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SMA Type 3 - Living with SMA PODCAST #14 

Spinal Muscular Atrophy UK
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Welcome to the Living With SMA Podcast. Today SMA UK Host Steve Jones talks to Eden Kent and Josh Wintersgill about SMA Type 3.
Steve is 28 years of age, lives in London and currently works for the UK Government in the Civil Service, where he has worked in a number of different roles from EU Exit to Code Response and is now involved in the HMRC. Steve also has SMA Type 3.
Eden Kent is 21 years of age and is in her final year at the University of East Anglia studying Psychology and also has SMA Type3.
Josh Wintersgill is 28 years old, he was diagnosed with SMA at 18 months old. Josh graduated University in 2015 after studying IT, Management and Business. He worked for a couple of years in cyber security then founded Able Move 3 years ago, working closely within the aviation and travel industries.
Each of our guests today shares their own personal views and individual stories.
If you do have any questions for Steve, Eden, Josh and the team at SMA UK please email us at connections@smauk.org.uk
Twitter: / sma_uk_
Facebook: / spinalmuscul. .
Instagram: / sma_uk

Опубликовано:

 

10 фев 2022

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Комментарии : 6   
@iNireus
@iNireus 2 года назад
Loving listening to you three experiences, I’m an SMAIII aged 59 and it’s great to hear how things have changed. So good you all went university
@SpinalMuscularAtrophyUK
@SpinalMuscularAtrophyUK 2 года назад
Hi Mark, we really appreciate your comments. It's lovely to hear that people are enjoying the podcast. Thank you for your support
@matthewgreenough
@matthewgreenough 7 месяцев назад
Nice to hear the differences between the 3 of you all with sma type 3 I also have sma type 3 I am 49 year old and I feel lucky to be able to walk until I was 27.
@madisonblue8849
@madisonblue8849 Год назад
Thankyou for your podcasts, I really enjoyed watching you guys. I’m trying to learn as much as I can about SMA as my 2 year old daughter has recently been diagnosed. She can walk at the moment but falls often.
@faithheaven2409
@faithheaven2409 Год назад
Hey everyone
@Machinolstopipo
@Machinolstopipo 6 месяцев назад
risdaplam _ Spiranza ? what ist Good
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