Peritoneal Dialysis: PD Clinic in 2023

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Good news! It's not like a doctor's office.
In this video I discuss how often I go to the clinic while doing Peritoneal Dialysis at home.
I talk about when the PD clinic appointments are and how long they take. What to expect at each appointment, an example of my bloodwork and what the clinic looks and feels like.
Timestamp
00:00 Intro
01:00 1st Appointment (Labs)
03:38 Less common Labs
04:24 Bloodwork Results
05:25 2nd Appointment (Nephrologist)
07:12 What is the Clinic like?
10:39 One thing I'd change
11:38 Ending
NOTE: My channel is for awareness, community and entertainment purposes only. Nothing on my channel is meant to be taken as medical advice. I am not a doctor nor am I medically trained. I'm a patient who is suffering from Kidney Failure caused by FSGS. Be your own health advocate as you work with your healthcare provider.
Baxter supplies my Cycler, PD fluids and supplies. My supplies are delivered to my home.
#dialysis #kidneydisease #kidneyfailure #peritonealdialysis #dialysispatient #hemodialysis

Опубликовано:

3 апр 2023

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Комментарии : 8

@DavidSmith-hc2xq Год назад

I was diagnosed with atypical anti-glomerular basement membrane disease. It's similar to what you have. I have been on cemo,rituximab and now on cellcept. Thanks for sharing as the road I may be on.

@heidimckie274 Год назад

What was your GFR when you started dialysis?

@saul.t.2.969 Год назад

Your so very helpful. I did wonder, when doing manual pd, how long did it take for the 4.4 lbs. of liquid to empty in to you? And how long to empty out? I know you do every 4 hours getting a bag but, is it 40 minutes? 60 minutes?

@caitanobdais6574 Год назад

We need to escape dalices instead tablets

@justasimplesomeone Год назад

Thank you for your kindness. Do you mind my asking: why do you think your kidneys failed? And do you now think it is possible to slow down the decline - or is it just that there is a weakness in the organs ? Thank you. And wishing you the best. By the way, even though you suffered hair loss, you have beautiful hair, I noticed, in another video.

@kidneykeeping Год назад

I have FSGS. It is a rare Kidney Disease where my body is attaching my Kidneys. My doctors are not sure if the Lithium I was taking caused the FSGS or if I just have bad luck. We tried to slow down the disease but it didn't respond to the treatment. For a lot of people with Kidney Disease, you can slow down or stop the decline of Kidney function by changing diet and exercising. The key is to catch it as soon as possible. Thanks for your comment!

@coffeeandhorses7991 Год назад

Have you ever tried dialysis shakes ?.

@kidneykeeping Год назад

Before I was able to get an appointment with a Nephrologist, my PCP gave me protein shakes. I was so sick (I think it was because my Creatinine was climbing) that I would just throw it up. After that experience I can't make myself drink protein shakes. Maybe there's better ones out there that I haven't tried yet.