My MS Story - 17 Years Until a Diagnosis 

I was finally diagnosed after 30 years of being told it was fibromyalgia or laughed at even my husband of 35 years never supported the fibromyalgia. I’ve known now for a month and a half. I have not worked in thirteen years. Lost my self. Now I’m on the walls protocol for a month. I am 54. I feel like there’s no time left now to start over it has been crazy. I have no respect or care for doctors. Research on my own is still the only way to help myself. Thank you for making this. I denied the drugs from the neurologist. Going for the diet 👍

Thank you for this. I was recently diagnosed but have had symptoms for a long time. It's something no one understands and I get so uncomfortable talking about it because of that. People's responses are....really annoying. Being able to come here and hear other people that know exactly what I'm feeling is so relieving. Bless you in your journey and thank you again.

I’m so glad I came across your story. I have so many similarities to this. Initially, my diagnosis was hard to accept. Now. I’m in a phase where I’m just so thankful to finally know what’s wrong with me. I now know that I’m not crazy, but there is a reason why my body has been wacky for the past five years.

The physical symptoms are tough but the mental fog and depression is doing me in.. Still waiting for diagnosis...had these problems for years but has progressed rapidly

We have very similar stories and I hate to say this , don't take it wrong , but it's good to know I'm not alone with the way I felt something was just not right , for years. My ms specialist is in Nebraska where I live and like you as soon as I saw her, she knew right away I had ms. I'm fortunate to have her on my side.

This speaks to me in so many ways. Thank you for your bravery to post this. I can't watch the whole thing yet because I am still processing the first couple minutes.

Thank you for this video. Best of health to you.

Thank you for posting your story, it really hit home for me. The "limbo" period is difficult as well as the Neurologists and Dr. that tell us we absolutely don't have it yet you know with all the symptoms that it very well could be. Thank you so much

Thank you for sharing your story! Your video is the first "My MS Story" I've ever watched and I found it helpful, inspiring, and informative. Fyi: I've never commented on anyone's RU-vid video before. That's how much I really appreciated this. Best of luck to you and I hope everything is still going well.

Thank you Spencer. I’ve been following your RU-vid videos. Great job! I’ve had MS for 21 years, just a little longer than you. I’ve done the same as far as taking the DMD’s. I don’t judge or downplay others as they do work for some. I follow a diet of fruits, veggies, fish and chicken. Low sugar and sodium. Lots of exercise, yoga, chiropractic care and daily meditation.

Thank you for sharing! What a crazy rollercoaster ride... I'm glad to hear that the healthy lifestyle is working for you. That really encourages me to stick to my dietary beliefs to stay well. Thank you for your positive attitude towards this riddling disease - it helps :)

You inspire people. And that means a lot. Thank you very much for these. Take care. You know best😄

Just want to first thank you so very much for this video. I am so glad I came across it. I am 39 years old and I am experiencing almost exactly the same as you have described in your video. Had odd symptoms for years off and on and dealing with severe migraines. Put things off as just weird or just symptoms from my migraines up until recently when things started getting much worse. I am now just in the process of all the testing with a neurologist. I have so many of the MS symptoms and I am praying it doesn't take so long as many to get diagnosed. You are very positive, informational and inspiring. Keep doing what your doing. This video has really given me hope and help in keeping my head up for the fight ahead of me. Thank you again.

Thank you for sharing. You start with the exact thoughts running through my mind.

Oh my goodness! 17 years!!! God bless you! I've had symptoms since 2009 and just was diagnosed with CIS, but I too feel it's full blown MS. Thank God you have an amazing attitude! Take care!

Wow brother I'm sorry to hear this happening to you. You look good and wouldn't have ever thought you had any issues the way you tackle you prison bus videos you are a go getter for sure. Stay strong my friend.

Thank you for sharing your story. A very good friend of mine hasn't been diagnosed with MS yet but she has the numbing, tingling, migraines, lethargic, she gets off balance, etc They previously spotted lesions on her brain years ago but she didn't ever go back to the doctor for further testing. (She didn't want to face her fears.) But due to her condition advancing, she is going to have a MRI tomorrow and get to a confirmed diagnosis. I am trying to learn as much about MS as I can to support her, should she be diagnosed with it. I believe that knowledge has power.

