Rhianna May Not - Ehlers-Danlos Syndrome (EDS) Short Documentary 

YES. I often feel completely dis _ abled.

Still couldn't find a specialist in EDS to tell me what I should not do and what should be good for me. I can remember every single symptom I had and still have since my early years. Only after 50 years old I started to learn about EDS and also autism. The trickiest part of my particular experience is not feeling pain in bone fractures or if my skin has been damaged. A lack in nociceptive pain - that's what I've learned by researching. I wish that this film had more than 10 hours... when she asked "what would you do if ..." I answered: - I already have and while remembering that, I felt like doing it again I still want to do it again (but now I'm a bit afraid of injuring myself) suddenly I see her body inside the ocean that's it 🌊 that's where I wish I was now although I already went to far .. ... ...

I completely agree! I know how lucky I am to have this quality of life, and how hard I fight to manage it. It might look easy in this video but I still live with chronic pain and many chronic health issues (despite the surfing and the climbing and everything else!). Thanks for your considerate thoughts and for watching

Hey. Worth reaching out to Rhianna herself - instagram.com/rhiannamay_ 🙂