This is very important for me. I’ve been sick for two and a half years. My sickness started at 35 years old. I’m having severe autonomic system dysfunction, and some slight motor function loss. However, I had a brain MRI in 2021 (extreme headaches and vertigo at the time) that was normal, I had another brain MRI in 2022 after illness onset and that was normal, and I had a orbits (visual flickering, palinopsia symptoms) and partial brain MRI in 2023 and that was normal. In the past 20 days I have been deteriorating rapidly into tachycardia, extreme fatigue, and weakness in my limbs. I haven’t lost too much fine motor control in the last 2.5 years but there has been a slight loss especially in the last 20 days. I have been seeing neurologists, brain surgeons, gastroenterologists, cardiologists, urologists, etc. as this disease has impacted almost every part of my body. I used to think it was Craniocervical Instability (CCI) because of the extreme headaches, neck pain, and cracking and grinding at the base of my skull, but I’m not so sure anymore. I hope it’s not MSA but at this point in time I understand that it’s a possibility. I am desperately trying to get diagnosed.