Thanks for sharing your story! I was diagnosed in 2018 but have had "known" symptoms since 2017. I'm on ocrevus infusions now.. but haven't had much success yet. I was on Gilenya for a year and it was horrific. Worst I've felt in my life. I also think about how it might be better off meds but im still trying for now. My older sister has had MS for 16 years and she was on a few drugs early on but hasn't been for a few years now.. and she prefers being off them. Honestly I'm really happy for you that all the spinal lesions you have havent affected your mobility. I deal with crazy..like crazy amounts of pain daily and a consistentlynumb left hand and arm from spinal and brain lesions. It just fascinates me how people have different experiences...but even if we experience it differeny we get it.. nice to know others get it.. its comforting. Im also vegetarian and lead an active lifestyle... so I'm interested in seeing your journey and your wellness plan.

Thanks so much for sharing this; it is so much more helpful that most people will ever realise. I was misdiagnosed with something else years ago but knew "something was up" as I never got better. Only just recently diagnosed correctly.

You are so brave and I wish you the best outcome possible!

Thank you for sharing your MS story with us. Wow, 17 years of symptoms before a final diagnosis. I don't know how you managed that long not knowing a name for what was happening all that time.

Thank you so much for sharing!

Since I just finished my HCA course, I like learning more about diseases and try to understand or to be able to listen to to those effected by it without making them feel bad or awkward. Thank you for sharing and your video inspires me. I say it is your body, you have the right to choose and someone might choose a different route, I think since you are the living it, and I say this with respect to all who are going through this, do what you think is best for you. God bless you in your journey! All the best to you!

Thank you so much for sharing! This was very helpful!

Thanks for the great video and telling your story! I'm 66 and I had my first "episode" at 29 -- woke one one day one side went numb and could''t feel heat or cold or a pin prick and the other side was in pain. It was before MRI's so they thought first ms, then transverse myelitis. I recovered about 98% in year after steriods and kinda forgot about it, but then started getting sick from fragrances, and became chemically sensitive to things that didn't bother me before. I have t really stay away from pesticides and strong checmicals.. Then 12 years ago I had pain in my feet and got the diagnosis of ms (had the horrid spinal tap which was a nightmere especially afterwards). The nueuros (and I've been to 6) feel the ms activity began when 29. I think even with what seems like low success rates, being on an ms drug is a good thing in bag of arsensals. I can understand your position to just get used to living with it, as you say, for a year and then decide. I have the same reservations about all still even though I take Copanxone which according to all the neuros I've seen is the safest with fewest side effects. I've been on it off and on (now on when more lesions appeared a few years ago). The thing is that the ms activity in the brain (as I understand it) continues in the white and grey matter and spine whether you feel symptoms or not, and whether it can be seen or not. This is a progressive disease. It gets worse over time -- can be slow can be steady can be really fast -- just I think things can't get any worse they do. Everyone's different in how it progresses, but it does get worse over time which is the big fucking bummer. Like you, I've had periods of feeling pretty okay, then been hit bad, recovered, but the last one I didn't recover from -- a pain that migrated from my feet upward and it's been 12 years of intensifying pain in the whole lower body and has effected my digestion. So I'm kinda with Junior here in terms of encouraging you to consider Copoxaone. And medical cannabis is really helpful for pain. But certainly is just part of a bunch of things I do for it. Check out Montel Williams' arsenal. And there are these Research Updates I get from the MS Assoc of America that I read with great interest. The studies on salt are interesting. You can ask to be on their mailing list. Anyway thanks for posting this! We really help each other with these videos.. maybe I'll make one! Take care my comrade.

Inspirational ❤️ you give hope 😢

Thank you for sharing! I appreciate it.

Thank you, stay positive, you are an inspiration

I have lupus and ms brought on by lupus. I have macular degeneration . I can't have ms treatment and I'm ok with that. My body is a mess mostly because I've been wrecked by chemo used to treat lupus. Stay clean in the mind and stay as stress free as you can. I can't have sun exposure but I have b 12 injections. I have sjogrens which means hot cold is hyper and raynaudes does this to . Lord knows it's hard but my strength is my son his new wife and my fpgrandson keep smiling because life is so crazy you just have to smile xoxox molly from,Sydney Australia xoxoxo

Very helpful, especially for those in limbo. Thank you for taking time to do it and you get it really well. Go with you gut. Meds kill (just to negate some of the drug pushers)

Hey Spencer, I came across your channel with one of your current projects, "The Prison Bus" conversion. Looking thru your channel, I came across your MS story and became really inspired with your lifestyle and your insistence on not taking the medicines. I think that was a wise choice and truly love that you are doing a self treatment with healthy living, being active and controlling your environment and stress!!! Keep doing what you are doing man, and I hope your exacerbation will decrease!!!

