huge thank you for making more MSA movies. This was hard to watch even for myself who is suffering from Multiple System Atrophy and have a 2 documentaries about myself and MSA. If you'd like check out Fighting MSA Austin Crawford's Story or Driven to Help. Thank You again for making the invisible, VISIBLE.

@thesavagefilmmaker Год назад

Thank you Austin and my best wishes for your fight. It looks like you are doing amazing inspirational things and I look forward to watching your work.

@ssballurkar2551 8 месяцев назад

Very much felt like our story too and touched our hearts. The same journey and similar timeline for us too. Felt like you have given voice to many silent MSA sufferers all over the world. This documentary will bring the silent and lonely MSA stories out of darkness to be shared and understood by many. Thank you

@thesavagefilmmaker 8 месяцев назад

Very sorry to hear about your story. Best wishes to you and your family. Thank you for watching.

@mirandafarris6834 Год назад

Thank you for making this! Visibility is our greatest strength when dealing with this beast of a disease. I lost my mom in 2021, 9 months after her official diagnosis. Sending love from the US!

@thesavagefilmmaker 11 месяцев назад

Thank you and best wishes. Very sorry for your loss.

@pinang1 Год назад

Watching it was an extraordinary experience and very moving. I'm sure Gregory would love the film as well. What made it even more valuable is that you literally gave him a voice here (and a really good one as well). It's amazing and eye-opening that his mind is still so sharp while the rest of his body is of no use. You can think the deepest thoughts and ideas but you cannot move your hand. Usually it's the opposite in life. Most people are very able to do anything physically but they don't use much of their brain. This narration is so important to show us that this is not just a body handled by nurses (as many people would probably see it without the Gregory's voice) but there is a bright human being trapped inside of it. And his family was so loving and dedicated. I imagine for most of the people it would be too much and they would arrange for a family member to be taken to some kind of a care home to avoid that burden but Gregory's family is amazing. I cannot even imagine how their lives were changed and how much they had to sacrifice. Such an important message at the end from Gregory. Great work

@thesavagefilmmaker Год назад

Thanks so much for the thoughtful comment, I'm glad you got so much out of it, Gregory's family was amazing as was he, incredibly brave and resilient.

@qfoil 11 месяцев назад

I have just got myself to watch this film. I knew it was going to be hard but It's just heart-wrenching. Thank you for giving your uncle Gregory the voice that was taken from him. Thanks to uncle Gregory for this message for everyone, for having the courage and selflessness to release it into the world. Through this happening of circumstances including that his nephew is a filmmaker this message was born. Raising the awareness is extremely important. But it is also important for those who will not have anything related to MSA in their lives - a reminder to be thankful to be alive and well, to be here in this very moment with their loved ones. This doesn't help my existential dread but increases my appreciation for the life I have tenfold. Thank you, Guy, best of everything to you and you family, cherish the warmest memories you all have!

@thesavagefilmmaker 11 месяцев назад

If it increases your appreciation for life ten fold, I think that's a hell of an endorsement! Certainly something I think about often. Thanks for watching Alex and taking the time to let me know your feelings on it.

@Hobchild Год назад

Fantastic docu, a real eye opener of a disease I didn't even know existed until I watched this.

@FightingMSA Год назад

I have the same illness and have 2 documentaries called Fighting MSA Austin Crawford's Story and Driven to Help (Now on Tubi)

@Hobchild Год назад

@@FightingMSA just watched the trailer. Will watch the docu over the weekend. Thoughts are with you.

@Seus1111 Год назад

Thank you so much for spreading awareness and letting us have a glimpse at your uncle Gregory’s live. MultiSystemAtrophy is a horrific and cruel disease for one suffering and their loved once.

@thesavagefilmmaker Год назад

Thank you for taking the time to watch.

@thesincitymama 10 дней назад

I wonder how very different it is for patients who live in countries where such a high level of care is unavailable or unaffordable.

@Bo_Hazem Год назад

Not sure if I done it wrong, but I watched this video then going to watch the film now. You provided precious knowledge about how to make it by yourself as a one-man-crew indie filmmaker. Thanks a lot for all your efforts.

@thesavagefilmmaker Год назад

Glad it was helpful my friend and thank you.

@heide-raquelfuss5580 Месяц назад

I see multiple nutrient deficiencies, like in cattle, over a prolongued time. Diet, diet, diet and what you eat and do not eat. Could it be? My gut and instinct tells me yes. Very sad. Look also up>youtube Could it be B12?

@thesavagefilmmaker Месяц назад

I’m afraid it has nothing to do with diet, MSA doesn’t discriminate, you can try any diet in the world, this is neurological.