Тёмный

Post-Exertional Malaise (PEM) Is Only Indirectly Caused By Exercise! - MECFS 

Release CFS
Подписаться 2,9 тыс.
Просмотров 1,2 тыс.
50% 1

Опубликовано:

 

16 окт 2024

Поделиться:

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист
Посмотреть позже
Комментарии : 90   
@releasecfs
@releasecfs 2 месяца назад
I am glad this is a thought provocative video. I am so over all these ancient beliefs that have imprisoned the ME CFS healing community over the past decades. A protocol with a success rate less than 5% is in my opinion not worth trying. When I started being a health coach, i even repeated many of these theories. That was a big mistake. Sometimes someone healed with it. But what should I do with the 95% of clients who are not helped? Ignoring them? Victim blaming? It's time to help everyone!
@relaxationstation2928
@relaxationstation2928 2 месяца назад
What would you say the success rate of your program is?
@releasecfs
@releasecfs 2 месяца назад
@@relaxationstation2928 Hi, everyone will experience at least one release of symptoms and stressors during the process (1 year). This is the very minimum. For some people, their trauma makes it a bit harder to connect with their stressors. Most people experience a release during the modules and know after 3 to 6 months all the tools. After a few successful releases, they will know what to do when the symptoms come back. And then it becomes a way of living. They can continue their lives and implement a release when needed. A few people have only 1 or 2 layers of stress in their body. Others have thousands, it's not fair to compare them. Just keep on going. After enough releases, the symptoms won't return anymore.
@relaxationstation2928
@relaxationstation2928 2 месяца назад
@@releasecfs When you say "stressors" in this context, what can be some examples of that? Is it both internal and external stressors?
@releasecfs
@releasecfs 2 месяца назад
@@relaxationstation2928 it's always internal and different in any situation.
@relaxationstation2928
@relaxationstation2928 2 месяца назад
@@releasecfs Okay, but can you give some examples? Is it thoughts usually?
@avlwnc13
@avlwnc13 2 месяца назад
Thanks for this great way to reframe the concept of PEM. You've made it easier for me to let go of this fear-inducing concept that has been fed to me by the ME/CFS 'experts' who don't offer any viable solution to the problem they've 'invented.'
@releasecfs
@releasecfs 2 месяца назад
@@avlwnc13 thank you Valerie 🤗
@leahcalabro2787
@leahcalabro2787 2 месяца назад
Totally agree with you Daniel. In my case, I believe PEM is triggered by a lack of safety and confidence in my body (in other words FEAR) because for so long I thought the problem was my body. I am still triggered when I go for walks and take it easy afterwards as part of it is due to *deconditioning, so some fatigue is normal. At the same time I am building confidence by walking daily.
@releasecfs
@releasecfs 2 месяца назад
@@leahcalabro2787 those are great insights Leah. I hope you will keep improving!
@leahcalabro2787
@leahcalabro2787 2 месяца назад
@@releasecfs 🧡🧡🧡
@timm.8729
@timm.8729 2 месяца назад
Your videos are always like diamonds in the treasure chest of my recovery journey. Thank you! ❤
@releasecfs
@releasecfs 2 месяца назад
thank you Timm 🤗
@SunnyLilac09
@SunnyLilac09 Месяц назад
That’s so true! But I needed a loooot of introspection to see this. Like at the beginning I truly thought I was calm with symptoms out of nowhere, when now I know that every nerve of my body was tense. It needs so much thinking and feeling every single day. But it is worth it ❤
@christina-bp6vd
@christina-bp6vd 2 месяца назад
Thank you Daniel, this is so exciting! I will watch this many times to keep on track. I feel how central this is, and how hidden for a lot of us at the same time. I am just about to discover these mechanisms on my own after doing a lot of nervous system work and base line training, which got me out of bed so far. Now I am starting to realise that all things I do seem to be connected to deep rooted people pleasing, always trying to exceed perceived expectations in order to not loose contact to others. This keeps me going and provides security, but this is also the constant trigger for "PEM". My body wants to get rid of this behavior, it doesn't serve me anymore. It's so interesting though, how deep these mechanisms are wired into our systems, it is really hard to get there, recognise them and release them.... But so worth the effort. We can do this!