Thank you dude. This was a good one. I hope you are doing well.

Thank you for your video I have MS also I was four and a half years before I was diagnosed I've been on a roller coaster similar to yours and if and have not accepted medication as of yet thanks for the video

I made my ms story after i saw yours. I gonna watch a bunch of others to, to see how everyone deal with it.

Thank you for sharing your story.

Thank you for sharing your story. A friend was just diagnosed with MS.

One year after posting this video, I made a follow-up: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-qhQLzv67Nlc.html Two years later I posted this video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-7I0ujnOqDfk.html Three years later I posted this one: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-28CJb48KAjw.html

It took the VA 11 years to get it right. Although I was diagnosed while deployed serving in the military. I relate with your story

I came over to watch your story! Thanks for sharing, and I will continue to watch. As you saw in my videos, the drugs haven't done much of anything. I like and respect your approach to thinking through medication options. I wish I did this too... I just did whatever the doctor told me, and I regret that.

Just ran across your video.. Well done!! Good luck on your journey!!

thank you for sharing your story . good luck for the future. I think retreat your mind would help as well to lower the stress level

Thanks for telling your story. Its one of the best ones i heard so far. Especially the part that your brain scan was clear, so they said you don't have MS. My 1st visit with a neuro who hasn't even looked at my MRI said it wasn't MS. But in the report it says i have a lesion, T2 flare i think. Yet the neuro says that its age related but he has no other explanation for all of my symptoms.

Fully agree on your plan! Ty for sharing your experience!

Thanks Spencer for sharing your story. All the best from Canada

it's interesting to hear peoples symthoms. Thanks for sharing

“I’m not really into brain infections”. Lol. You’re funny. God bless you and I hope you have a complete recovery.

It's good to hear you are doing well and you don't let ms get the best of you!

Happy to hear you are staying strong👏👍🕊

I have MS as well. Ty for sharing.

hey man i love your story and braveness' i started having my first symptoms in the summer of 2009 when i was 17 and i was bedbound for about a year. i dropped out of higschool and moved in with my grandmother. i was pretty much in bed for that entire year. a really goid friend of mine would come hangout with me and bri g me food and stuff. i had multiple bloodtests and ekgs ecgs mris full pa el blood workups and everything cameup clean. everyo e in my family ruled it as depression. around the summer of 2010 my symptkms got alot better bcs i was off of my initial begging flareup so for about a year i was good ive had my flare ups last between a year to 2yrs with feeling good or decent rather about 6m-12m anyaaya fastfoward to november of 2018 i aas finally diagnosed with MS almost a decade later. the releif of being diagnosed with slmething i k.ew i had all along made me and everyo e around me feel alot more comfortable.

Thanks for sharing, man!

Thanks! Was just diagnosed w/ MS. Video helps.

I had symptoms 11 years before dx in 2009. I've never taken any of the MS medications. I do take vit d3, fish oil, coq10, and magnesium. I try to eat clean. 14 lesions on the brain and dozens on my spine- all but two were on my scans already at the time of dx. I was told the same thing in regards to becoming wheelchair bound and such. So far that is not where this journey has taken me. It's nice to hear your story. Be your own advocate and continue to make educated decisions!

So glad to see your video. I've had symptoms for over ten years. My doc thinks I have MS but my MRIs don't show lesions so not officially diagnosed. I've been on the Swank diet all this time. It took 18 months but my symptoms finally went away. ( numbness, tingling in arms and legs, extreme fatigue, cognitive deficits, trouble finding words or else substituting the wrong word, etc.) these all still return if I get tired or stressed out. My doc told me he doesn't think much of the dmds, so I am really happy with the lifestyle adjustments I've made. Of course, I totally respect people's choice to use the drugs. I know they work well for some. I look forward to seeing how you live with all this now that you know you have it. I wish I knew for sure one way or another but I've learned to live with the ambiguity.

It’s crazy to see how much things change the longer you have MS. Your really so lucky to not have to take the meds. I couldn’t see so bad nor walk when I had my first big exacerbation! As soon as I started on the steroids. Then with the disease modifying drugs helped me regain my vision. Your perspective is awesome too! Take care!

