Since 1992, the American Brain Foundation has been investing in research to defeat brain diseases and disorders. We are a national foundation for the brain dedicated to the relentless pursuit of improved prevention, treatment, and cures for brain diseases and disorders.
We unite donors and researchers to improve the lives of those living with brain disease and their loved ones. We invest in research of the whole brain and all neurologic disorders knowing they are interconnected. This holistic, innovative approach allows us to build bridges between diseases and break new ground in research and application.
Utilizing a whole-brain approach gives us an edge in understanding and combating brain disease. We understand that when we cure one brain disease, we will cure many.
If we where robots we would be safe from everything thrown at us but the problem is we are not.i think the problem is their is so much anxiety and stress in the world and severe depression which a number of people experience i think that triggers all these horrible diseases.
I was diagnosed with csvd after an MRI showed 2 transient strokes. One one in the left frontal lobe, the other in the right parietal Occipital lobe. I have memory problems that cause some days to be worse than others. I never know what each day will be like so it's difficult to plan for any sort of social life. I also have double vision, loss the ability of my blatter and walk very slow besides balance issues.i lost the speed in movement which is has caused a lot of frustration and even depression because the days seem to end so fast and what I had planned to get done in one day now takes days to do. I am 54 years old and was told I lost my high functioning skills which makes me sad because i have trouble doing simple things concerning anything internet and forget how to use apps and password. I even forgot where i leave my notebook with all the information.
I am 74 female initially suffers acute migraine which continued for 3/4 year . Then affected by anxiety neurosis initially confining to bed ,reached to sinking feeling , unable to stand or move . with use of Serta 50 the disease. Initially controlled but basic problems of neurosis increases with increase in anxiety depending on surrounding factors. At 1999 I had endometrial cancer with subtotal hysterectomy due to internal adhesions for ruptured overian cyst. Only hormone therapy done. I am surviving with osteoporosis. Frequent bone fractures increased anxiety neurosis with increased Serta 100 dose. for he last 3/4 years I have parkinsons' . my syndopa 110 thrice daily changed to syndopa 125 plus and Admemta - an Alzheimer's medicine'the I am worried whether parkinsons' changing slowly to Alzheimers' which I have seen patients at dangerous level of living . I suffer tremor, unable to use laptop, cannot sign properly, Instant memory loss on current incidents, forgetfulness and difficulty in holding any thing etc but no recognition problem. Pl inform wthether it is parkinsons' or trending ultimately to Alzheimers ?
Thank you for talking about our condition. I've suffered from the age of 14yrs old. It took till the age of 42 to diagnosed me. I've struggled to walk all these years. I'm now 44 and got signs of parkinsons waiting on results. My dystonia affects my legs, arms, jaw and speech.😢xx
I know this is an old video, but I need some help. I was diagnosed with cervical dystonia but I am also experiencing extreme pain in my face/jaws, and in my hands not functioning and even my feet cramping. I don't have a diagnosis of general dystonia, just cervical. I have severe debilitating headaches every single day. Do you have these issues?
Me 2 found out yesterday I’m so scared mum has it too and has dementia I had TIA so the MRI was just to be on the safe side So sorry you have this as well xx
Is anyone on ssdi for this? my memory is so bad I screw up 1 or 2 times a day so had to stop going to work, am nervous if I will qualify or not for disability, if not I will be fired from second job for memory issues (as a welder we are terminated at 3 screwups a year or 5 audit fails on paperwork a year),,, I was on the threshold of termination and had no choice if fired I lost health medical ins and figihting diabetes and was fighting cancer and vision loss (told employer if I had 1 decent correctable eye I wanted to keep working but this,,memory stuff I just couldn't,, 1 bad weld can kill someone so had no choice ... anyone else have to go to disability? how rough was it?
I've just been diagnosed! I had a Brain MRI for reoccurring Vertigo. Found out I have CSVD. No real explanation from my Dr. I'm fit, healthy and excersize daily. I watch my Diet. I'm a little scared as my Mother had Dementia & my Father suffered TIAs in later life.. Would love to know more information!
This is my wife's account she has this disease and is 43yo I am 48 and to be honest I am going to get a MRI because I have had concentration problems since I was in my early 40,s and no one has diagnosed it yet it could very well be my issue to. It would explain alot ........just a side note we both have sleep apnoea so lack of oxygen to the brain perhaps .......
I had 2 acute and 1 lesser strokes May 8th 2023. November, 2023 I have CSVD. I am 52. Will be 53 in a few weeks. I really would like to know more. The neuro said I will know if I am progressing because I will have more strokes and TIAs.....I feel like I am waiting for the other shoe to drop. There is not much I see about people my age with this......can someone point me in a good direction?
