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Putting her to sleep // Sleep Study 

Hope & Sunshine
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Raelynn hasn't been sleeping well for awhile. Her oxygen often dips down, but usually comes right back up on its own. So we (and her doctors) wanted for her to do a sleep study to see what the best course of action might be.
My Book: "A Parent's Guide to Managing Seizures"
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ABOUT RAELYNN'S RU-vid CHANNEL
Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I'll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube. She has a vagus nerve stimulator (vns). She uses a shaker vest, nebulizer, and a cough assist machine daily to help her breath better.
Raelynn’s been to the doctor more times than the rest of our family combined!
In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.
I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I'm a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.
God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.
That's what this channel's about.
We post videos of Raelynn's life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).
If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn's life and assistive technologies! ❤️
/ @hopeandsunshine
#sleepstudy #hospital #insomnia
sunshinebaby.tv

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30 янв 2022

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Комментарии : 114   
@cherrelle9964
@cherrelle9964 2 года назад
I am glad the sleep study was successful. I'm looking forward to hearing the results (if you choose to share). Maybe once she sleeps better her pain will decrease? God Bless you all.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
That would be nice! We'll definitely share results when we find out more!
@kat35lulu88
@kat35lulu88 2 года назад
Well said! I think good sleep/rest is super important!
@gracins4425
@gracins4425 2 года назад
I will always be praying for her.I hope You guys find some answers from her sleep study.Prayres that she will be able to sleep better
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks so much! Hope you're doing well!!
@gracins4425
@gracins4425 2 года назад
@@HopeAndSunshine I am doing great I just finished taking my test for the day.Now I am laying on my bed cuddling with my cat getting ready to eat lunch
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Fun! Cats are nice to cuddle with ❤️
@justinea4480
@justinea4480 2 года назад
I hope raelynn is doing well 🙏💙 and I hope she sleeps better 🙏 I'm here for you 🙏❤️
@marypettyfer4640
@marypettyfer4640 2 года назад
Hello lovely God bless ♥️♥️❤🙏🏼
@justinea4480
@justinea4480 2 года назад
@@marypettyfer4640 aww 💖 thank you 🤗❤️ same to you too 🙏
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's doing well this morning, thanks!
@justinea4480
@justinea4480 2 года назад
@@HopeAndSunshine u r welcome 🙏 I'm glad raelynn is doing well 🙏💙
@emi7912
@emi7912 2 года назад
Raelynn’s voice is so sweet, seems like she’s become more vocal over time. Seems like the sleep study went well, except sounds like Raelyyn’s legs hurt in morning, hope that might get better🙏That security guard greeter is an angel ☺️❤️
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's definitely become more vocal, even just in these last few weeks. Less seizures often means she is more alert and vocal. ❤️
@marypettyfer4640
@marypettyfer4640 2 года назад
Thank you for sharing with us ❤♥️❤🙏🏼
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks for watching!
@danettehartsock6366
@danettehartsock6366 2 года назад
Good morning. (I hesitated putting morning because who knows when you'll see this. 😁) I hate sleep studies. I hate the glue in my hair! However I have sleep apnea and use A c-pap machine and love it. I've been using it since 1998. It was a game changer!. LOVE and PRAYERS ALWAYS from Gainesville Florida. ❤🙏😊🙏❤
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Good morning! Glad your CPAP helps you!!
@summerb758
@summerb758 2 года назад
I’m new to your channel but I am glad I found it. Thank you for sharing with us. She is a beautiful girl and very lucky to have such wonderful family.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks so much!!
@binkybunnysway943
@binkybunnysway943 2 года назад
Aw glad It went well and I hope it will reveal answers for you. She's so brave.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
We hope so too!
@marypettyfer4640
@marypettyfer4640 2 года назад
Praying for you lovely family ♥️❤🙏🏼🙏🏼
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thank you! God bless you!!
@GeorginasJourney
@GeorginasJourney 2 года назад
Great job, Abby, that looked a lot for you to do as well as being a lot for Raelynn! & I’m really glad they caught some stuff during the test, so that it was all worthwhile 😊
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Definitely!