Thank you so much for posting

I’m 15 and have been told that I could have ms and I can’t explain to you how much these videos mean to me because I’m literally freaking out.

Thanks for telling your story. I'm 35 and have had symptoms since I was 20 and still don't have any answers. I saw a neurologist at first which put me through the ringer she gave me 4 spinal taps the first one she tried to do herself and my leg started swinging involuntarily. She blamed me saying I had a low pai n threshold. The the other three were done via xray by a radiologist and went perfect but it had to be repeated 3 times bc the lab kept losing the fluid sample. I recently had a MRI of my brain without contrast that show a lesion that was nonspecific. So right now I'm just kind of seeing my primary and that's it bc I'm terrified to see a neurologist. I did get a second opinion once and was told it was all in my head. At the time of the consult I was asymptomatic which didn't help.

MS Views and News here on RU-vid has some awesome and informative videos that gave me a lot of info to keep me up to date with the challenges of living with MS. I officially got diagnosed in 2012 after having symptoms for 20 years. Doctors kept telling me I had Chronic Fatigue, even after not being able to use my right arm for 2 of those years. I was on Copaxone for 1and 1/2 years til I had a reaction so I went off it. Roughly another year went by til last November and boom got hit with major relapse symptoms. Now I'm in the process of starting a new med. i found a great MS center in Kansas City, Mo at St Lukes Hospital. I hope all the best for you. This disease affects all of us differently.

Hi, loved your approach to you ms. So positive and rational. I was diagnosed in '88 but like you had symptoms for years prior to my diagnosis. No disease modifying drugs back then; only Pred'lone as a treatment for relapses which I did take. Tried to go treatment free until about 6 years ago as each MRI showed new lesions. On my third protocol now as my annual MRI does continue to show additional active lesions. With that being the case, I'm now on the 6 monthly infusion which hopefully will stop any more damage. I've continually adjusted my diet protocols too, giving each a good two year trial and can conclude that the Keto diet has really helped my crushing fatigue. None of my diets thus far has stopped new lesions forming nor has any drug so far! I find this revelation remarkable. I'm now having MRI's every six months which should hopefully show fewer lesions after being on the infusions, by that time, 12 months. It would be great if they work as even after having MS for over 40 years with multiple lesions I am still walking. Good luck to you! 😃✌️

I’ve had many symptoms. Couldn’t walk couldn’t talk couldn’t see. My last pregnancy I was in terrible pain they said I had Sciatica my doctor delivered my daughter early. I had Spinal Tap they tried 3 times the pain was unbearable that was a yr ago. Neurologist appointment Monday. Nothing in brain MRI. Im so inspired by you and I want to thank you for sharing ❤️🙂

Your braveness is inspiring!

Really appreciated listening to your experience. I am also running some tests and MRI for my symptoms. Thanks very much for sharing r, really helped me a lot and also it helped me to share them with my GP.

Wow thank you for sharing! You are the clinical picture school is painting for an MS patient (current PA student). Glad you are doing well!

I've been impacted by MS related events for 10 years and diagnosed 2 years ago.

Your video is fantastic. Thanks mate.

Great video!!! Thank you for sharing !

Thank you for sharing metaspencer (my husbands name is Spencer!) Someone I know had many MRI's just like you and each time, they found nothing. Eventually she decided to pay and see a top specialist in MS. He took her many scans and magnified them and on doing so he was able to see hundreds of tiny lesions that couldn't be seen with the naked eye. MS can take a long time to diagnose and some people never get diagnosed but instead get offered a diagnosis of FM. I say, if the symptoms fit, keep pushing for answers. I'm glad you did.

This was so helpful. I suspect my 7 yr old son has MS, we're in the beginnings of finding out what's wrong. I never considered NOT doing medication while pondering all the possible outcomes. I really appreciate your story and sharing what you've experienced so far.

Thank you for this video . I was just diagnosed sunday afternoon. In a bad flare up now and this definitely helped me. Thank you so much

Thank you for sharing. Good video. Well done.

