New Diagnosis  

I'm in the US. My neurologist wrote convergence syndrome on a 2" piece of scrap paper and said "call your Psychiatrist ". I did. A month later he called me back. I asked what he thought. He said you need a therapist. As he knows, I've been in therapy for more than 30 yrs. I live with bipolar, ADHD, OCD, and I'm on the Autism spectrum. He said that I don't need to do anything else. My Primary Dr said the Convergence meant that my nockternal seizures weren't real. I've been having episodes for 15 months. I've been taking gabapentin since December so they are less frequent. Neurologist isn't doing anything else for me either. I've been educating myself and the Dr's seam to be annoyed by that.

Thanks for update . A few things..Do you use a Fitbit or similar , have you had a Hoover test, if a physical issue now discovered then ask the Neurologist why FND (which is effectively 'software ') , I'm not clinical background as you know, however from the symptoms you display are very similar to my partner who has IIH (ie effectively increased cranial pressure), which can be caused by a plethora of conditions when the control mechanism in the brain is either impaired or getting false signals.. ie BP changes, HB etc etc. Positionally changes.. ie standing up, getting out of swimming pool after intense exercise. Not pacing. Possibly hormonal changes.. Impact of blood flow through neck, vein and artery stenosis.. We still having got to an accurate or plausible diagnosis yet, however I won't give up. At the moment Diamox (Acetylamide) is reducing CSF production.. not an ideal solution longer term. However it gives my partner, reduction in head pain to a management level and tremors are very very infrequent now. Leg freezing has stopped.. All the very best. Do keep questioning.

Very interesting

Is it POTS? I bought a Fitbit. Unbelievable how much my bpm were much lower laying down/resting 48 bpm. I stood up, bpm went up to 110bpm with no exertion.

Thank you for this channel. I was diagnosed on Wednesday, it looked like MS from the symptoms. I had to go private to get a diagnosis and I wasn't expecting it. My world feels upside down. I think your content is so validating. Thank you and please keep it up. Very best wishes!

Hi chris, hope your doing ok, I know all too well how frustrating FND can be as you know, I was out for a meal with my family today and had two major seizures so I can't imagine a new diagnosis being added to it keep strong my friend you have got this!! ❤

Hey! Just wanted to say that i really enjoy watching your videos, and seeing how far you’ve come on your journey! As a fellow FND sufferer from the UK myself, i’m a member of the FND action group on FB, and i find your videos really inspiring. I think its awesome that your trying to make more people understand FND and what we all go through.

❤️❤️

This is very interesting, thanks!

I’m still learning to pace myself with my FND in a way that doesn’t lead to crashes.

Thank you 👍