Prednisone Side Effects - My Transplant Lifestyle 

Double lung transplant here. As of today my transplant happened 1 week short of 6 weeks ago. I left the hospital at 137 lbs. I literally had no fat or muscle left. Today I am 175lbs. But....gaining. I am going to make a serious effort to watch what I eat and how much I eat. Prednisone will be part of my life forever. (I'm not happy about that either). I think I am experiencing virtually every bad side effect you can get taking it. I feel like I'm in a fog almost all the time. Although I am working out to rebuild my muscles and have succeeded for the most part, my thigh muscles just don't want to work. Making it hard for me to get up from a sitting position to standing. I am retaining water in my legs and feet and my right calf is completely numb. I also experience light-headedness and dizziness on occasion. I had a minor A1 rejection at about 3 months and they upped my prednisone to 25 Mg's twice a day. That really messed me up. It did stop the rejection but, I became a madman with my moods and my wife wanted to shoot me...😜 I also experienced craziness in my eyes. I wear glasses and would get so fuzzy I couldn't see. I'd take off my glasses and see 20/20. Then they would get fuzzy again and I'd have to put my glasses back on.They have since backed me down to 10 Mg's twice a day but I'm hoping to go even lower in dose. I could go on for a long time explaining all the things that prednisone is doing to me...but it's made me so tired I need to get to bed...lol I take about 20 pills every morning and 17 every night..That will be for the rest of my life. I'm sure something else I'm taking is contributing to this discomfort as well. It's better than being dead...But, it's not fun feeling this way all the time. I've been told that when you can get to 5MG or less per day, most of the bad side effects go away. I hope to find out soon on that.... I wish you continued health and happiness...Your video was uplifting and makes me hopeful. 👍

I will soon be 68 and have always been a slim person and have been on Prednisone for 6 1/2 years post kidney transplant. Before my transplant, I weighed around 155 lbs and my belly was < 38 inches. Today, because of this drug, I now weigh >180 lbs and a circumference of between 44 and 45 inches around my belly. I really do wish I could get off this drug. Losing weight is most difficult.

I will be 11 years post transplant in March. You said it right - it's a love/hate thing.

Kidney transplant recipient here. I advise anyone taking prednisone to take it in the morning (if possible). Your insomnia will get better!

I was prescribed prednisone due to a sinus infection and strep throat. I’ve had some changes like diarrhea, my heart flutters and beat fast, my I appetite has increased and my sleep pattern wasn’t the greatest and it has gotten worse. Also I’m always exhausted, thank God I finished the prescription.

Well is insomnia a bad thing or a good thing. I guess it's all about perspective. I take dexamethasone (4mg a day) and it fights my fatigue like nothing in this world. It keeps me up and energized longer I can stay up until 12 pm and get up and still feel good and not extremely exhausted as with the fatigue. So, in my case, it's a blessing. Unless of course it's kicking your butt and you feel drained, exhausted or not very refreshed. Yeah that's a prob. But it has not done that in my case. Been taking it for about a month now. Doc did switch me over to prednisone. I hope to god it fights my fatigue the same. I'm dead without it! Good video and thanks for sharing! I have one question that I can't seem to get a solid answer. I believe you have to take it for the rest of your life for the kidney transplant. I was told that steroids will damage the liver and kidney and therefore I can not take it long term. Is this true or B.S.. I have an autoimmune disease and I know of people who have to take prednisone for life. But they seem okay. So I am a little confused. Anyone have a straight answer? I know dosage and long term use plays some role in the outcome. But if I were on a low dose long term. Consequences? Safe? Things to combat the risk? Thanks!

I HHHAAATTTEEE this script!!! I don't want to spend the rest of my life worrying about my bones breaking while I'm trying to live out the rest of the barrowed time I have left. I'm a year and a half post kidney transplant and I made it here without becoming diabetic. I was on the machine for 16 and a half years. After transplant, I don't like the mood swings that I mostly keep to myself and the constant hunger. How can we curb that?! Now I'm also dealing with my foot being broken and taking forever to heal.

When I got my transplant I was 90lbs, now I’m 140 lbs. I’ve had my transplant for 13 years.

I'm taking itFor skin rash

Mine is anxiety jittery i hate it :(

Be careful because prednisone is not good. I have history of pan colitis and i was on prednisone long term 2005-2018. I now deal with lots of hip back pain, leg pain. Also bruising of skin and i can barely walk sometimes. Doctor's won't tell you. It doesn't matter how much you take. Avascular necrosis Hip joint pain Arthritis spine Nervous system Psoriasis severe Weigh gain Adrenal insufficiency Hair loss Face burn Moon face

Thank you so much for this video. I was recently diagnosed with IGAN as well. Did you got IGAN after your transplant?

My face looks like a full circule i've taken prendisone for almost two months since my transplant

Hi, I’ve been on it this for 3 weeks. I’m always hungry and thirsty. I lost 8 lbs while in the hospital the first weight. Then afterwards, starting to gain like crazy.

Yes am always hungry

Try a bag prednisone IV therapy or taking 80 mg. days for 5 days and then tell me all about it. HA I am waiting

Hi did you lose your weight automatically after prednisone? Or did u have to go on a diet and workout to lose weight

..hi I'm a transplant patients for almost 6yrs & the side effects are the same...tnx Godbless ..

Hi!I am on day two,because I got a contact rash,my stomach feels bruse,and my head spin sometimes.

Thank you

Yes i m in insomnia condition i m 8 mnths post transplnt.

Yeah but my doctor prescribed it for me just to because I have a skin flare it up and that's all I got to do is take you until it goes away it's only the side effects will last for a little while or is it a permanent kind of thing

What's the best to time to take prednisone morning or evening.. 5 mg

What is moon face????? They just stated me as of today on Mestinon