Rituximab infusion | What I packed + What Went Down! 

The rituximab is my savior actually 🙏 I thought I would never get better and would die of an infection. I was in hospital with 42 Celsius fever because of my open wounds all over my body inside out horrible 😫

So you are in a total remission for 10 years?

Ameen

best of luck and we’ll wishes for your infusion!

thank you for watching! 👏 oh wow you’re so strong! 48 hours! I’m so happy to hear that you’ve not had any major relapses since, that makes me very happy! thank you!

@@JasminesJourney Hi, I had my rituxmab infusion 3 years ago and I'm feeling great, no relapse. Thank you for sharing your videos.

@@iabili Hi Ian! thanks for your message, that’s great news to hear you’ve not had a relapse for 3 years- that’s really brilliant! There’s hope for us all!

Stay hopeful it will help

How did it go? Well?

thank you for watching! I really appreciate that too! oh wow that’s amazing and gives me so much hope!

you're really lucky. i've had so many infusions and they never work

you too! thank you for the support! keep well!

thank you! you too! you’re so strong 💪 all best to you and your warrior! 💚

Even my 2 year child is suffering from nephrotic

never too late! best of luck with your Rituximab, I hope everything goes well for you! glad you feel you can relate- you’re never alone in this journey!

@@JasminesJourney wow this means a lot.

hello! yay NS sisters! wow what a journey! I think it’s important to put this information out on video as I was definitely very scared before treatment but turns out everything was good 😌 big love your way!

Oh my gosh me too. I have mcd and im starting rituxamab in one week. I love her videos 🤍🤍

@@toriburt2582 what's your update? U good now?

thanks so much for you lovely comment and for subscribing! I was pretty sceptical but all turned out fine in the end! Still on prednisolone so only time will tell still if this treatment has somewhat ‘worked’ but all in all I feel great! all best for your treatment!

@@JasminesJourney Thanks for the reply 🙂 I’m also on Prednisone, but I’ve got a different condition to yourself. I was diagnosed with MS in 2013, but they no longer think it’s that, they think it’s now something called Neuromyelitis Optica (NMO) another sinister Auto Immune disease. Like yourself, I document my progress with videos on my channel. The hope is Rituximab will suppress my immune system and stop it from attacking my spinal cord, leading to reduced inflammation and hopefully some healing. A little bit of improved quality of life would be nice. I’m going to check out some more of your videos soon. And, I look forward to your next one. All the best.

Do you mind me asking what dosage of prednisolone you’re on? I’m currently down to 10mg! oh wow 😯 do you know if you’ll have to have a biopsy to determine what up? just subbed to your channel! I’m also hoping that Rituximab has worked out for me, but of course won’t know until I come off the prednisolone- it’s all a waiting game! Hope you’re keeping as well as can be, hopefully I can get some content up soon! 🙏😆

@@JasminesJourney Hi Jasmine .. I started Pred on a high dose of 40mg! This was back in Nov 2019 and this continued for about a year until I just got sick and tired of the side effects. I'm now down to 25mg, but I'm hoping to reduce this further once I've had the Rituximab in mid June. I won't be having a biopsy as they're pretty sure I have NMO. In fact, I spent 1hr 15mins in an MRI scanner Tuesday morning (18th May), the appointment came unexpected and out of the blue, so I'm interested to know the results. Thanks so much for the sub!! Yes indeed, it's all a waiting game isn't it. I understand Rituximab take a few weeks to kick in properly and be effective. Good to hear from you, take care.

You’ll be absolutely fine! You’re in safe hands 🙌 Wishing you the best for your treatment!

Hi Mau. I'm also diagnosed with Myositis! I just started Cellcept (Mycophenolate) and I'm on Prednisone. My doctor thinks Rituximab would help me a lot. Have you eventually tried it? If not, how are you coping atm?

@@waiyeeluvsluther Hey! I’ve been through the same medications as you, actually. Was taking Cellcept for a few months but it wasn’t enough to control my flare up. I did eventually try Rituximab (Rituxian) and I can confidently say it has yielded really great results. I took it back in August and it took about 3-4 months to fully take effect, but it has been worth the wait. My strength has greatly improved where I mostly had weakness and I’m able to do more physically demanding things. I’m still taking Methotrexate as a precaution to help keep the disease in remission for longer, but that’s about the only other medication I’m currently on. There haven’t been any side effects in my case, thankfully. Rtx does eliminate b-cells, so it makes you more vulnerable to some sickness. But it’s nothing that can’t be dealt with if you’re doing your best to take care of your health (eating well, good hygiene, seeing your drs when needed, resting, etc.) Again, I highly recommend it. I was desperate for anything that would work because I was in a really rough spot with my myositis. This seemed to do it for me and I would take it again if needed. If you’re down on your options and your medical team has advised that it’s safe for you to take Rtx, I would give it a go. I know this was a long post, but I hope it cleared some things up!