@sweetluvgurl
@sweetluvgurl 2 года назад
I’m really glad y’all did the sleep study. With her breathing issues, I thought she may need a bipap at night to help her breathe and recommended that it may be good to get a sleep study to see. Hope they can help if there are any issues. 💕
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks so much!
@louisehicken8183
@louisehicken8183 10 месяцев назад
I like to do look after patient with disabilities mental health
@zfran5059
@zfran5059 Год назад
Wow this is so cool. Now my 3rd video I've watched and I'm learning so much. Mom you Rock you make it look easy!!! I must be doing it wrong lol!! You truly are blessed to have such a beautiful attitude and appreciation for details that matter such as the security guard! God bless him ! Just saying the children need you thanks for getting out your warm beds . All those things that are so true and very important! Mom your spirit has rejuvenated me to be more optimistic with not getting sleep, with giving meds , and ready for the next step. You're my she Roe! God bless you mom with God's infinite love and blessings!
@HopeAndSunshine
@HopeAndSunshine Год назад
Thanks for your kind words! We definitely have our good days and bad. We're in this together ❤️
@grayskindablue
@grayskindablue 2 года назад
Glad y’all did a sleep study and that she didn’t mind! I had a mast cell reaction to the glue they used on my face, which sucked but other than that it was fine. I have narcolepsy… (okay, technically idiopathic daytime hypersomnia not involving REM sleep) but narcolepsy is a lot easier to say. It helped so much to know, I hope her results help y’all too ✨
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Yes, I can see why that would be easier to say 😄
@cbawake5312
@cbawake5312 Год назад
Thank you so much for sharing!!! As a mom to a Cp kiddo and about to do her first sleep study all the videos I could find are of neuro typical children that didnt give me a great picture of what to expect with our girl and all the differences that we have with her.
@HopeAndSunshine
@HopeAndSunshine Год назад
Glad our video helped you! I hope your little girl's sleep study goes well 🙏
@cbawake5312
@cbawake5312 Год назад
@@HopeAndSunshine thanks, I hope so too! 🙏🏼
@meditogofilmproduction
@meditogofilmproduction 2 года назад
Raelynn is like mom I don't care I just want thos off and go back home. I hope the study is good and nothing bad so I'll be praying for her💖🙏🏼🙏🏼😴
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks! Yeah, she was ready to go! 😂
@jodiefrost4116
@jodiefrost4116 2 года назад
You and your husband are the best parents ever to your kids. Your daughter is gorgeous.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thank you! You're very kind ❤️
@melissaharr1877
@melissaharr1877 2 года назад
She’s always talking with momma ♥️♥️♥️
@HopeAndSunshine
@HopeAndSunshine 2 года назад
It's precious 💕
@clairestephens4916
@clairestephens4916 2 года назад
I'm your 300th Like on this video, I just subscribed, hello from Alabama. Your precious girl is an angel. Wishing the best for her and many happy days ahead.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks so much!
@susansgalaxy2219
@susansgalaxy2219 2 года назад
Praying for Raelynn 🙏🙏🙏
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks, God bless
@the8cuevas552
@the8cuevas552 2 года назад
I’m tearing up hearing the story about the security guard!!❤️❤️ mommy of 6🙋🏻‍♀️ Edit: Chris thanks for but taking out the teary stuff!
@HopeAndSunshine
@HopeAndSunshine 2 года назад
He's much appreciated 😁
@06-x5celine6
@06-x5celine6 2 года назад
I hope she will sleep well😉🤗
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She slept great! She understood the assignment 😄
@06-x5celine6
@06-x5celine6 2 года назад
@@HopeAndSunshine Hope things goes well
@jenk.6196
@jenk.6196 Год назад
Raelynn makes such sweet little sounds. It's great how you always talk to her. Just wondering how much she understands and how does she communicate with you in ways that you know she understands you?
@HopeAndSunshine
@HopeAndSunshine Год назад
We pick up in subtle facial expressions. We don't know how much she understands, but we can usually tell how she's feeling (happy, sad, uncomfortable, etc)
@GeorginasJourney
@GeorginasJourney 2 года назад
Is it bad that they didn’t catch a tonic clinic seizure during this test? Or was it more to measure oxygen levels & other stuff?
