PANDAS/PANS and Autism: The Need to Knows 

My son has pandas and was diagnosed him 5th grade. He has been on rounds of antibiotics so now he has an invasive fungal infection...please watch putting your child on all those antibiotics. He is 18 now and very sick. We are using probiotics and antifungals to get him back to normal. Make sure you give your children the good bacteria after antibiotics.

Excellent information.. Thanks so much for putting up... God bless you..

My daughter got strep and then developed Type 1 Diabetes. I have always felt there was a connection. Her doctor did as well. The other thing that struck me is the mosquito bite legs you spoke about. My daughter would look eaten up no matter what I did. When ever she was on an antibiotic the legs would start to clear. I just feel somehow there may be a connection to how these things happen and auto immune. I don't know because this is the first time I've ever heard of this but I had to comment on it.

Hi Mary. I suspect this in one of my clients. I’m going to bring it up to the BCBA tomorrow. Thank you

Mine was developing very well and suddenly stopped talking at almost 3.5 years old. He makes loud noise and talks in a made up language none srop. He has some mosquito bites behind his ears and he is always touching it as if something was inside bothering him. He will have his ear checked next month

Maybe that is what my 3.5 years old has. He was developing very well and suddenly stopped communicating with words

Do you have any suggestions or information on how to go about getting evaluated/diagnosed with ASD with a preexisting PANDAS diagnosis? I was diagnosed with PANDAS when I was younger, received IVIG, and have since had much milder symptoms that do occasionally flare. Before being officially diagnosed, doctors were unsure if my severe symptoms and behaviors were related to Autism. Now that I'm older, and have a better handle on my PANDAS symptoms, I still wonder if maybe an ASD diagnosis would help explain some things.

Hello Mary, My son has ASD some of the symptoms with pans/pandas seem similar with asd. How does one differentiate if it’s asd or pans/pandas?

i had pandas it was horid i hope no one has to go thru it thanks to the doks that work at co,springs chidrens hospital

Wish I knew you when my daughter was screaming ALL in Day and this was echoing in her ears...we got No help back in the day and my daughter never got quite over it. She is an adult now and still afflicted. No treatment ever. Our family was ravaged from screaming all day for years and the doc said NO to a psyche ward.. which is better because of creepy predators... But it wasn't hard and impossible...to deal with.

My son started having problems and ticks at the age of 8. I tried to find out what is going on, visited every neurologist in the state, put him even in a psychiatric hospital for 10 days...nobody could give me an answer. He is 25 now, ticks are still present, his personality changed, he got many diagnosis, OCD, DEPRESSION, PTSD...cant name all of them and was told he was born this way. He tried to commit suicide many times. Your description about ticks is almost the same. It started by clearing his throat, then pulling out the tongue, then arm, then head jerking...he was tired and in pain from it. His ticks are now less but still present and I finally got some answers, I am sure he has PANS. BUT CAN ANYONE HELP? Is it too late for him? He was a bright intelligent boy and I know deep in his hart he is good but his behavior is terrible. Please somebody give me hope. Thank you.

Is facial tics also part of PANDAS. my son is 3 years old and having ASD and he frequently lifts his nose.

Is PANDAS syndrome a form of acquired autism? Does he usually show brain inflammation on MRIs or skull scans?

great video! I am learning about this and wondering if both my kids have PANS or PANDAS because both had sudden changes. Son extreem ticks and daughter extreem panic and OCD. But I do not remember if that happend after an infection. These Changes has happend 3 and 5 years ago. hard to recall. Is there a way to test for virussus and bacteria in the body after years? Or something? ;)

I am having a hard time finding someone to diagnose my daughter with pans. She has all the symptoms. Do u know who to go to?

Could i have this? I'm bed bound and desperately trying to find out what's wrong. I have ehlers danlos syndrome (eds) and i have had severe back and head pain for years. I'm constantly having to turn over due to back pain. Also my neck got locked in one position and has been stiff ever since. Often i find that my back wants to lay one way and my neck wants me to lay the other. I also have had severe sickness and have had to be taking anti sickness ever since i got d&v. Ive hit my head several times and have had concussion. I have audit and visual hallucinations and eye sight issues. Dizziness. I have had stuff run down my throat causingvit to feel blocked for years. Sudden behavioral issues/ changes. I now can't even sit up or keep my neck up straight. Now i can't sit up without lower back pain and sickness. Agitation. Numbness in hands and legs. Can't feel pain. Sensitive to light. Memory issues. Panic attacks. Can't feel emotions, yet with a flick of a switch, I'm angry or crying. I have no idea why after. Aggression. Anorexia. Depression. Autism. Virtigo. Brain saps. Not responding to pain meds and i can't have morphine as that doesn't work and makes me sick. Nothing works. Normal mri and blood tests testing for antibodies. Frequent infections. Resistant to most antibiotics now. Also i have constant ringing in my ears. Also I've had a really bad ear infection, where i lost my taste buds and sense of smell. I've lost my taste buds now and sense of smell. Also, i had urinary problems growing up and found that as soon as i laughed or bounced on my trampoline, I'd end up going. It was very embarrassing and i had to take this little blue tablet to help (can't remember what it was called) My neurologist has diagnosed me with FND but i disagree! I'm aware that not all my symptoms are relivent, but i thought I'd add everything

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How did you get the diagnosis?

Hello Mary, your video is so informative. My son is 2.5 years old, he started loud noises over 3 days, he is diagnosed with ASD , i have noticed little red bumps on his legs, we thought its because of ants’ bitten as our backyard is full of them. Do you think that could be PANS. Moreover us is this kind of autoimmune genetic in nature. I suffered from chronic autoimmune condition myself.