@@mau4604 can u share your number or mail...

@@mau4604 - Did you have any ILD as part of myositis? Did the medication improve your ILD symptoms?

@@mau4604 I hope this comment finds you well ❤. If you dont mind can you tell me your age and Is there any improvement in muscle strength after taking retuximab? Are you able to climb stairs and get up easily from chairs 🪑 .?(Since my father is suffering from same disease). Please reply it would be helpful for me

Their are any side effects of rituximab?

@@nishit1506 I did not have any bad side effects but there are some known. I started low dose and bumped it up after 2 months. You can't stop cold turkey either 9so I am told anyway)

Any updates?

@jasmine bolton flynn ---Hello. How are you now? I'm getting ready to take Rituximab for vasculitis. Did it help you? How many infusions did you need? How long did it take to work? What things got better? I care. Thank you for replying.

Any update?

Hi there - I have a similar medical issue. I am starting rituximab next week. If you don’t mind me asking - did the treatment help?

How are you now? I'm getting ready to take this infusion. I care. Did you have any problems? Did you improve? Do you have any advice? Thank you for a reply.

How did your treatment go in the end? Were you ok afterwards?

@@kirs1064 yes. Thanks for asking. No major side effects. However 6 months later I still haven't seen any improvement yet.

@@chrisoiivotos4626 is there any improvement in your nephrotic syndrome condition

How did you get on? I kinda opposite from you as in OLD but never the less still terrified of needles.

Be strong it will be helpful but you feel really tired for a while

I had my infusion last week and have another one next week . I am hoping to feel better . I was diagnosed with RA post delivery of my child.

@@Anshu1904 Unfortunately for me, the medication didn't work. I have since started a new one.

⁠@@Anshu1904I was diagnosed with lupus and RA and last week my doctor suggested me try Rituximab. How do you feel during and after treatment?

wishing you all the well wishes!

@JaiRocca ---How are you now? I'm going to take this infusion soon.

@@JasminesJourney Thank you for posting your videos which helps better understand our treatments.

How you now?

oh wow! incredible! so strong! my pleasure!

Hey are u ok...did u have rituxn

I has been diagnosed by multiple sclerosis for past 7 years dude

What happened with you? Are you fine now?

@@IitianIshant Yes, thanks to RITUXIMAB-Infusions Merry Christmas ☃️🎄❄️

oh wow sorry to hear that! I’m hoping next time i don’t have the same allergic reaction as last time!

Did they also stop your infusions to give you more preventative meds? How long did it last? Thank you! I have this on Monday so just looking how others did.

hello. I can’t really tell you if ‘it works’ or not. everyone is different and im actually still on steroids as steroids works for me (im storied sensitive) and also taking cyclosporin so for me, it’s a matter of time to know it has truly ‘worked’ or not. sorry that’s not much help but again, it’s a case by case situation.

@@JasminesJourney why both? I thought this was replaced for steroids.

@@tsehaymersha6547 because I’m still weaning off steroids- can’t just suddenly come off them 😊

Is like protein in the urine?

I will be having another round in April ☺️

@@JasminesJourney are you feeling better, any side effects?

@@vasilvasilev7938 been feeling better for a while now as I’m still on daily medication. No longer term side effects from rituximab for me.

@@JasminesJourney I'm glad for you, wish you luck with next doses!

Hi vendorxx.. How your sickness (pemphingus Vulgaris) right now.. Im a Pemphingus Vulgaris patient and now doctors gave me PredNilson and Imuran.. Its cleared at 1st stage.. But after i stop the medication cor two months its coming back.

Oh wow looks like we’re on the same boat!!! Pemphigus Vulgaris sucks. I’m getting my first rituximab infusions on March 13th, 2023 and I’m actually looking forward to it. Taking prednisone all the time also sucks.

@@juntakosan 🙋‍♀️Hi Jasmine from Austria 🇦🇹, Rituximab gives many patients worldwide great hope 🙏 Immun-Thrombopenia was diagnosed three months after my third COVID-vaccination in April 2022. Then my thrombos were only 55k. Since a half year I’m taking Prednisolon 2,5 mg daily which stabilized my thrombos at 50k. Additionally I have high Cardiolipid and Glucokorticoid Auto-immune-antibodies. Therefore and because Cortison is no permanent solution, I will start the Rituximab-therapy in one month. After the therapy I will report to you. ALL THE BEST TO ALL PATIENTS 🌸👏💐💗

I’m preparing to get my first rutiximab infusion for mucous membrane pemphigiod and I’m nervous. How has it worked for you?

@@juntakosan I’m preparing for my first rutiximab infusion for mucous membrane pemphigoid I’m nervous. How has it worked for you?