Psoriasis and Psoriatic Arthritis | My Story 

Hello I live with Psoriatic Arthritis and psoriasis as well. And to hear your story help me know that I am not alone. Thank you.

Hi Amy!!! I’m also Amy. I’m thrilled to find a channel on this subject! Sending love and blessings to you.

Hi, you are most definitely not alone. i had psoriasis as a child and through my teens but it faded so that it was no longer an issue. I am now 44 and have been diagnosed with psoriatic arthritis for roughly 3 years. I was started on methotrexate and was on that for about 2 and a half years but i felt that although it seemed to work in the beginning its effects start to wear off and i felt like i was living in a fog. Please dont let that put you off though as it is different for everybody. I chose to come off the methotrexate after a discussion with my consultant and was started on Leflunomide which i have no been taking for roughly 3 months and it is definitely helping. I had chronic pain in my knees and elbows and they are both almost pain free at the moment although i am currently having a flare in my hands which is hard to deal with. The hardest thing i had to deal with was giving up work, i have been a home carer for 25+ years and due to pain and fatigue i could no longer do it.. I tend to be able to do small jobs around the house in the mornings but then end up sleeping most of the afternoon away. I wish you well with your treatment and hope you get the results you are looking for. Please never feel alone on your journey. If you want support you are welcome to send a friend request. There is also a fantastic site that i found that you might find useful, here is the link: psoriatic-arthritis.com/community/. I hope it helps. Take care of yourself, Leigh.

I healed my psoriatic arthritis with Diet/lifestyle changes , i take out all that toxic foods and that helps big time, i am a lifer since birth with psoriasis 50 years now and psoriatic arthritis for near 16 years, its what we eat that can cause inflammation and make it worse , i could give a big list of petential bad foods, it would be long though,, I wish you all well :)

Peace be with you sister I hope this message finds you in the best of health and faith, God willing.

You are not alone with PsA. Thank you for sharing your story! Please make a video of how PsA impacted being a mother.

I also have both and got them at the same time at 50 years old! I’ve done so much research after seeing 15 Doctors. I have not found much relief at all I’ve been taking 8 pills of methotrexate a week and was getting regicide infusions but now I am getting simpering asria infusion. Joints have been so severe and crazy how it all came on at the same time. Scalp is so severely painful everyday. Best of luck

This disease is horrible. I have it too, I just started Humira I hope this helps. Methotrexate was awful I will never take that again. You are so young, take care of yourself!

Yes...i have psoriasis and psoriatic arthritis, psoroasis at 12 for me and psoriatic arthrits in my early teens. I hurt. I will be 55 in Nov 2018. Just hurt. Hereditary

I’ve had psoriasis/eczema since I was born. 4 years ago, at age 16, I started having extreme pain in my hips, knees, and spine. Tests after tests were performed and bam...suddenly the diagnosis was psoriatic arthritis. I’m glad someone else had the same experience of young diagnosis.

Had psoriasis over 20yrs and the arthritis about 6yrs. Excellent video 😀

Thank you for sharing your story. You are right, it is hard to find people sharing their story on youtube. My psoriasis started when I was about 15 years old on my scalp and it spread over time. After I had my first child at 24, I started to get more skin flare ups and I started to develop Psoriatic arthritis in my fingers. Then right before getting pregnant with my second child at 27 years old, I thought I had broken one of my toes and it turned out it was psoriatic arthritis. I also started on methetrexate and now I take Stelara which is a biologic injection. I was also unable to walk after my second child and it began to spread to other limbs and also my skin began to get worse too. I have been on the biologics for about 2 years now and it has seemed to help a lot. My skin is 40% clear and my arthritis is better but not completely better and I still get fluid in my knee and lots of pain but not near as bad. I will be 30 years old in February and have never met or heard someone with almost the conditions I have had at almost the same age. I am so thankful you have reached out and made this story, it really makes me feel like I am not alone in this. I am sorry to write such a long message. This is just something that I think more people should share to empower others that there is hope and to not give up.

I also was diagnosed with PSA, I'm sorry your having to go through these rough times with PSA.

