No video :(

One Person’s Story of Life With CSVD | ABF

Подписаться 2,4 тыс.

Просмотров 11 тыс.

50% 1

Julie Turner was 54 when she received a life-changing brain disease diagnosis. After years of escalating memory and thought-processing issues, Julie was diagnosed with cerebral small vessel disease (CSVD).
CSVD manifests itself in many ways, but it primarily impairs blood flow to the brain. The effects of this and other aspects of the disease have caused Julie to struggle with reading, writing, and speaking and experience nervous system issues, trouble walking, strokes, and even the early stages of dementia. Because there is no cure for CSVD and treatments are limited, funding research is absolutely critical to saving the lives of people like Julie. Give today to fund research seeking better treatments and a cure for CSVD. Make a donation at www.americanbr...
For more information and resources visit our website at www.americanbr...
Join our community:
Facebook: americanbrainfoundation
Instagram: / americanbrainfoundation
Twitter: abfbrain
LinkedIn: / american-brain-foundation

Опубликовано:

27 авг 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 34

@ashleystipes11 9 месяцев назад

I was just diagnosed, I'm 43, momma of 5 and gma to 1. After years of thinking I'm crazy and numerous neurologists. Finally got a Neurosurgeon to look at my brain mri and explain what is going on. It's really hard to feel or have emotions and the confusion some days are awful. There definitely needs to be more awareness and if I could put my pennies worth in having peace of your mind thru God's word helps me get thru. Praying for all of you precious brothers and sisters

@chadcharlotte1376 5 месяцев назад

@oursublimealabamalife9689 10 месяцев назад

Just diagnosed at 48. Such a long road to get here. Praying for everyone.

@lauramclaine504 Год назад

Prayers for you. I was diagnosed at 55. I’m 58 now. It’s a very emotional roller coaster you’re not in this alone.🦋

@akashatemple9011 Год назад

Thank you. I was just diagnosed. (52 y/o) take care :)

@WILLOWSGATEWAY 8 месяцев назад

Same I’m 28 and now diagnosed

@anne-marieriamitchell1140 2 месяца назад

Oh no I’m so sorryxx

@Hi22213 7 месяцев назад

I am 35 and have this just diagnoised. Do not know how long I will live

@lucylu5511 Год назад

I was just diagnosed I'm 43 😢

@rainicascadia5514 5 месяцев назад

Just diagnosed. I'm scared! I'd been thinking I had MS... I'm 66 and alone.

@Sarafoxynpink 3 месяца назад

I was just diagnosed at just turning 43, but symptoms started at 39. I'm devastated & angry.

@liltorchapache6496 Месяц назад

I was diagnosed with csvd after an MRI showed 2 transient strokes. One one in the left frontal lobe, the other in the right parietal Occipital lobe. I have memory problems that cause some days to be worse than others. I never know what each day will be like so it's difficult to plan for any sort of social life. I also have double vision, loss the ability of my blatter and walk very slow besides balance issues.i lost the speed in movement which is has caused a lot of frustration and even depression because the days seem to end so fast and what I had planned to get done in one day now takes days to do. I am 54 years old and was told I lost my high functioning skills which makes me sad because i have trouble doing simple things concerning anything internet and forget how to use apps and password. I even forgot where i leave my notebook with all the information.

@anne-marieriamitchell1140 2 месяца назад

Me 2 found out yesterday I’m so scared mum has it too and has dementia I had TIA so the MRI was just to be on the safe side So sorry you have this as well xx

@forgetthis2607 10 месяцев назад

I’m 35. And they believe I have this or MS. More tests 😩

@quietlistner7329 10 месяцев назад

Found out Today I found Out Today I have Wide Spread Chronic Micro Vasclar Ischemic Disease I'm 57 years old

@marionhammond5274 4 месяца назад

I've just been diagnosed! I had a Brain MRI for reoccurring Vertigo. Found out I have CSVD. No real explanation from my Dr. I'm fit, healthy and excersize daily. I watch my Diet. I'm a little scared as my Mother had Dementia & my Father suffered TIAs in later life.. Would love to know more information!

@joemurphy710 11 месяцев назад

❤

@MelissaMasters-eg2wq 5 месяцев назад

This is my wife's account she has this disease and is 43yo I am 48 and to be honest I am going to get a MRI because I have had concentration problems since I was in my early 40,s and no one has diagnosed it yet it could very well be my issue to. It would explain alot ........just a side note we both have sleep apnoea so lack of oxygen to the brain perhaps .......

@philipcox5041 6 месяцев назад

I was diagnosed at 54

@pattischmitz2680 2 месяца назад

What do they do for this

@philipcox5041 2 месяца назад

@pattischmitz2680 They just give me medicine now. Originally, they tried therapy but just gradually declining.

@pattischmitz2680 2 месяца назад

@@philipcox5041 does this cause breathing issues..

@pattischmitz2680 2 месяца назад

@@philipcox5041 I had mri 2 times in the past year and thats what it states on findings.. I am having horrible memory problems .. cognitive memory.. following small task.. headaches extreme exhaustion.. left eye fuzzy ..spasms.. balance issues.. ringing in ear.. tremors.. trouble breathing.. been bed bound for almost 2 years.. my nerologist quit am having problems finding new one.. do u know if these are typical symptoms?

@pattischmitz2680 2 месяца назад

@@philipcox5041 what r your symptoms? If u don’t mind me asking?

@dawnmcfeeters5204 5 месяцев назад

I had 2 acute and 1 lesser strokes May 8th 2023. November, 2023 I have CSVD. I am 52. Will be 53 in a few weeks. I really would like to know more. The neuro said I will know if I am progressing because I will have more strokes and TIAs.....I feel like I am waiting for the other shoe to drop. There is not much I see about people my age with this......can someone point me in a good direction?

@anne-marieriamitchell1140 2 месяца назад

I agree I can’t find very much info either I’m 56 found out yesterday I’m shell shocked scared and nervous and sad all at the same time my husband was most upset but I’ve caught up with him now! I look after my mum who has dementia she lives with us but having respite at the moment Don’t know if I can look after mum being aware that this will happen to me I have a super husband and son both firefighters and DIL and an amazing granddaughter who is almost 1 I just want to cry allot réalise plans we made won’t happen yes I’m upset xx

@nagaranip3267 Месяц назад

Life style modification ,healthy life style, like exercise, adequate sleep, healthy diet will definitely improve CSVD

@jstavene 3 месяца назад

Just diagnosed, am 47

@jstavene 3 месяца назад

Is anyone on ssdi for this? my memory is so bad I screw up 1 or 2 times a day so had to stop going to work, am nervous if I will qualify or not for disability, if not I will be fired from second job for memory issues (as a welder we are terminated at 3 screwups a year or 5 audit fails on paperwork a year),,, I was on the threshold of termination and had no choice if fired I lost health medical ins and figihting diabetes and was fighting cancer and vision loss (told employer if I had 1 decent correctable eye I wanted to keep working but this,,memory stuff I just couldn't,, 1 bad weld can kill someone so had no choice ... anyone else have to go to disability? how rough was it?

@jakobausterlitz8102 24 дня назад

@@jstaveneWhy SSDI?? Perhaps SSD.

@wayneferrier8096 Месяц назад

If we where robots we would be safe from everything thrown at us but the problem is we are not.i think the problem is their is so much anxiety and stress in the world and severe depression which a number of people experience i think that triggers all these horrible diseases.