@HopeAndSunshine
@HopeAndSunshine 2 года назад
It was more to measure oxygen and things, so it's fine. They've already done sleep studies with the purpose of studying her seizures.
@shadowelynstevens2881
@shadowelynstevens2881 2 года назад
Even if raylinn was diagnosed with sleep apnea she discovered a sleep study is always a good idea
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Yeah, it can't hurt! 👍
@sixmercer2504
@sixmercer2504 2 года назад
I am the mother of a very critically ill daughter who has been in and out of countless hospitals from Colorado to Nevada to Norway to Sweden She has been through more suffering than I have ever witnessed collectively I think in my 12 years of my nursing career. She has had two multiorgan transplants, countless operations, muscle biopsies, g-tubes, j- tubes, gj-tubes, central lines, PICC lines, now she has a port, 11 deadly line infections we expected to lose her from between the age of 2 and a half and 4. I am only explaining thus because, my nursing career ended when I had her and she needed round the clock critical care after coming out of the NICU being born at 3 pounds after inutero growth retardation and lack of movement. As a nurse before I had my daughter, if I had a security guard who was so uplifting and positive and upbeat, who used terms such as "the children need you, well it would have been the most touching thing someone could tell me before my shift everyday. So don't count us out. I wouldn't have felt like we simply had a cool security guy. It would remind me every single shift on my way in and out (because I bet he thanks them as they leave on behalf of the children and families on their way out as well) that we all play a very very significant role in the lives of these families and the children and how true it is how much I'm a part of making the most scary and horrible times for people as easy and fun and educational, and warm as possible..every single minute of every single shift for every single child and every single family member. What a gift that man is to that hospital. A gift for the nurses and a gift for the children and families. I don't know how your Children's hospital is in St. Louis but I think if you ask a Children's nurse what they feel when they walk in to work with his encouragement and appreciation, I would find it hard to believe that you would get the answer you say you would expect in this video. However, Healthcare has gone downhill in the US especially regarding bedside manner and record keeping and general care. I think Children's Hospitals tend to be in a whole different bracket with much higher expectations and concerns for their jobs.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
We've found it to be a great hospital, with great nurses. I'm sure they appreciate the security guard, too. Thanks for sharing your experience ❤️
@bencaldecott6583
@bencaldecott6583 2 года назад
Good morning. My dad had a sleep study one time, but he was woken up from a call at his millwright company from a custumer
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Hope he able to get back to sleep! 💤
@taraisaacs8965
@taraisaacs8965 2 года назад
Good Morning...I know how you feel not sleeping. Had one of those nights due to intermittent power outages and the cold weather brrrrrrr.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Yeah, getting enough rest is so important
@Jacoe413
@Jacoe413 2 года назад
Rarlynn, you are brave! I'm a grown up and I didn't like my sleep study. All those wires and stuff, felt pretty weird and made it hard to sleep.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She didn't seem to mind it 🙂
@foodie8476
@foodie8476 2 года назад
She look like a doll💖💖💖
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Thanks
@heathermorton8216
@heathermorton8216 2 года назад
I have it EEG test for seizures few times long time ago.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
What did you think about it?
@laceygray9509
@laceygray9509 2 года назад
Hey was there something going on that required the study? What are they looking for?
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She just doesn't sleep well in general. She wakes up during the night, and sometimes she's awake so much during the night that she sleeps during the day.
@laceygray9509
@laceygray9509 2 года назад
@@HopeAndSunshine please let us know the results. Glad she was able to sleep. I had to do my study at home since I couldn’t sleep at the clinic. I couldn’t sleep with all that stuff they put on ya!Turned out I had sleep apnea. So now I sleep with a BIPAP.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Does the bipap help?
@laceygray9509
@laceygray9509 2 года назад
@@HopeAndSunshine oh yes!
@libbyhearn1834
@libbyhearn1834 2 года назад
Good afternoon. How is Raelynn doing?
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's doing fine 😄
@libbyhearn1834
@libbyhearn1834 2 года назад
@@HopeAndSunshine That good.