I'm 12 and dad has been talking about being numb so I have been looking through stuff ,I'm going to advise him to get checked

thank you.... I refuse medication... glad to know I'm not crazy 👍

Thanks for the video! Very informative. Keep strong !! I am loving the MS story videos aswell I have a smiliar story, just had a double vision episode. Went to the hospital and all scans and xrays were good. currently in the process seeing a neurologist. If I do have MS it will explain alot that has happened the last 15 years. I'll keep in touch Justin From Vancouver BC Canada

Wow man. I just came across this video. You work so hard, but work is also exercise. I sure hope you continue to be able to enjoy quality of life. Life is short. Make the most out of what the Good Lord has blessed us with. Take care of yourself buddy.

Hi Spender. Good job on the video. I have had MS for 18 years, was using a wheelchair for four years and had numerous relapses until I started Tysabri in November of 2006. Since then I walk several miles a day and have not used a wheelchair, crutches or a cane since 2007 and I have not had a relapse in nearly 10 years. I am JCV positive, but got a low titre, but I have never been scared of PML.

Thanks for sharing. It's not easy I know. I'm learning to appreciate each day that I'm mobile. I'm 39, had my first intro to MS in 2006 with O,N in my left eye. Sent me completely blind & then back to a somewhat reduced state over about 4 months. Parts of my face also went numb as if I'd just had a "local" & a tooth filling. It left me alone for a while, then in 2008 my right eye did the exact same thing. On a side note, I've also had a condition called "swimmers ears' which due to infection made me deaf for 3 weeks. Talk about spending a day in someone elses shoes! The first 2 episodes & the subsequent MRI's showed no signs of plaque but a lumbar puncture did shine positive for immunoglobulins. So it became a waiting game. Now here we are, 2016, just had my 3'rd MRI in 11 years after tolerating months of fatigue , aches, headaches & with my right eye clouding over, I now have the diagnosis of plaque in the 4'th quadrant. It's funny, at the same time that diagnosis scared me, it gave me the chance to relax as now I have a reason for all the symptoms. For the past 5'ish months now my physical self has diminished a bit, but to due my immune disorder I also have Ceolicas disease which has seen me shed about 25kg (55 pounds), I've radically changed my diet to avoid all wheat, barley & all it's derivatives. Some multi vitamins are on the cards too, but my diagnosis is so fresh that I'm yet to go back to my specialist to follow up the scans. Basically, I feel like an old man in a fit body...that make sense? Some days are better than others, but I live everyday with some type of physical or cognitive fatigue. If I want to plan a big day, like spear fishing with my son, I'll take it easy & eat well for a couple days leading up. Some of my symptoms are weird as hell too, half a numb penis & anus, numb ass cheeks, numbness deep in the leg muscles, this also causes "restless legs" & very uncomfortable. singular nerves in my heel ligaments twitch, random muscles will visibly twitch, I get restless if I either sit or stand for too long, & this includes my concentration, mood & cognitive reactions. Basically, if I'm somewhere or with someone for too long, I get cranky! Mornings suck too. I smoke pot to get to sleep quickly & efficiently. Helps me sleep through the night. I sometimes get flashes of light with my eyes shut, as though someone has shone a torch at me...real enough is it that I open eyes to see what's there! No: 1's & 2's are still normal, with exception to bowling people over to get to a loo quickly on occasion. My mobility has slowed a bit, but I deliberately do things like look down when I walk, just to be sure I won't trip, as with most MS folks I am very sensitive to pain & cold, Love my heat though for some reason? I mess up my written words too & I often smell things that aren't there. I firmly believe that I have lived with this immune disease way prior to 2006. I may have been born with it. I was born with eczema & food allergies, so the connection is easy to make. I'm going to stay clear of meds if I can. I think the right diet is the go for me.

Very positive video. Thank you!

Been watching your recent stuff for the last couple of months and I think it’s Great just looked to see what your back catalogue looked like and found this one can’t believe you are an MS sufferer you work so hard and lift such heavy stuff I suppose if that type of work keeps MS atbye then I can understand why are you push your body so hard.👍

I'm 54 and having a lot of these symptoms which have been coming on a long time

Hi, just saw your video. I also have had ms symptoms for 17 years. I was diagnosed in Dec of 2015. I had many symptoms throughout the year s and doctors chalked it up to many off things from anxiety disorder to nerve pain in my face from a dental visit. whatever.lol. the first symptoms came around when I was out in the heat and I couldn't talk well, walk well and couldn't use my left arm. through the years these symptoms would come and go. i had problems with vision, tremor in my right hand and more. spinal tap have always showed nothing, but my MRI shows lesions more on my cerebellum

Thank you for sharing! I have a lot in common with your story, especially the nerve/numbness/sensitivity issue. I'm also not on any of the meds and have had MS for at least 20 years.