Thankyou for sharing 😁 I was diagnosed at the start of this year. I have 4 auto immune diseases and I just assumed the arthritis and psoriasis would be the least of my worries. I've already figured out that it isn't the case. I've created a channel to talk about my symptoms and how I feel they effect others. I've only uploaded 3 videos, hoping to do more very soon

You are very fortunate that your life has not been impacted it a worse way. I begin having symptoms when I was about 39. But by the age of 47 I no longer could drive or walk. I spent two years literally on the couch. I had to quite a career I loved. My spine is extremely damaged but I flare in all my joints. I am now 54. I am on disability. I take methotrexate and injections. Nothing helps. Oh and my skin was involved. It started in my ears. And mostly my head. I have patches. It have effected every aspect of my life my family. And my mother has rheumatoid arthritis my oldest daughter has psoriatic. And all of my grandmother s on my mom’s side as far back as anyone can remember had it. My mother’s mom had psoriatic. It was a lot like me. She was disabled in her spine. But had pain all over and skin problem s. Right at the moment I hate psoriatic arthritis. I am sick because of the methotrexate. Severe weather effects mine. It’s very cold here in Tennessee and in the summers we have very high humidity that really makes me hurt. We are considering changing our life style to travel some to avoid extreme weather. We can’t do that right now. We need to stay put. My husband being the only bread winner he is putting our daughter through pharmacy school. And we have about six yrs to go. She is my youngest. She is lovely and worth all the effort. I am very religious so I will say God bless you. Keep us posted. Leslye

Thank you for this video sweetheart... I'm a 32 year old female who also Suffers from this and idk anyone else with it 🙏💕

Thank you for sharing your story. I also have psoriasis and psoriatic arthritis. It’s not easy to deal with. I appreciate your video and bravery! ❤

Iness Advanced Daily Biotic Lactobacillus Rhamnosus along with a low carb diet has cleared my psoriasis on my skin 98 percent and eased my psoriatic arthritis, pain was 8 now 1. It was a slow process, but it worked for me over the last year. I drink lemon water to maintain low carb for the long haul. Everyone has candida used in digestion but when good gut bacteria is destroyed it is not contained, carbs turn to sugar and feed the candida fungus. I eat meats, green vegetables, cauliflower mash potatoes, eggs, berries, cheese, nuts, olives, make crackers with almond flour.

You are correct. They are only a few of us with both psoriasis and PsA. The psoriasis started in 2009. It started behind both ears. Then the top of my head. It was maddening how itchy it was. I finally went to my dr who called it eczema. Then, the next few years, I had patchy areas on my knees and even down to my shins. Also they were on my elbows and my back. The dr referred me to a dermatologist who did a punch biopsy and sent it off to the lab and that’s when I was diagnosed with psoriasis. He ordered creams and solutions for my scalp. Neither worked. A few years later, PsA started with very painful back, knees, my toes would become red and so painful.At times I could barely walk. I just thought it was old age as I was in my 30’s. Then sausage fingers started. That was finally the time my dr realized it was PsA. He referred me to a rheumatologist. He did some blood work. Started me on methotrexate which I’m still on. I had several trials of biologics that didn’t work. Finally, he started me on Humira and that was a miracle drug for me. It took care of the psoriasis and the PsA. So I was on that for a great 5-6 years with no flare ups. Until 1 day 3 years ago it stopped working. So He stopped humira and started me on various other biologics all have failed. I am currently on Cosentyx injections and I have hopes. I am finding relief from this. He just increased my dose and I can say that it is helping. If I have flare up that the injection doesn’t help, I can take prednisone but I can’t take this for too long because it raises my blood sugar as I’m diabetic. It’s always good to hear that we are not alone in this.

Thank you so much for this video... I could't cope with metotrexate, made me fell very depressed (even more than usual). I use cbd oil now, wich helps, but I can't pay the more concentrated version of the oil. Made some major changes in my diet, no bread, no sugar, no cakes... it's hard, many sacrifices for little gain, but that's the path. Be strong, you not alone. Kind regards

Seems to me that no one with psoriasis knows anyone else with psoriasis, I personally don't know anyone who has it either lol. I've had it since I was 15, I am now 40. After watching your video I have come to the conclusion that I should check if I have psoriatic arthritis to. I live in Hawaii, born and raised and been wearing long sleeve t shirts and pants since I was 15. My psoriasis is really aggressive, over 90% of my body. I went from using methotrexate at 15, then to clobetasol ointment and now I currently use Halobetasol ointment which seems to work really good, but I just can't get enough medicine to last the month so by the time the month ends and I run out of medicine it just gets worse all over again. Thanks for making the video, I truly always feel very alone. Aloha.

I loved being outdoors and working outdoors. I would walk everywhere all the time, I would climb ladders and stairs all day at work. I also get psoriasis over my lower back and it still affects my ability to walk. I remember waking up with numb or tingling legs a few times. When it spread near my eyes my vision started getting blurry and the ocular lights started happening. My vision went crazy for a bit. Methotrexate has helped make it manageable but you have to be careful with what effects the liver. Even my fingers are slower with video games and guitar playing let alone working with hand tools like I did for years.