@releasecfs
@releasecfs 2 месяца назад
@@christina-bp6vd thank you Christina. It's great that you have this insight already. Enjoy the healing process 🤗🫂
@TimoSchiemann
@TimoSchiemann 2 месяца назад
Thank you for sharing your wonderful thoughts Daniel 🙏🙏
@kimspirit6510
@kimspirit6510 2 месяца назад
this is interesting. after I had a very bad experience with a healer (trying to do too much healings in short period of time and obviously probably a lot of resistance unconsciously on my side) I went into a very bad place physically and mentally. After that I came back to base within short time because of help of a naturopath, but from there even going with the bus of the tube for about half an hour would trigger a lot of anxiety and after that pem. Then my father died 1,5 month ago and I was forced to travel (to England), I have since been there again. I did take some medication with me and I must say I had dissociation come up and a lot of tension in the body, making my body not sleep well, but I did survive. Even coming home having to travel 9 hours this weekend I made through. It took me 3 nights to get back to my baseline again, but that is not too much. I must say I am in the 'good period' of my menstrual cycle which helps too. Then I did some gardening this afternoon for just an hour, and right after it had PEM for about 2 hours. So annoying. During the whole stressful events I did do some affirmation and release work, but I guess it was not enough to feel fully relaxed. Then again, I am very proud of myself that I was able to confront the fear again of traveling and at least consciously trying to not be as afraid of it and giving my body signals all the time of safety and relaxation. But I am not there yet :-( .
@releasecfs
@releasecfs 2 месяца назад
Don't worry, step by step. It seems the healer touched the stressor but went too fast. Prepare your brain slowly by exposing yourself to it. My condolences, that's a very difficult event. Big hug, Daniel
@kimspirit6510
@kimspirit6510 2 месяца назад
@@Awaken_Together I’m so sorry to hear that. If it gives you some kind of hope, in february I also had to go to mental crisis service, I will never want to go through that again. But you can turn it into something positive, like even though it is not something you want to go through again you did get through which makes your range wider. Plus it gives you an idea of which inner child is underneath it, what was she trying to scream at you? What needs healing ❤️‍🩹
@djVania08
@djVania08 2 месяца назад
I think it might also very vague for many people. What do you mean by 'stressor' and 'release'? How do you work with something that is unconscious and you don't have therefore access to? I'm just stating potential questions that make people hesitate. I do believe what you're saying might be true but indeed, took many years to understand that and include my experience into the understanding. What is still making me question all of this is the lack of personal progress even though I'm "doing the work".
@releasecfs
@releasecfs 2 месяца назад
Hi, a stressor is anything that you are resisting from yourself. This can be a belief, a thought, or an emotion for example. A trigger can bring this up. Like in this video I made the example of a breakup. This can trigger fear for example. I don't know what type of work you're doing. Have you experienced how to turn your symptoms on or off?
@kimspirit6510
@kimspirit6510 2 месяца назад
What if you get PEM after releasing emotions? Is there a fear of winding down and relaxing then?
@releasecfs
@releasecfs 2 месяца назад
@@kimspirit6510 then you did not have a full release. We teach how to do this and prepare a long time for it. Otherwise you get all these partial releases with more symptoms.
@kimspirit6510
@kimspirit6510 2 месяца назад
@@releasecfs ik heb de release pots van je insta gedaan dat hielp enorm vooral het stukje give the protector mechanism what it needs (was bij mij liefde en aanwezigheid, blijkbaar zat er toch nog steeds gevoel van alleen gelaten worden, ondanks dat ik dit gevoel helemaal er had laten zijn tijdens mijn sessie met therapeut maar blijkbaar triggert het dus weer bij weg gaan). Ben ah sparen voor je programma :-) is niet makkelijk als je in de bijstand zit en ergens hoop ik toch ook wel dat mijn therapie daarin die tools gaat hebben.