Thank you for sharing your story

Thank you so much for sharing your story. I'm currently going through the process with being diagnosed. I've had 2 flair ups in 2 years almost exactly a year apart. Both lasting around a month. From what I've noticed they're similar but progressed. I've had the worst luck with medical attention. I was wondering; if anyone can answer this. Would it be better to get tested during a flair-up rather than not?

OMG - you are describing my doctor/neurologist experience s to a T. My neurologist said not MS because my brain lesions aren’t lined up... meanwhile I’m just living with symptoms.

Thank you so much Sir ❤️ Love from Texas

Omg... my butt went numb in my 30's a few times... I blamed it on the cold, being on my feet lots, and just being weird!! Holy Cow!! I hadn't even remembered that one. Thank you soooo much for doing this vid. I have been really sick for about 6 yrs, no diagnosis, and just started watching these vids. I think they are helping to save my life! Ok, that's as far as I got, going back to watch the rest.

Thank you for sharing your story with the world. I know you will help many people who are affected also. Very impressed that you went vegan, and have chosen a very healthy way of life. I’m sure this has made a positive difference. I’ve read and heard about CBD oil being very effective for many like Parkinson’s and/or seizures, etc., so I would give it a try since it is natural. Blessings 💙

"you know, people's butts go numb!"

Thank you for sharing this information. I have been on this journey to find out what has caused my body to attack itself. I’ve been going through these issues for several years and no definitive answer has been given. I had to stop working because of the fatigue and exhaustion I have all the time. I’m still trying to get an answer but thank you for showing that I’m not losing it that there really is something wrong and I shouldn’t just accept no as an answer

You are on the right track. Do not let anyone tell you to take that medication. No one has anything good to say about them

I'm doing infusions now they stopped me from Aubagio I'm jacob thanks for the video man 🙄🤔😱👻.

I have a lot of similar symptoms as you do in my legs. Such as getting really cold to the touch, numb, and tinglely.. I also have some aching pains throughout my legs. I'm only 17 and just recently went to a neurologist who didn't run any tests just jumped to the conclusion of being stressed out.. I've had these symptoms for months now, and have been doing a lot of research on ms. The first doctor I went to thought it was a possibility and I just want to know if you or anyone could give me some advice on what I should do next.

Stay strong, brother! 🧡🧡🧡

Your story was very helpful. Thank you.

i was diagonosed with ms in 2013. I have refused the ms drugs preferring to treat naturally.... been symptom free since feb 2013

It's sad the diagnosis takes so long to obtain. It's my son who has MS. He was 31 years old. Yet he was exhibiting the worst symptoms of the disease a good 5 years prior. Going back further I can see many of the symptoms when he was just 9. As a parent you find excuses for all the symptoms. But when you see your child in a hospital bed his body shutting g down it scares the manure out of you. It was that hospitalization that triggered the tests needed for a diagnosis. You would think that would make it easier. NO it is the start of an even bigger nightmare. Many can't hold a job when the symptoms progress. Without a job and being over 25, you are screwed by the system that was set up to help in exactly these situations. You have to fight the government for Medicaid. Then if you are lucky enough to have weathered that war (not a battle alone) you have the next major war with all its battles to contend with. Getting treatment would sound easy, but with just Medicaid it's a horror story. Not one neurologist in this country will see you without insurance. Then you find out they dont take Medicaid. This starts a two year waiting period before you can get Medicare. The government thinks since there are remissions and most people are not affected so they dont need to be in the category of an I curable disease. It will just go away so you get to wait for two years for Medicare. That is unless you have an unrelenting bitch of a mother that fights the battles. It still took 6 months for my son to see a neurologist and get treatment. In the mean time he had a major relapse. This time instead of 43 active lesions on his brain and spinal cord, it was uncountable covering everything. He also now had a golf ball size blackhole where brain tissue should be. Medicare doesn't care, it's a governmental bureaucracy that only believes in the politically correct diseases. More people's stories need to be known. If it wasn't so fatiguing I'd say do a March in Washington.

So interesting hearing how you got diagnosed, hope your ok

Yes! Numb butt! I am 42 and was diagnosed last year. I have to check out your new video!

"I'm not really into brain infections" 😂