Hi, my name is Monique Juarez and I am 29 years old. On February 5, 2018 I was diagnosed with IGA Nephropathy, Acute Renal Failure, Hypertension, told I would need to start dialysis, as well as I would be needing a Kidney transplant. On February 6, 2018 I received a chest catheter and was placed on Hemodialysis, 3 times a week. Going from a normal 29 year old life to being on Hemodialysis, was a hard transition for me. The no longer feeling like myself and the restrictions that it came with was not for me. I made the decision to switch my treatment to PD Dialysis and on March 21, 2018 I went into surgery to have a PD catheter placed into my lower stomach. . On April 13, 2018, I was permanently placed on PD dialysis. I began the transplant process on April 23, 2018, when I had my first consultation with UCLA to see if I could be a candidate for their transplant program. As of right now, I’m currently waiting for my last test to come back to see if UCLA will place me on the donor list.
This hospital is where I was dialyzed & got my first kidney transplant during my childhood years. They were great! I'll never forget them. I am now 35 and going to be 36 with my 2nd kidney transplant because my first one was rejected after a while. California Medical Center in San Francisco did my second transplant they were great too! Thank you, God, for Doctors 🙏❤.
I’m 15 and I’ve got kidney transplant and I got an ugly moon face. Sometimes I feel like I don’t deserve this. I’m too young . I wanna live like normal teenagers…..
I know it's tough, I'm 30 and haven't had the bad weight gain yet, but the hunger is there for sure. I've been doing the 3 well portioned meals with a snack in between meals and that has helped me manage well so far. I'm two weeks post transplant. Keep your head up and take care of yourself.
Well is insomnia a bad thing or a good thing. I guess it's all about perspective. I take dexamethasone (4mg a day) and it fights my fatigue like nothing in this world. It keeps me up and energized longer I can stay up until 12 pm and get up and still feel good and not extremely exhausted as with the fatigue. So, in my case, it's a blessing. Unless of course it's kicking your butt and you feel drained, exhausted or not very refreshed. Yeah that's a prob. But it has not done that in my case. Been taking it for about a month now. Doc did switch me over to prednisone. I hope to god it fights my fatigue the same. I'm dead without it! Good video and thanks for sharing! I have one question that I can't seem to get a solid answer. I believe you have to take it for the rest of your life for the kidney transplant. I was told that steroids will damage the liver and kidney and therefore I can not take it long term. Is this true or B.S.. I have an autoimmune disease and I know of people who have to take prednisone for life. But they seem okay. So I am a little confused. Anyone have a straight answer? I know dosage and long term use plays some role in the outcome. But if I were on a low dose long term. Consequences? Safe? Things to combat the risk? Thanks!
Fortunately, or unfortunately as the case may be, I had a cystoscopy ( male) twenty years before I had a stent placed. I did t even know I was getting a stent and didn’t find out until two days after a planned surgery. Anyway, knowing what I did about the excruciating, to me, experience in the past I had to find a urologist who would removed it under general anesthesia
I’m in the transplant list now and have been on there going on 6 years. I’m a little scared to get a kidney but I definitely want one. How long after getting your new kidney did u start peeing? Was it a weird feeling? Are u limited on thing you can drink or eat still? How long have u had your kidney? Did u name your kidney? I’ve picked out a name for my future kidney, it’s Tyrone 😂
I named mine Miracle 🥰. They said it was going to take 7 years because of my blood type but it took only 4 years 🙏 & that is why I named mine MIRACLE 🥰. Having a kidney transplant will be a life-changing experience for the better. When you get yours stay on top of your Drs appointments, stay hydrated, most importantly take your medication, and then lastly exercise. No heavy lifting. God bless you during this journey. He knows you, he’s got you ❤️.
Be aware of the antinutrients on the plant foods. Solanines are in Potatoes, Sulforaphane in Cruciferous. The list goes on and on. Sulforaphane is called an antioxidant, no it is not, not for humans. Its Oxadative forcing the body to defend itself so the body upregulates its own antioxdant production such as Glutathione! Sulphoraphane compound is claimed as anti-cancerous. Not it is not, it its however used to destroy Cells, it does not target cancer cells, it destroys All Cells. Thats why its effective.
ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-Y0e-6vZ7u9s.htmlsi=jzr5znw4N93vyosk Which bloods does your renal specialist check? Is PTH checked? Also pure Taurine 1g at night is a good start. It has reactions with coffee so lighten up ob that and only drink during the morning if youre not a fast clearer of caffeine. Blood pressure meds might need lowering too because Taurine rqualise blood pressure by itself through osmosis. Another product to check out is Cerule Ultra StemEnhance promoted by Professor Bart Kay. This releases endogenous bone marrow daughter stem cells from your own bone marrow. Most important part is bioavailable nutrition because everything that needs maintanace IS fat or proteins. Something people have difficulty accepting when the medical doctrine is anti this. Biotin being protein. Collagen being protein and forming structure to bone.