@releasecfs
@releasecfs 2 месяца назад
@@kimspirit6510 hi Kim, Ja dat begrijp ik. Therapie kan heel fijn zijn, maar je moet het wel zelf leiden en zeggen wat je nodig hebt. Het belangrijkste is dat je de emotie zoekt die op dit moment de symptomen veroorzaakt. Andere emoties zijn niet belangrijk. Praten is ook niet zo heel belangrijk, want dan voel je niet. Doe ook voldoende voorbereidende oefeningen zoals schrijven en bewegende expressie. Dikke knuffel
@justbecauseican1410
@justbecauseican1410 2 месяца назад
I read a story from Freud. That one of his patients was bound in a weelchair. She was sad because she could not take care of her ill father. And there was no 'real' cause that made her like this. So freud was examining her. And then times goes by and her father dies and soon after she made a slow recovery back to health. Now her being in weelchair was real. She would fall flat on her face when trying to let her walk. So freud researched her and was convinced that she was a yoing girl wanted to be free but unconcious she didnt want to take care of her father becaused that meant she wouldnt be free to discover the world. And so slowly she begon showing symptoms of ilness .
@justbecauseican1410
@justbecauseican1410 2 месяца назад
My PEM does not make sense. There are periods were I can do a lot like normal people and dont ger any symptoms and then periods were i can barely walk to my kitchen.
@FrunkeHandalisat
@FrunkeHandalisat 2 месяца назад
@@justbecauseican1410 It’s fear. Try to calm yourself and know that you’re alright, even if it doesn’t feel like it. Months ago I almost couldn’t go outside because I was so scared, but now I’m working again and living. I realized it was in my head, it was fear. I still have symptoms but now I know they don’t damage me. I’m actually okay. I can let the emotions and symptoms be there, it’s alright. Just don’t overdo it. Step by step.
@Truerealism747
@Truerealism747 2 месяца назад
Subconscious mind Joseph Murphy Carl Jung to
@bloom4096
@bloom4096 2 месяца назад
Thank you for this very helpful take! It gives me hope to try exercise again (with a journaling session afterwards). ✨
@releasecfs
@releasecfs 2 месяца назад
Great, yes and maybe try to get a release. But don't go too much out of the comfort zone immediately. Slowly build yourself up again.
@rayleo8333
@rayleo8333 2 дня назад
Is this true even if PEM is delayed by 24-72 hours? I don't hear anything about the delayed onset in any of these mindbody modalities.
@releasecfs
@releasecfs 2 дня назад
The more conscious the stressor is, the faster the PEM starts. It's a win when this starts faster.
@rayleo8333
@rayleo8333 2 дня назад
@@releasecfs So you've worked with people who've had 2-3 day delayed reactions? That's really all I'm asking
@releasecfs
@releasecfs 2 дня назад
@@rayleo8333 yes and I tried to decrease the time first. And after that we can work on a release.
@me-cfs-strategiesforhealing
@me-cfs-strategiesforhealing 2 месяца назад
ME/CFS involves low blood volume, autoantibodies limiting blood perfusion into the muscles, microclots doing the same, all of which lower the anaerobic threshold, triggering PEM when someone does too much. The ANS dysfunction is one part of many reasons for the PEM, not the only one.
@releasecfs
@releasecfs 2 месяца назад
@@me-cfs-strategiesforhealing yes that is the common theory and our work started with questioning that. Right now many hundreds of clients have experienced a much easier and more practical approach.
@me-cfs-strategiesforhealing
@me-cfs-strategiesforhealing 2 месяца назад
@@releasecfs Hi Daniel, The low blood volume has been proven. Visser and Van Campen found housebound ME/CFS patients had one litre less blood than normal. See their paper: 'Low Blood Volume in Chronic Fatigue Syndrome: Relation to Complaints (2018).' And the low blood volume contributes to the nervous system dysregulation as the brain freaks out when it doesn't get enough oxygen.
@releasecfs
@releasecfs 2 месяца назад
@me-cfs-strategiesforhealing yes of course. There is a reason why the body is doing that. When we work on the root stressor, the body goes back to normal again. This means that within 20 minutes we can reverse this.
