Rare Disease Mom with Rare Disease Child! Ehlers-Danlos Syndrome| Two Mics, One JoeySooch Ep. 2 

Talk with Emily Hall, who has Ehlers-Danlos Syndrome and Lyme disease among other diseases!! Emily is a rare disease mom with a rare disease child and talk about motherhood and how difficult the insurance system is with their lack of help. Talked about how our bodies are deteriorating way faster than the actual person. A 60 year old body in a 30 year old body.
“Banana" equivalent dose is intended as a general educational example to compare a dose of radioactivity to the dose one is exposed to by eating one average-sized banana”
Emily Hall's Instagram
/ emilyandthezebracrew
Venmo: @emily-h-333
PayPal: @esfhall
Ourodyssey.org
lymphedematrea...
centerforlymea...
Another podcast featuring Emily
open.spotify.c...
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Two Mics One JoeySooch (Here or wherever you listen to Podcasts)
Business Inquiries: JSuchanek11@gmail.com
I'm JoeySooch. I have Fibrodysplasia Ossificans Progressiva(FOP) where my muscles, tendons, and ligaments turn into bone. I get flares/swelling all over my body that can last a month to 2 years and bones will form thus locking my body into place. It is extremely rare with about a thousand cases on the planet. I am basically 95% disabled and permanetely in a wheelchair.
Video Description: • Boy Turning Into Stone...