PIP renewal - time for a change of process!

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It's time for a change in the way that the DWP process renewal/reapplication of PIP claims.
Their current system is very stressful and time consuming.
What do you think they should do?
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Опубликовано:

27 фев 2024

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Комментарии : 53

@oceansailor2744 4 месяца назад

I’m so worried to re apply, I’m due end of this year, it stresses me out, I feel like I’m begging to get a small help. My life is already hard and stressful every day, as if we don’t have enough. Thank you for explaining this, I didn’t know what to expect.

@AnkylosingSpondylitisMan 4 месяца назад

I hope things work out for you 🤞

@UKisFK 4 месяца назад

good luck, 14 month after I send the form they replay, they got some point out, after many letters to DWP told them we going to court again they agree to pay me the original amount, dont give up

@mmckay3 5 месяцев назад

I just want to say it also does not make sense to access me every 2 years at a cost to the Tax Payer of over £1000 each time when my condition remains the same or has got worse. It's a waste of Tax Payers money.

@AnkylosingSpondylitisMan 5 месяцев назад

Totally right, it's beyond sense.

@gaynormca8992 2 месяца назад

They’re making sure you’re still in the country and you continue to have a medical condition. I’d say that’s pretty reasonable as after all you’re being supported by taxpayers.

@Gempanda2012 5 месяцев назад

The process definitely needs to be streamlined, a 40 page application form is absurd. I have AS and haven't been reassessed yet, my friend who has MS and cant' walk has though, completely pointless waste of tax payers money, there is no possibility his condition would have improved. I am worried about it though, it's a minefield, and I am just getting a new motability car, would hate to lose it.

@AnkylosingSpondylitisMan 5 месяцев назад

Absurd is definitely the right word to use.

@Budgi3girl 4 месяца назад

Had a lifetime award on the old DLA (Mobility higher), I had 12 years on that rate. When the changes happened I was placed on lower rate pip and they took my lifeline (my car) off me. Was too ill to fight it at the time. Feeling stronger to fight it this time around! It’s so so stressful though… it’s so hard to tell someone on a form how much your condition affects you and even more so to a stand-offish assessor who seemed to have very little medical knowledge. I wish there was some kind of service to help you with your claim as I was definitely not equipped myself to fight it. Hopefully it will go better this time. Transferring to UC from Tax credits at the moment… I’ve been waiting 98 days for an answer. Job centre just says it’s with the decision makers… nothing they can do there’s a back log! 🤯🤯🤯 ohh and there’s no way my condition can improve, degenerative! The DLA decision maker appreciated that, why can’t the pip be same.

@WildBill-py6vn 4 месяца назад

Your not allowed a car mate but full bodied illegals get them free your car now goes to them

@AnkylosingSpondylitisMan 4 месяца назад

I hope you feel in a better place soon to try and get the mobility part back

@ladylee1979 4 месяца назад

ive just had a pip review what gripes me is the review assessment is no different to the assessment you have when you apply for the first time i conducted both in one week one application and one review and both were almost the same 90 minutes over the phone one asked about pets/driving the other did not however despite filling out the review form an assessment still had to be conducted as you said condition hasnt gone away or got better but worse if anything the application one was turned down now onto mandatory recon

@AnkylosingSpondylitisMan 4 месяца назад

It really does need to be looked at. Hopefully things will change for the better soon.

@mmckay3 5 месяцев назад

I keep having to re apply and I got diagnosed with Ankylosing Spondylitis in 2017, Leukocytoclastic vasculitis diagnosed as a child, fibromyalgia, chronic fatigue linked to my Ankylosing Spondylitis. I am not on biological injections. It's not right that I am assessed every 2 years. My conditions can stabilise but they cannot get better. They can give worse though.

