PTSD in Cancer Survivors 

I'm 27 years old, I'm unemployed, I've tried a few times to go back as finish my bachelors degree and my wife is in the process of leaving me. I had suprachondrosarcoma (brain cancer) when I was 18. Treatment was fast and ferocious. I really wish I would have known about this 9 years ago when I finished treatment.

There were no preventative measures taken when I was 15/16 with ewings sarcoma, having lost my leg, and it’s increasingly obvious as I get older that I’m not right. Debilitating anxiety and irritability have really made it hard to achieve the things I want to accomplish in life. And getting help is very hard. 6 month waiting lists for psychiatrists and therapists are such a bummer that it strips me of any motivation to get a handle on my ptsd.

Great. I was 43 when diagnosed. Now, I am housebound, completely isolated, and watching the clock tick off the days until death, because all I am doing is existing, sitting in a room, staring at the computer screen. My oncologist is a large part of what traumatized me initially, her anger, her rudeness, shouting at me when I was in pain, telling me 'most of my patients are working, what is wrong with YOU.' When now I know, they weren;t all skipping off to work in the middle of their hard chemo, half don;t return to work within five years. Refusing to sign my long-term private disability insurance form, even while I was still being treated, hadn;t even begun radiation yet. So i changed cancer centers, to a place where i was treated very well, until my mother turned up with stage IV lung cancer and was assigned to a different doctor in their practice, who was horrible. Long story short version--after she passed away, horribly, and no hospice would take her with just medicare, so I had to leave her at the hospital and not go sit with her because they would try to force me to take her home, where I kept having to call an ambulance when she couldn't breathe. I had to unplug the phone because they kept calling me to come pick her up, and I couldn;t carry her myself, I am not well either. She had multiple broken bones from falling. No one told me that with late stage lung cancer, the brain is starved of oxygen so they lose their minds before they pass. She set her apartment on fire, she was so out of it, so I moved her near me, into a another unit because mine is so small, no spare bedroom. They sent two women over to see her, but they weren;t nurses, to I think make sure I wasn;t not feeding her or otherwise abusing her, they offered no help with anything no transportation assistance, no recommendation for hospice. Later on, months and months later, I had trouble making two appointments with my onc. So I canceled and rescheduled them. I was having near breakdown symptoms, and couldn;t leave the house every time I had an appointment. The relief once i called and rescheduled was tremendous like a bucket of water over me. Because of that, they 'fired' me from the entire practice, had an administrator tell me I was 'released on my own recognizance,' as if i were a criminal who had been arrested for the crime of rescheduling a 15 minute appointment.

Where are all of these childhood cancer survivors? Im a 48-year neuroblastoma survivor. I wish I had received follow up care.

This video was 13 years ago, where are we now? I need links to all new information.