Our Little Ironman - An LGS Story 

Life is not a sprint, it’s a marathon. Little Charles’ family views LGS the same way. Nearly ten years after the family received an LGS diagnosis, Little Charles’ parents have done everything possible to find a cure. This year, his dad is participating in an Ironman competition to raise funds to #SolvetheMysteryLGS.
Learn more about his story at www.lgsfoundat...
#LennoxGastautSyndrome #RareDisease #Epilepsy