@Welcome2TexasPodcast 4 месяца назад

I am 43 had back surgery, degenerative disk,stenosis, ankylosing spondylitis, major depression disorder with pycatic features HLA-B27 positive. My joins are effected. My last mri my rheumatologist called me to tell me my ankylosing spondylitis had progressed. I take remicade once a month. I feel sick. My mental health is going down hiil

@AnkylosingSpondylitisMan 4 месяца назад

Sending good thoughts to you

@Welcome2TexasPodcast 4 месяца назад

@@AnkylosingSpondylitisMan thank you. Ankylosing spondylitis sucks

@UKisFK 4 месяца назад

tumor at my head half blind outpatian in hospital for past 24 years, get checked by hospital and GP many times a year, they did my review only for 4 year, they try to give me lese point but I told them I will take it to court they put me back on my original point, when I got assessed they had nothing to ask me they sad why I dont have Nutrition wtf, DWP & Gov dont care for us

@deano_bites 4 месяца назад

From what I heard PIP has record amount of over 400,000 applications in late 2023 and it's expected to rise, people are now applying for PIP but their condition does NOT affect them doing things example 2 people can have the same condition but it affects the other person on a daily basis he/she cannot cook or dress or budget, but the other person can do it all, we have local News articles reporting ''everyone can apply for PIP for these conditions'' but in reality many of them they can't and now they have review applications taking over 1 year if not 2 years yes that is right over 2 years for a review to be completed !!!!!! the tribunals are overloaded and the genuine are left with the Blunt of it

@AnkylosingSpondylitisMan 4 месяца назад

This is such a sad situation, that's a horrendous amount of time.

@bettyboo1519 4 месяца назад

Hi there, I've just noticed my PIP is up September '24, do I ring DWP for forms, can you tell me please? or just wait for it to drop thru door? I'm starting to stress, as we all do, when it comes about. I'm 65 and due my old age pension next January, will I still be able to claim PIP. Thanks for any Advice.

@AnkylosingSpondylitisMan 4 месяца назад

It should just drop through the door. It continues into retirement, so you can still claim & get state pension.

@suemac7536 4 месяца назад

The review form is not as long as the initial assessment, 12 questions asking if anything has changed, I belong to a group called (benefits and work ),its on line. They have some very good guidance notes, but they advise not to just fill in your form by stating (no changes) because they know of people that have lost there clam altogether by doing that( ludicrous).

@bettyboo1519 4 месяца назад

@@suemac7536 Thanks for Advice, most appreciated. I have some changes, just recovering from ACDF operation, awaiting to see Respiratory Consultant, so will put these new problems on form when arrives.

@frankw9836 3 месяца назад

Hi all just a question. I received my PIP review/renewal Form today. After watching some youtube Videos, People suggesting : Just to write "no change" nothing else like " i am still struggling...... just no change. Is that right ??

@AnkylosingSpondylitisMan 3 месяца назад

Yes, 'no change' is what I had on my form - it feels better to have that than a blank area.

@samanthahardy9903 Месяц назад

The DWP tried to persuade me to have a telephone assessment because I wanted the assessment recorded and they didn't have recording equipment at the assessment centre but I explained to them that a face to face assessment would be better because then the assessor can see for themselves my physical issues and my daughter would record it. Unfortunately people have been denied PIPs due to the assessments being done over the phone as the assessor can't really assess someone's physical difficulties over the phone as most people who have trouble standing up and with balance are likely to be sitting down through the whole assessment.

@AnkylosingSpondylitisMan Месяц назад

Mine was over the phone (initial one due to COVID) - I think I bombarded them with so many reports, scans, letters etc, they probably had no choice in giving it to me 😂 In all seriousness though, yeah, it's so difficult to be able to get the full picture over a phone, as opposed to seeing someone in person.

@pinky-ud1rt 4 месяца назад

I hun i had my renewl its sooo stressfull j have ADHD ANXIETY OCD IM A DANGER TO PEOPLE BECOUSE I LASSH OUT. DEPPRESSING AND FIBROMALGIA...anyawy my daughter did the form 48 hours we sent it recorded deliverly i got a message say there looking at it and they said they may contact me or by face to face i hate it...nothing change in my condition ypur so right dwp needs to stop making people ill for the forms

@AnkylosingSpondylitisMan 4 месяца назад

Sorry to hear that, it is such a difficult process 😔

@leecole4091 4 месяца назад

My review is coming up soon so if nothing really changed so do I have to fill out form again if no change from last review

@AnkylosingSpondylitisMan 4 месяца назад

They only ask to add any changes in the main section.