Thank you so much you made me cry I'm 14 and I've been doing dialysis for 2 years now and I'm on the transplant list waiting so thank you so much for your help ❤❤❤(here's a little update I got my transplant it's going on 3 weeks and I've been doing great with everything)Feb,29,24
So inspiring. I had my kidney transplant 5 days ago from my sister (who donated stem cells for a bone marrow transplant 6 years ago) So far, so good. I will be discharged tomorrow and looking forward to LIFE. Don't ever give up!!!!!
Hello dear first of all so much courage to you and your family 😢 it's a long story and a tremendous transition of life, but then also with will power strong people can achieve greatness in life at any situation.😇 I'm from India and my sister is suffering from ESKD and we have to plan a kidney transplant for her. I know she'll be in pain at such a young age, i.e. 17 and I just hope for her for a speedy recovery after that and a peaceful and happy life. She is so brave like you. I just hope she'll be fine one day. I love her so much.😢😔🫂🥺💜💙 Btw loved your video🥲🙂💛
I loved your kidney transplant journey. It made me cry. I haven’t got my kidney transplant yet. But I know Gods got this!! You are very blessed to have your mum give you her kidney. I will be praying for you and your family. Ty for posting
I HHHAAATTTEEE this script!!! I don't want to spend the rest of my life worrying about my bones breaking while I'm trying to live out the rest of the barrowed time I have left. I'm a year and a half post kidney transplant and I made it here without becoming diabetic. I was on the machine for 16 and a half years. After transplant, I don't like the mood swings that I mostly keep to myself and the constant hunger. How can we curb that?! Now I'm also dealing with my foot being broken and taking forever to heal.
I got my transplant at UCLA 2020 almost 2 years now and counting.I’m happy to have my life back please you all on dialysis don’t give up I waited 3 and half.While on dialysis I was still workin I do my PD at home.With the most caring staff specially my nephrologist and RNs .
I donated on 7/12. Very painful but one month later I’m feeling 80% better. Those first steps are the hardest. It gets easier each hour, each day and each week as a donor.
My fiance will have a kidney transplant this year 2023. Our good friend decided to be a donor. God bless him and thank your mom always she saved your life. God bless both of you.
Thank you for a wonderful video. I have been on hemodialysis for eight months and it is the most depressing thing I’ve ever experienced. I have been researching PD and your video has reassured me that my decision to go with PD is the right choice for me. Again, thank you and God bless.
That's awesome that your mom gave you the gift of life. I hope and pray that you and your family are doing well. I have been on dialysis since 2019 and it's brutal waiting for a deceased donor match is exhausting but I keep trying to think Positive but again thanks for your story it was very inspiring
Be mindful of every detail. Including the type of catheter for peritoneal dialysis. I had no fistula !!!!! A PRESTERNAL Catheter. Not that thing in your tummy , it’s called a BATH CATH or PRESTERNAL CATH. I CANT TELL YOU ENOUGH how much better it is for PD. I hated hemo I never could handle it well. I got sick 🤢 everyday. I knew all my dialysis buddies. I never got depressed I was there to try to cheer people up. I pretended it was my job. But I went to PD and researched everything. That PRESTERNAL cath saved me !!!! I just tucked it in my bra. Not the tummy rubbing , or taping n pain. Please look into this. I now have had my daughters kidney 9 years. We’re both great. It was so long ago , except for the pills I forget ….weak stomach muscles. Being cut for transplant. But I wouldn’t trade that gift for anything. For your own good choose a non steroidal hospital. The steroids are not needed. !!!!!!! Mayo , Johns Hopkins and others are non steroidal. I did and have some major effects. Also since I went to PD I wouldn’t let anyone put a fistula in me. I’d of never used it. Remember check out PRESTERNAL cath y’all 💚💚💚💚💚
I am a patient and thank you for tell me that I am on hemodialysis and I was on PD dialysis but not anymore but I always love your opinions also Because I like to look them up
I had my transplant 50 years ago at the age of 14. I’m 64 now. And I’m starting my journey again because my dad, who was my donor, his kidney is 91 years old and has done all it can do for me. I had a normal life, had two healthy children and both wanted to donate but they were not compatible. We also had 8 people who wanted to donate but none were able to, so one of my children donated in the voucher program and hopefully in a few months I’ll get a match and this new one will carry me forever
@mdhasanurrahmanhasan13 Hi, Where in Bangladesh did you get your transplant done? Who was the surgeon? How did you find your donor? How old is the donor? Thank you and may you have a long healthy life.
I did the transplant at CKD and Urology Hospital in Dhaka, the capital of Bangladesh. My surgeon is Prof. Dr. Kamrul Islam, AFC PS London. Received Gold Medal and Ekushey Medal in Kidney Transplant. And he is the greatest doctor of Bangladesh. My father gave me a kidney. He is 64 years old. His kidneys are very good. My father does not have diabetes or high blood pressure. And I am 33 years old. I just have high pressure. No diabetes.
Am so glad that i came by this comment.. My son is 9 and seems like he will need a transplant and i was scared knowing that kids need ti do a second transplant.. Feels better to know that it can last long.. Wish you a long healthy life
