Come with us on our memorable trip to Georgia as we stay a long Memorial Day weekend with our Sanfilippo sister, JoJo, on their beautiful plantation and meet 3 other Sanfilippo families for some core memories of a lifetime. A huge 'THANK YOU' goes out to our tribe for helping us get there!
Thank you for taking 'one day at a time' with us and sharing all of the emotions in between. xx
[ AWARENESS + DIAGNOSIS ]
Sanfilippo Syndrome, also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen, Meredith, Reagan, Eli + Jolene's brain will be permanently damaged by the bad cells that their body can clear out over time and they will eventually lose all skills - such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here on our channel with us to help support Owen and help spread awareness.
♡ Please SUBSCRIBE to our channel.
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♡ REALTED VIDEOS TO WATCH:
GET TO KNOW HIM: AN INTERVIEW WITH OWEN!!
• AN INTERVIEW WITH OWEN...
PACK WITH US FOR THIS GEORGIA TRIP:
• PACK WITH ME FOR GEORG...
JOJO'S VISIT TO OUR HOME:
• WE HAD A SPECIAL VISIT...
MPS TRIP TO NASHVILLE:
• NASHVILLE TRIP HIGHLIG...
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♡ SOCIAL LINKS:
Follow us on Instagram! @lifeinthelyonsden
Our shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: / owensmpsstory
12 июл 2023