@me-cfs-strategiesforhealing
@me-cfs-strategiesforhealing 2 месяца назад
@@releasecfs I don't think the body can re-create a litre of blood in twenty minutes but we'll just have to agree to disagree on that one.
@releasecfs
@releasecfs 2 месяца назад
@@me-cfs-strategiesforhealing I'd like to make you experience it.
@lc20735
@lc20735 2 месяца назад
Another comment, I seem to be triggering PEM by doing nothing lately! I had a really calm week, just hanging out in the house and yard feeling chilled, even sleeping through the night sometimes which I'd been waiting to happen for years! Then boom, the next week I'm waking up feeling anxious at 3am and feeling super tired and moody during the day again. I can't identify a stressor in the past 2 weeks.
@releasecfs
@releasecfs 2 месяца назад
@@lc20735 thats great, although it probably doesn't feel this way. The stressor is always inside of you. You find it by looking within or via our release program. In your situation there is no external trigger. Peace and calmness tends to bring up the stressor automatically. That's a very good thing, it wants to leave your body. There is unfortunately only a tiny bit of resistance left. Good luck with processing this stressor. If you need any help, we are probably able to help. Big hug, Daniel
@lc20735
@lc20735 2 месяца назад
​@releasecfs thanks Daniel, that's helpful! ❤ And thank you for the great work you do.
@avlwnc13
@avlwnc13 2 месяца назад
Michael Singer says that all emotions are simply energy which we can release by industrial strength relaxing. We don't need to name the emotion (stressor/trigger). We just need to let it go and release it. There are techniques such as meditation and EFT that can help us relax and release, but mostly we just need to breathe deeply and focus on the breath. I'm finding that it's helping me a lot. When we try to identify or name it, we're just getting the brain involved. We need to get out of our heads and let our heart/emotion run the show. It's not easy for me to do cuz I used to be a university professor and I had put high value on thinking, identifying and analyzing. Now I see that being in my head is the last place I need to be. I need to live in my heart and spirit, not in my head.
@highspeedcruise1496
@highspeedcruise1496 2 месяца назад
That is really interesting! I mostly get crashes when trying to increase physical activity or after 3 to 4 days of PEM. That means you got feedback that clients have been able to increase physical activity after releasing such a stressor and also in general were able to heal using your system?
@releasecfs
@releasecfs 2 месяца назад
@@highspeedcruise1496 healing is a path with ups and downs. An immediate dissipation is great, but the more important part is that you can let go of the underlying stressor. The same stressor is often also driving unconscious negative behavior. There won't be any need for this after a release any more. People just feel better and can go on with their lives. It doesn't mean that symptoms will never come back. In those moments, you just need another release. Hundreds of people have already experienced a release and an immediate improvement of symptoms. It's pretty effective. Thanks 👍🙏
@twillsJKZ
@twillsJKZ 2 месяца назад
It’s a very weird condition. It’s not in your head but it kinda is, but in your body too. No wonder it’s so difficult to treat
@releasecfs
@releasecfs 2 месяца назад
@@twillsJKZ what if we can make it simple?
@avlwnc13
@avlwnc13 2 месяца назад
IMHO, this is what mind/body medicine is all about. But I like to call it mind/body/spirit medicine. More holistic than allopathic medicine.
@l.s9148
@l.s9148 2 месяца назад
Hey Daniel just a quick Video Idea: Could you maybe make a video on masculinity and feminity. I sometimes ask myself where the balance comes in, in all of the practices, since everything seems to be very much on the feminine side (which is probably needed for healing). I can imagine other men would be interested as well.
@releasecfs
@releasecfs 2 месяца назад
@@l.s9148 I have made a podcast about this. It's called something like Yin and Yang healing. But the topic is not very popular. Most people just want to feel better and that's it.
@l.s9148
@l.s9148 2 месяца назад
@@releasecfs thank you ! Then it’s an individual thing for me ?
@releasecfs
@releasecfs 2 месяца назад
Yes haha I think so
@l.s9148
@l.s9148 2 месяца назад
@@releasecfs I watched the video and I liked it very much. Answers some questions but also brought some new ones haha. Have a good day daniel !