I agree I can’t find very much info either I’m 56 found out yesterday I’m shell shocked scared and nervous and sad all at the same time my husband was most upset but I’ve caught up with him now! I look after my mum who has dementia she lives with us but having respite at the moment Don’t know if I can look after mum being aware that this will happen to me I have a super husband and son both firefighters and DIL and an amazing granddaughter who is almost 1 I just want to cry allot réalise plans we made won’t happen yes I’m upset xx
I was helping somebody so much and causing so much happiness that this became a very special part of my identity, it was amazing to feel how much I could make a difference for somebody. And suddenly when you are torn away from the person you love and who loves you and who is sharing so much happiness, it's really a huge, huge pain.
@@philipcox5041 I had mri 2 times in the past year and thats what it states on findings.. I am having horrible memory problems .. cognitive memory.. following small task.. headaches extreme exhaustion.. left eye fuzzy ..spasms.. balance issues.. ringing in ear.. tremors.. trouble breathing.. been bed bound for almost 2 years.. my nerologist quit am having problems finding new one.. do u know if these are typical symptoms?
Extremely helpful and insightful. I've just lost a close family member a few weeks ago and this has really helped me understand why I'm in such a fog and struggling with my memory.
Thank you for sharing your powerful journey with dystonia. Your resilience in facing the challenges of this neurological movement disorder is truly inspiring. It's heartening to see the positive impact that focusing on your overall health has had on the effectiveness of treatments. The support from your parents and your determination to overcome adversity are remarkable. By raising awareness and supporting organizations like the American Brain Foundation, you're contributing to the hope for better treatments and, ultimately, a cure. Your story is a beacon of strength and encouragement for others facing similar battles. 💙 #DystoniaAwareness #NeurologicalDisorders #Hope
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms...My Dad is well again🔁
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms...My Dad is well again🔁
PTSD is so misunderstood by clinicians! Not by those of us who suffer. One newbie med student actually had the audacity to inform me: ''You couldn't have PTSD, only people who witness death, military have it.'' I have had trauma repeatedly in my life. Events over and over and over. So which event do I tackle among the many?
I’m 49 and got diagnosed but I’ve been dealing with these issues and autoimmune for 20 years so I think it started in my late 20’s. Even though I have to deal with this I’m glad to know I’m not just going “crazy” and losing my mind for no reason. ❤️🩹It’s a death sentence for me but hopefully they will have more research and answers for people like us.
Great things Dr Madida on RU-vid has being doing for mankind, I undergo his Parkinson disease treatment plan for weeks and my Parkinson Disease was completely reversed....💫💫
So I was refused DMT for Multiple sclerosis because I didn't take the shot. I worked the entire pandemic in the hospital and was deemed exempt from the shot. I'm now disabled and can't work anymore due to MS not covid. I wish I could sue.
Are you still taking the medication that gave you the dystonia? Sometimes it can take a year or more to come off some of those medications, without risking further movement disorder. I hope you've been having a good week😊
@@ralsharp6013 please sir help me 🥺 Indian doctors are saying that this disease cannot be cured and brain surgery has also been done once. medicine name 1. TAB PACITANE 2 MG 2. TAB MIRTAZAPINE 15 MG 3. TAB CLONAZEPAM 0.5 MG 4. TAB ESCITALOPRAM 15 MG 5. TAB TRYPTOMER 25 MG Is this disease caused by this medicine? And how can they stop the medicine?
I hope you are doing ok? I have had O.T for a long time at least 12 years but it has progressed in the last few years and this year has been the worst, can only stand unaided for seconds now. I feel exhausted after standing like I have climbed a mountain. I live in UK where are you?
This is so unusual…how can someone so disabled go from night to day…can’t be just will power…people like him have had to need DBS or some medical intervention to help him feel better
If you scroll up, he commented on the various treatments he has undergone and his commitment to "living", despite the daily struggles this disease presents. I have the same diagnosis. He has not gone from "night to day". Read his comment. This man has worked very hard to achieve where he is today; but no matter...though he can hold his neck up, I'm sure he still suffers with chronic pain.
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms•••My Dad is completely okay and healthy now.😊
Hi doc I have white matter disease and recently had a aneurysm which was 1.1mm and my neurologist is doing nothing for the condition I have severe memory loss
I’ll be honest I’m crying a bit. I have been going through this due the last two years and no one believed or helped me. I lost my job being unable to move, social life, everything! Feels like no one cares or wants to help, I know I’m in pain I don’t know what to do!
I was just diagnosed, I'm 43, momma of 5 and gma to 1. After years of thinking I'm crazy and numerous neurologists. Finally got a Neurosurgeon to look at my brain mri and explain what is going on. It's really hard to feel or have emotions and the confusion some days are awful. There definitely needs to be more awareness and if I could put my pennies worth in having peace of your mind thru God's word helps me get thru. Praying for all of you precious brothers and sisters