Thanks for this video. It showed me that there are others like me. I've been suffering from scalp psoriasis since I was 15. Recently I've developed it on my arms and now my leg. I also suffer from arthritis in my knees, lower back and neck. I don't know if the arthritis is a result of scoliosis or my psoriasis but it's having a huge impact on my life! This recent flare-up is debilitating. I'm embarrassed to wear short sleeves and shorts!

I have it also! Thanks for sharing.

Hey, I have psoriasis and psoriatic arthritis. I was diagnosed at 14 and I'm about to turn 20. I have been on methotrexate and a few biologicals for 7 years. If you want to talk about any of it let me know xx

I am convinced that I must have psoriasis and psoriatic arthritis. I have crohns and non-specific non-deforming arthritis, dry eyes, nose and mouth, very faint eyebrows, patches of red skin that randomly appear, at times very greasy hair behind my ears or at the underside of my hair or on my neck, recently red blotches near my nose are getting a lot worse, occasional pomplyyx eczema to my hands, dermatitis on my forehead, little red bumps over my chin, backs of arms and legs; skin on hands has been very sensitive and cracks and bleeds. The hair only clears with Tgel occasionally. I used to use Nizoral shampoo as a child and my legs swelled up for 6 weeks before crohns diagnosis in 2010. I take sulfasalazine, Azathioprine, nasal spray and eye drops, multivitamins, a low lactose diet, avoid foods that affect my crohns. I will make a GP appointment and mention to my Rheumatologist if unsuccessful with GP. Thank you.

Stay strong... I was diagnosed with PsA in June and am still learning.

Thanks for your testimony. I had same things rigger after delivery. My thyroid adrenals and hormones never recovered.

Wonderful to hear your story. Plant and fruit diet except for the night shades plant are supposed to be useful. I have had psoriasis since about 3 years old. I am now much older and have been diagnosed with Psoriatic Arthritis. I’ve been on methotrexate for 7 years now on a low dose. I have however refrained from taking this since my blood count has not been normal after several stop & starts.

Thank you for sharing !! You are surely not alone ..

Hi i have the same thing ,now I'm 63 yrs old, and live in the US at Bismarck, Ar.

Please do a follow up video

Thank you for sharing, I'm trying to find a diagnosis. I think I might have posriatic arthritis, waiting for my doctor to confirm. I'm 37 and I started having terrible joint pain after pregnancy at 35. I'm hoping to find answers.

Thanks 🙏🏼 in a flare now

I have it two and i have bad pain in my feet and fingers and my spine I'm 60 have posarioes all my life .i was on treatment for it but had to stop it .because i keep getting infection in my bladder .how do you cope when you have a flare-up i stay in bed .

I’ve had PsA for three years, and have been on methotrexate since. I’m hoping to have children in the future but I’d have to stop the mtx six months before trying to get pregnant. That terrifies me since I was terribly I’ll before starting the mtx. And I can’t imagine being pregnant with a flare up... sigh... thanks for sharing your story.

I just made a video on my channel about my treatment that is working very well. thanks for sharing.

Gr8 vid...your abeauitful galxxxx

Hi dear, thanks for sharing your video. Im thinking to vlog also my skin disorder severe psoriasis. We have the same kind of story but when i learned to accepted it and embraced this illness i learned to managed without taking any medicines. It only triggered when im stressed and now the weather changed .

I have both also😔

I have it very severe

I have had Psoriasis since i was about 14, im now 53 and still suffer. Like you its on my knees, elbows, hair, ears and also my eye brows. I have been having pain in my joints for over 4 years now but everytime i mention it to my doctor they seem to shrug it off as if its in my mind. My finger joints are so sore some days that i cant grip like i used to. How do people get through to their doctor that they are sure they have Psoriatic Arthritis. Like most Doctors now they seem to not want to send you to see anyone regarding any problems and try and palm you off with other things. At the end of the day i wouldnt send my car to a vets for a diagnosis about a problem. What do i have to do to convince the doc about my problems. Thanks

Yes, thanks for the video!

Do you have a snap chat? I'd love to have a friend to chat with about our mutual PsA... Name's Monique and I'm from Southern California. I was diagnosed at 19.

Research Paleolithic ketogenic diet, Zsofia Clemens and Paleomedicina Hungary. Very promising.

Can't even listen

I also have both and got them at the same time at 50 years old! I’ve done so much research after seeing 15 Doctors. I have not found much relief at all I’ve been taking 8 pills of methotrexate a week and was getting regicide infusions but now I am getting simpering asria infusion. Joints have been so severe and crazy how it all came on at the same time. Scalp is so severely painful everyday. Best of luck