It is unfortunate that not many neurologists are familiar with this disease, causing difficulties for patients to receive timely and accurate diagnosis. In my case, it was my optometrist who recognized the symptoms and acted quickly. If it were not for their swift action, my situation could have been much worse. Although I lost my eyesight in one eye, I am grateful that the disease was identified after experiencing symptoms for two years. The doctors tried their best to save my eye, but unfortunately, it was too late. As a result, I have made it my mission to raise awareness about this disease.
Dear Aseel I can't imagine how hard it must be and yet there you are with a positive attitude.I'm glad they found out and managed to save your other eye. I hope you are doing fine! As a family member of an nmo patient I can feel part of the pain and it's overwhelming when I'm not able to help. I really hope that they keep researching and developing new medicine for nmo. As for us Eculizumab is working wonders.