@gaynormca8992 2 месяца назад

For all those complaining about the PIP review system, just remember you will continue to be paid whilst the review is being carried out, even if it takes them 2-3 years to process it. It’s also up to the individual to keep on top of their evidentiary paperwork, ie don’t leave it until you get the form, it just adds to the panic.

@AnkylosingSpondylitisMan 2 месяца назад

This is a good point ☝️ 👍

@peterkelly5672 2 месяца назад

My pip assessment was done by a physiotherapist over the phone even after appealing was only awarded daily living at standard rate I’ve had AS since 16 I. Now 57 and only applied 2 years ago was awarded pip for 3 years got a reassessment in a year had 2 hip replacements 2006 &2023 time asthma and partially blind in one eye from Kertaconus was on biological therapy for last 14 years and don’t work as well injection changed to Rinvok now a daily tablet don’t think they working very good either suffer from spine neck hip shoulder blade pain and groin pain

@AnkylosingSpondylitisMan 2 месяца назад

It's bizarre how they score these, I really don't understand what goes on behind the scenes at the DWP

@wayneevans2605 3 месяца назад

I got similar things to you but you say you can't write but are slapping your hands together..... I can use one had the other I have to hold up please talk truthly.....

@AnkylosingSpondylitisMan 3 месяца назад

Holding/gripping a pen, then writing out a whole document is something that I physically cannot do. The tightening of 2 fingers & 1 thumb (and maintaining it) is literally beyond my grasp. Writing is totally different to slapping my hands together! If you have similar things, what do you have? Do you have issues with certain limbs where you can do one thing, but not another? I would have hoped you'd understand rather than question these, which is exactly what the PIP assessors do!

@wayneevans2605 3 месяца назад

@@AnkylosingSpondylitisMan yeah I have ""what they called it" seronegative spondyloathropathy what I can't even say and am still learning tbh I thought I was paralysed but didn't mean to be horrible to you I'm just confused and worried about pip.. So am so sorry mate

@wayneevans2605 3 месяца назад

@@AnkylosingSpondylitisMan I'm on the biologic like you said but it changed couple of weeks ago although they said it the same meds I am not feeling the same I'm worried look so sorry for my message I'm truly worried is all hope you can except my apology sir

@kylesheehan7217 2 месяца назад

Because filling in a form is too much to ask to recieve upto 5k a year, grow up

@AnkylosingSpondylitisMan 2 месяца назад

Do you have any kind of disability? Have you had to go through this? Filling out a form with any kind of arthritis is unnecessarily painful. I am talking physical pain here.

@kylesheehan7217 2 месяца назад

@AnkylosingSpondylitisMan You're receiving money mate, that normally takes months for the average man to recieve working, I think having your condition monitored for any change good or bad is not too much to ask of anyone. If you think if it as pounds per hour terms

@mmckay3 2 месяца назад

@@kylesheehan7217 5k a year is not much to live off if you are severely disabled and not able to work. Nobody wants to go from a 50k a year plus job to then being able not to work. He has paid his fair share into the system through working like myself and is on the contribution ESA which means it is paid because he worked for a number of years before coming disabled. It is costing the taxpayer extra money for him to be assessed every 2 years when the disability can only be stabilised through medication which means it won't get better or go away but can remain stable or get worse slower than it would without medication.

@ganishnutinishnu7370 Месяц назад

@kylesheehan7217 He's on a lot more than 5k a year on this benefit, yet he uploads all the time and never seems to be in pain. Confused as to why he gets the top allowance.

@kylesheehan7217 Месяц назад

@@ganishnutinishnu7370 There's just no pleasing some people, I've never been entitled to a single thing and worked my arse off for everything. Money must be earned, one way or another.