@giselleechevarria5037
@giselleechevarria5037 2 года назад
Aww what happened to baby girl Raelynn 🥰🥰🥰🥰🥺🥺🥺🥺
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's ok. She just needed to have a sleep study done to see if we can improve her sleep patterns at night
@Madison694
@Madison694 2 года назад
Aww so scary 🥺
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's doing ok ❤️
@Madison694
@Madison694 2 года назад
That’s good 🥺❤️
@kat35lulu88
@kat35lulu88 2 года назад
Let's pray this will bring some answers and help for good night's rest. The title again is a bit "unsettling"...... but I'm on to you now!!
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Haha, sorry about that 😂
@kat35lulu88
@kat35lulu88 2 года назад
@@HopeAndSunshine You're on a roll...... keeps us on our toes! Thanks for showing my pkg on the livestream.
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Abby doesn't approve of my RU-vid titles sometimes, but I'm just playing the RU-vid game 😂
@kat35lulu88
@kat35lulu88 2 года назад
@@HopeAndSunshine I see why Abby gets a bit edgy. I get your humor I've been told mine is wicked at times. When it comes to Raelynn we just all love her so much /...... she's getting out of that "little girl" age and looking more like a teen. Sure hope that sleep study can shed some light on things..
@taraisaacs8965
@taraisaacs8965 2 года назад
Can the PO Box be used to send something to your whole family?
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Yes, but you don't need to do that!
@taraisaacs8965
@taraisaacs8965 2 года назад
@@HopeAndSunshine its just an announcement
@taraisaacs8965
@taraisaacs8965 2 года назад
@@HopeAndSunshine I can't say any more than that on a public forum at this time. But you are so gracious sharing Raelynn's life with us that I want to share this milestone in my life with your family
@sixmercer2504
@sixmercer2504 2 года назад
@@taraisaacs8965 ❤ whatever it is, that's very sweet imo
@beckycooper9063
@beckycooper9063 2 года назад
I Had A Sleep Study Last Year Our The Year Before
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Did you learn anything from it?
@beckycooper9063
@beckycooper9063 2 года назад
@@HopeAndSunshine Um I Think I Did But I Forgot What I Learned
@nickmoore1177
@nickmoore1177 2 года назад
I had it done in October 1😷😷😷😷😷😷😷😷😷
@HopeAndSunshine
@HopeAndSunshine 2 года назад
Did you learn anything from the process?
@estelleschneider9033
@estelleschneider9033 2 года назад
Purify Realynn's diet.. Is there sugar in it? Not good..even if tube fed..it matters.. Please see..Ubiqinol.. Co Q10 What are the symptoms of low CoQ10? Other neurological abnormalities that can occur in primary coenzyme Q10 deficiency include seizures, intellectual disability, poor muscle tone (hypotonia), involuntary muscle contractions (dystonia), progressive muscle stiffness (spasticity), abnormal eye movements (nystagmus), vision loss caused by degeneration (
@HopeAndSunshine
@HopeAndSunshine 2 года назад
She's on a low sugar diet, which helps a little. Her VNS has helped the most.
@anaabreu2162
@anaabreu2162 Год назад
Que sofrimento,a vida para esta menina,não vale a pena.
@HopeAndSunshine
@HopeAndSunshine Год назад
Every life is precious ❤️
@shelleyrightmyer6421
@shelleyrightmyer6421 2 года назад
Ilove you somuch miss me
@femkeevers5006
@femkeevers5006 2 года назад
Wat doen ze dat met haar
@HopeAndSunshine
@HopeAndSunshine 2 года назад
het is een slaaponderzoek om te kijken of we haar kunnen helpen beter te slapen
@femkeevers5006
@femkeevers5006 2 года назад
@@HopeAndSunshine waarom heeft ze spalken
@theresamaleady7721
@theresamaleady7721 2 года назад
Hi little sunshine baby love you darling
@angeladamron3645
@angeladamron3645 Год назад
Omg she has a hiccups
@HopeAndSunshine
@HopeAndSunshine Год назад
Yes she does sometimes 😁
@angeladamron3645
@angeladamron3645 Год назад
I sometimes get hiccups too
@angeladamron3645
@angeladamron3645 Год назад
And that’s very cute panda
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