On Making Meaning whilst living with ME and chronic illness 

Fantastic episode Dov and Dan. Heavily relate to many of your thoughts on paid work and identity. Society has such a work focused lens that when ill health hits, it throws up all questions like who am I without this label of a job role and who am I now with my illness? Great episode on meaning, thank you 🙏 😊

Thanks Dov and Dan. My shoulder length hair is super low maintenance. For a trim, I pull it into a ponytail, twist, then snip through. It's not totallly even, but since I wear it back or up, that doesn't show. Recently I've started going gray. No time or energy for vanity on that front. A silver fox I shall be.

"Why can't people hold and sit with the idea of chronic illness?" - Totally! 😅 Probably lack of education and also it's probably an uncomfortable feeling for them. They're not sure how to find the balance in relating to us between pity and trying to fix things/ignoring the illness entirely... 🤔

I think it’s worth considering that ME is so difficult to understand that Nobel prize nominated scientists cannot figure it out. Without a bio marker people can say anything, and they do. On both sides of the argument, which it still is, people say anything. All we have is opinion (Monbiot) and a bunch of lived experiences, some of which report full recovery from brain training. Socialising amidst all this when you’re very seriously unwell is like trying to host a lunch party in a war zone. Expect casualties!

Are there any online groups that do teams or zoom meetings regularly