I have a meeting with my neurologist later today where I’m hoping a change in my meds will deal with some of my speech issues and other related symptoms when I’m “off”.
With that in mind, and having had lots of messages asking about my symptoms and progression I thought, on this rainy day that I’d do an “off the cuff” explanation of what it means to be “on” or “off”. It’s often not so obvious in the early stages but this phenomenon of the disease become more apparent as time goes on.
With 40 or so symptoms (we don’t all have the same or all of them at once) I can’t cover it all but I hope this goes some way to giving an overview. There’s much better content out there but this is my take this morning.
I’m putting this stuff out there because I want to raise awareness. I also want to challenge stigmas. Please share, feel free to ask a question and help me and the many other amazing advocates out there to bring clarity and awareness. Thank you! #disability #stigma #parkinsons #onoff #youngonsetparkinsons #earlyonsetparkinsons #spotlightyopd #puk #cureparkinsons #cue1
2 окт 2024