@DottieBengo
@DottieBengo 2 месяца назад
Does it matter what the stressors are? Or if it's unconscious? Do we need to know?
@releasecfs
@releasecfs 2 месяца назад
@@DottieBengo better to feel them. Once you feel them, they are no longer there.
@hillsofwi
@hillsofwi 2 месяца назад
I believe my primary stressor was mold exposure. How do I connect with that and process it? Thank you for what you do.
@justbecauseican1410
@justbecauseican1410 2 месяца назад
Yes i wonder this too. I also got sick by mold exposure
@avlwnc13
@avlwnc13 2 месяца назад
Mold exposure was one of my triggers. Now I tell myself that my body's capacity to heal itself is much stronger than any ole stupid mold. I'm not going to let a little thing like mold keep me sick any longer!
@justbecauseican1410
@justbecauseican1410 2 месяца назад
Yes but the question is do you need to move in order to heal
@releasecfs
@releasecfs 2 месяца назад
Mold can cause certain symptoms. But the typical CFS symptoms are not caused by it. In that case, it works like a toxin. Toxins such as vaccines, can make the body let go of old stress. That means that mold was the trigger. Of course, it is not helpful to sleep in a room full of mold, but the symptoms will be different.
@vhink311
@vhink311 2 месяца назад
How do you process the emotions to release them?
@releasecfs
@releasecfs 2 месяца назад
@@vhink311 you'll learn all the tools with the Release program.
@lc20735
@lc20735 2 месяца назад
Pacing is still important to a degree right? Like you shouldn't do exercise if you don't physically feel like it? Someone with moderate CFS shouldn't just start going for 15 minute walks every day for example?!
@releasecfs
@releasecfs 2 месяца назад
@@lc20735 we should make the transition from mind based pacing to body paced pacing. This process is the start of the release program.
@FrunkeHandalisat
@FrunkeHandalisat 2 месяца назад
Yes I agree but then after many activities you need time for yourself to process the emotions etc right? Thats what I noticed. When I do activities all day then I’m so tired I can’t even think, I just fall asleep and the next day symptoms are exactly the same if not worse. But when I take let’s say 2-3 hours in silence for myself and just feeling, then I’m alright.
@releasecfs
@releasecfs 2 месяца назад
Exactly, and with the program you will learn to bring those 2 to 3 hours back to 20 minutes.
@faenjeggiropp
@faenjeggiropp 2 месяца назад
Strength training with CFS/ME is different, and creates different symptoms than regular activity PEM. I can easily hit 10k steps, but 10 minutes of strength training can trigger a whole week of intense DOMS. It's the blockage of aerobic ATP production. High dose B1 supplementation can alleviate those symptoms. PEM also has a big pgysical component.
@releasecfs
@releasecfs 2 месяца назад
It's the very same principle. Don't get caught in micro Management and dive into the root stressor instead.
@faenjeggiropp
@faenjeggiropp 2 месяца назад
@@releasecfs No, completely different mechanism and reaction.
@releasecfs
@releasecfs 2 месяца назад
@@faenjeggiropp okay
@PsychicAlchemist
@PsychicAlchemist 2 месяца назад
Actually I don't agree, I've also heard that high intensity training has a good synergy for releasing stressors. Such is strength training, also in my own experience I've enjoyed it. But it's important to enjoy it while you do so.
@faenjeggiropp
@faenjeggiropp 2 месяца назад
@@PsychicAlchemist Sure, good for releasing stressors. Bad for DOMS and lactate buildup. CFS/ME is not just 100% psychological. There's a physical component here also. The inability to produce ATP from aerobic excertion can be a hinderance. Walking 10k steps is very different from 20 mins weight lifting.
Далее
Muscle Abnormalities Worsen in Post Exertional Malaise
52:36
When Exercise Causes Harm
3:28
Просмотров 7 тыс.
De-sexualizing My Brain Changed My Life
20:03
Просмотров 1,2 млн
Why PEM Matters
6:28
Просмотров 3,7 тыс.