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Preparing a List of My MS Symptoms | Pre HSCT 

Anna vs.MS
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Here's the link to my MS and HSCT related Blog
- annatipulipusu98.wixsite.com/a... -

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25 июл 2024

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Комментарии : 36   
@drn7481
@drn7481 Год назад
I hope you got good results from the HSCT. Your video was helpful to me.
@karishort7561
@karishort7561 6 лет назад
I am so sensitive lately and it's driving me crazy 😵 certain sounds seem to scream throughout my entire body like nails on a chalkboard. I can't seem to think clearly well enough to write a list and yours jogged my memory, too. Thank you. God bless ❤🙏❤
@AnnavsMS
@AnnavsMS 6 лет назад
Thank you so much for sharing your experience with the very annoying hypersensitivity and for the lovely feedback! I am sorry to hear that you too have had hard time coping with such symptoms likely caused by hyperactive nerve responses and inflammation :( Are you perhaps having Hsct in the future to treat ms?
@rachabeff3212
@rachabeff3212 4 года назад
Mostly the same issues. I even started spelling things wrong. Shallow breathing. Fainting. Loss of hearing vision balance. My flare ups are awful. I get headaches. Fall. Weak. Hot flashes. Sensitive. Tired. Painful body. Numbness. Wobbly eyes. Confusion. Facial weakness and twitching. Muscle spasms. Seizure like activity. Weak bladder. Poos. Squeezing in my ribcage. Much more. Some times it's only some issues sometimes it's all of those plus some. Sometimes it completely new things. I'm not diagnosed. Probably never will be
@angelasharp6869
@angelasharp6869 7 лет назад
I hope your ultimate wish comes true x
@AnnavsMS
@AnnavsMS 7 лет назад
Thank you very much April Sunn! :)
@lorraineophoff4984
@lorraineophoff4984 2 года назад
Thank you for sharing. Helpful!
@missbee980
@missbee980 Год назад
Oversensitivity to touch is a hyperesthesia called allodynia. Thank you for sharing your story.
@dano7019
@dano7019 2 года назад
Thank you for your testimony
@aashild1986
@aashild1986 6 лет назад
Very helpful video. Thank you☺
@AnnavsMS
@AnnavsMS 6 лет назад
Thank you very much for your lovely comment! I am pleased that you found the video helpful! :)
@dimsumlite
@dimsumlite 6 лет назад
praying for you, I am going through the same thing
@AnnavsMS
@AnnavsMS 6 лет назад
Thank you so much! I had HSCT successfully and now life is as good as it can get with MS. May I ask if you already had HSCT or are you still waiting treatment?
@dimsumlite
@dimsumlite 6 лет назад
No I have not can I talk PM you about more info about HSCT?
@AnnavsMS
@AnnavsMS 6 лет назад
My email address is annatipulipusu98@gmail.com
@steffanyhenderson7964
@steffanyhenderson7964 4 года назад
Hope you get your wish! 😊💕
@AnnavsMS
@AnnavsMS 4 года назад
Thank you so much for your support!
@AubernsRevolution
@AubernsRevolution 3 года назад
Your symptoms are very close to all mine. I have not been diagnosed with it. I'm very frustrated. My neck MRI shows spinal stenosis. Nothing on the brain scan.
@hellomynameis5520
@hellomynameis5520 Год назад
Did you get diagnosed with MS?
@AubernsRevolution
@AubernsRevolution Год назад
@@hellomynameis5520 no. Disautonomia from trauma. Very similar. It attacks the autonomic nervous system. Sad finding out it is because of those things I thought I buried.
@hellomynameis5520
@hellomynameis5520 Год назад
@@AubernsRevolution sorry to hear. What are your current symptoms?
@AubernsRevolution
@AubernsRevolution Год назад
@@hellomynameis5520 there are many. Starting with migraines, fibromialgia chronic fatigue, chonic all over pain, lighheadedness, Dizziness, balance, hand tremors, visual disturbances, hypervigilence, muscle tightness pain, bladdee incontinence, stomach pain, difficulty slowing, irratic BP/pulse. Up and down. All systems are triggered with this disease. Subconscious emotional flashbacks. Your not aware of it. Difficult sleeping. Heart palpitations. Sternum pain. Light sensitivity. Memory losses, difficulty remembering words, names. It was a rheumatologist who led me to the answer. I was going for the "fibromialgia" He asked me 1 question. How happy was your childhood. It's been two years. I'm been working on healing. Grieving my trauma that I never did... etc. CPTSD is not easy to erase. Nor is the autonomic nervous system.
@elhameshala2874
@elhameshala2874 4 года назад
Good bless your
@jojohokutonoken2456
@jojohokutonoken2456 Год назад
I have MRI clear for MS, but I have the symptoms and I have bad liver and kidneys. My life cut short I hope I don't have it.
@hellomynameis5520
@hellomynameis5520 Год назад
Did you get diagnosed?
@jojohokutonoken2456
@jojohokutonoken2456 Год назад
@@hellomynameis5520 nothing and still feel damaged over a year i feel messed up
@adylenelopez8167
@adylenelopez8167 5 лет назад
Hi Anna I have a person that according to the doctor may have MS, I would like to share my story with you, and also ask you how are you doing now after the HSCT treatment ?
@AnnavsMS
@AnnavsMS 5 лет назад
You may contact me via Facebook facebook.com/anna.likos.96 if you'd like to! I am doing really well, feeling MS-free now 22 months post my HSCT :)
@elhameshala2462
@elhameshala2462 4 года назад
Hi good bless 🙏❤️
@tamathabollig8163
@tamathabollig8163 3 года назад
What medication are you on?
@LORICY1966
@LORICY1966 6 лет назад
Cant understand fing word u are saying....
@olevet75
@olevet75 5 лет назад
It's called English language..
@annam1905
@annam1905 5 лет назад
@@kalij2470 I cant understand her either
@rrtt4153
@rrtt4153 4 года назад
Auburn Tigazs your grammar is also quite problematic, so strange that you choose to criticise somebody’s english. in particular somebody sick, that needs support not pointless comments. you have the choice of not watching. i can understand her perfectly, her style is better than the style of many native english speakers, despite the accent
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