Mama Chill & The ME Scandal

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Dan meets rapper and hip hop artist, Mama Chill, A.K.A, Stacy Hart to discuss her recently released track, 'The ME Scandal' as part of ME awareness month.
Stacy shares with great openness about her love of hip hop, as well as her ME story and how she was gaslit and neglected by medical professionals. She explains how she waited many years for diagnosis and support. After two years of waiting for a specialist clinic, it quickly became apparent to Stacy that the service did not offer her anything of benefit for her ME.
Mama Chill's website can be found here:
www.mamachillmusic.com/
Bandcamp for the ME Scandal track download and back catalogue:
mamachillmusic.bandcamp.com/t...
Podcast website:
www.pempod.com/
pempodcast23@gmail.com

Опубликовано:

2 июн 2024

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Комментарии : 32

@heretoday788 Месяц назад

I found it amazing to see the CDC post this: "Some people with ME/CFS might benefit from antidepressants and anti-anxiety medications. However, healthcare providers should use caution in prescribing these medications. Some drugs used to treat depression might worsen other ME/CFS symptoms and cause side effects." Finally, a federal agency acknowledging the harm potential after years of these psychiatric drugs being pushed and harming many ME patients.

@Mamachillmusic Месяц назад

Wow, that is a step in the right direction👍x

@annettewilford7568 Месяц назад

11 years on ssri. Hi stacy😊

@moonglaive Месяц назад

What's wild is that a lot of those are used, off label, for treating rheumy pain, and using anxyolytics/depressants for other things can cause depressions, anxiety, and other issues. But if that's what they meant, they should SAY SO instead of implying that people just need their heads treated.

@dovzeller4544 Месяц назад

Thanks Stacy and Dan! A beautiful interview, heart breaking as well. The medical incompetence and neglect is staggering (though I know most of us have dealt with some similar stuff.) Love 'The ME Scandal'!

@philliphall9817 Месяц назад

Susan here (Phil's wife here). I found the "ME Scandal" Rap song during the #GreatestMEScandal twitter campaign. I felt like the song was speaking to everything I was reading under that hashtag as well as my own experiences of neglect and harm. I relate to a lot of what has been shared in this interview.

@Mamachillmusic Месяц назад

Thank-you, it's the reason I write, I know myself from in the beginning of my M.E journey, there was nothing and nobody and it felt so scary & isolating, then i discovered a charity, there was only one at that time but there were people just like me, saying the same things and just being able to relate made a difference. I'm so sorry that you too have been at the receiving end of M.E abuse. We will all make a difference 😥x

@lauravitale8007 Месяц назад

Great interview, Daniel. "Three weeks later the hospital phoned...'we noticed you're missing.''" IN FACT it is the medical world that has been missing pwME for over half a century.

@raggedblossom508 Месяц назад

Thank you, Stacy and Dan, for this interview. In any other context, unnecessarily withholding food from a sick person for four days would roll heads, or at least bring on a reprimand. Especially as Stacy had been diagnosed as hypoglycemic. But ME seems to bring out a certain sadism in the medical community, and not a small amount of misogyny, given the prevalence of female sufferers. Anger is a justified, response, IMHO. But we need a supportive army of abled friends, family and advocates, as sick people shouldn't be expected to tackle the battle by themselves.

@Mamachillmusic Месяц назад

And thank-you, You're right, but sadly it just isn't the case, maybe in time more healthy friends/family members and public in general will get behind us but we all haven't done too badly considering how far we've come, and even though some of the changes are minimal, they are changes none the less and the momentum can only keep growing. In my daily life & most awful relapses the thing that keeps me going is knowing that i am part of something much bigger and no matter how small we can all do out bit, even when someone shares a post they are contributing to the battle and change, it all matters💜x

@Maycat133 Месяц назад

Excellent episode, thank you both for your thoughts and experiences . I really enjoyed your song Mama Chill and I’ll definitely be listening to more. It’s empowering that you’re able to tell your story in such a creative way 🩵

@JH-lz4dh Месяц назад

Great interview

@Mamachillmusic Месяц назад

Thank-you appreciated 👍x

@pattysmith5989 Месяц назад

Thanks for this interview & for your art. Art connects us on both intimate & universal levels. I have come to believe that the ME scandal was practice for the Long Covid scandal.

@Mamachillmusic Месяц назад

And thank-you too, At least if there's anything positive to come out of all this, the communities coming together have made us bigger , more supporters, more campaigners, this is only going to serve us going forward 🦾x

@finette4444 Месяц назад

Thank you both for this interview. It must have been exhausting to talk for so long! However, it's important to tell and share our stories. It's important for others to understand the abuse, neglect and never-ending battles that people with M.E. face.

@Mamachillmusic Месяц назад

Thank-you, It sure is important and with so many amazing people, together we will get there in the end 💜x

@heretoday788 Месяц назад

I'm getting through this video and it was lovely to hear Mama Chill's music at the end, it's not difficult to listen to, it's chill and lovely...Mama Chill rocks! XOXO

@Mamachillmusic Месяц назад

Thank-you, together we will all make a difference in the end 💜x

@TinaRodwell Месяц назад

I know this is going to be a hard listen to for me and that I will need something to occupy my hands, so I thought I would do something creative while listening hoping that embroidery or bagmaking I mean what could possibly go wrong. Seriously we need brave people both to enable others to understand their lived experience but also those who will listen and then decide to act and support.

@Mamachillmusic Месяц назад

I hope you managed to do a little embroidery /bag making Tina without too many hiccups and it didn't distract too much? While i promised myself I wouldn't watch it, I actually did, but it was like listening to someone else's story, i think I've become so used to it over the years that emotionally i feel nothing, very weird indeed. Thank-you for taking time to listen to it. 💜x