Thankyou. So few people in Australia treat this condition. That lady in Brisbane must have had private medical cover because the public hospitals have no appointments for even urgent cases. There are no teams of people to treat FND patients. It is almost impossible to get a doctor's appointment, let alone a specialist! When I was diagnosed by a specialist, that only saw me because I spoke to the hospital's legal team, I was given Jon Stone's app and FND Australia website and FNDorg website as sources for my assistance and a letter to my GP. That's it. This very much seems like hopium by the ABC, I'm afraid. Australia has few resources to aid FND patients. Sad but true.
I am in England, im not getting any help , i didnt walk or eat for nearly 8 months, are there any groups in England im in Clevedon North Somerset, my social worker hasnt helped me , im currently in a nursing home but i have to go home soon, no help in the community, ive been eating and walking now for 14 weeks i have 40 symptoms that have given me a year of pain, Lowe limb weakness vision problems, bladder problems, muscles playing up , seizure like attacks drifting out my body, numbness tingling, burning in my lungs or anywhere in my body, stiffness, sleep problems, hyper activities depression, anxious anxiety, swallowing problems, bowel problems, forgetting things, dizzy, no concentration, panic attacks, face twisted and twitching speech problems, off balance, i was very fit and active before i got unwell 13 months ago, i gave up in the beginning but ive been fighting back this last 14 weeks, i have no family as they all abandoned me , even my social worker has let me down, i have to leave the nursing home ive been staying in very soon, no help with physical exercise, i am desperate because no one's helped me , i cant talk sometimes for hours its terrified me
