It's that time of year! Owen's pumpkin tee is out and going out in bundles. I chose to vlog this set randomly during nap times. Thank you so much for supporting our boy and helping us spread awareness. There are so many new, lovely things come to the shop and I'm so excited to see you all incorporating them in your story too!
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[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
♡ Please SUBSCRIBE to our channel.
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website + shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: / owensmpsstory
8 окт 2022
