Sean lives in Ireland where he grew up spending many years caring for his father who has Huntington’s disease.
With the help of his Auntie Bernie, Sean tells us about the challenges of being a young carer, going through the testing process for Huntington’s, and living within a Huntington’s family unit. Please learn more about the experiences of people within Huntington's families by exploring the Family Matters website here: hdfamilymatters.com/
Please do get in touch with the Huntington's Disease Association of Ireland if this film has raised difficult issues for you and you feel you need to speak to somebody or if you want to help raise awareness for Huntington’s in Ireland. The Huntington's Disease Association of Ireland (part of the Huntington’s Disease Alliance UK and Ireland) does amazing work to promote awareness of Huntington’s disease and improve support for families. Find out more here: www.huntingtons.ie/
10 май 2021
