Year 1996. Moving documentary 'Some Good Days' The story of a children's hospice. Little Bridge House, North Devon. Watch with caution as some parts are upsetting. Help support www.chsw.org.u...
I think this is a wonderful idea. Children do not belong in an adult hospice. Its a whole different family dynamic when a child is dying. Bravo to the people who work at this hospice providing support to these families.
szqsk8 I'm not sure how much the government should get involved with these centers. You have all kinds of different rules and regulations that if it is privately funded they may not have to deal with the government paper work. I do think the government should help for some of the cost.
I worked on a pediatric oncology ward for several years. I learned so much from the children there that made me really grow up. These children are fighters and so are those that provide care for them. They are excellent teachers and wise far too far beyond their age. As they progressed through their treatments they truly understood what they were dealing with and were very matter of fact about their health. I was told my more than a few that they were being brave because they knew their mommies and daddies were afraid of the truth. You get terminal children at the age of six or seven telling you that and it gives you a much clearer view of your world. These children are not only angels but are hero's. Each and every one of them.
AS A RN THIS WOULD BE A WONDERFUL PLACE TO WORK..I BELIEVE IN DEATH WITH DIGNITY AND I THINK EACH PERSON HAS A RIGHT TO IT..THESE CHILDREN ARENT SUFFERING HERE THEY ARE THRIVING
why do you call it a foolish idea..one day you might be the one that has a terminal illness and would like to use that law, I think when you vote or when you renew your drivers license that each individual should be able to decide their own way of dying..if you can be an organ donor on your drivers license why cant they just add death with dignity onto it..its nobody elses business but mine and my physicians..i don't want to suffer or be a burden on someone else, I don't want to die in a nursing home or be incontinent of bowel and bladder, or I have to be fed pureed food by someone else, or get huge bed sores, you call it foolish and obviously you don't believe in it and nobody is making you do it but I don't want you taking it from me and I can tell you if I was diagnosed with a terminal illness I will be moving to a state or a country that allows it
@@SmithRN-rg9nh why not take it in your own hands then . Why make a dr do it . You have a right to death. U can refuse treatment and resuscitation. U dont have a right to make someone else kill you . Why should death be dignified. Is birth dignified? Death is death. It's natural. Humans arrogance will never cease to amaze me .
Kerry Harrington sorry for the loss of your precious children. May God strengthen and comfort you and your family. May the hope of one day seeing them again encourage you. music.ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-hU5B0R-fBOY.html
What a wonderful place for the children & their families to go. Even if just for some emotional rest. Children don't belong in a adult hospice. Everyone (Staff) sounds so caring & understanding. I'm not sure we have one of these in America. God bless you all!
Us _adults_ are scared when we're told that we're going to die soon because of some disease. I don't even want to think how scared they would be, especially the ones who are a bit older, like 9-12, and thus have a better understanding of what death really is, the permanence and finality of it. And the poor parents, who would of course be terrified and heartbroken, yet have to push those feelings way down for the moment and be strong for their dying babies, not showing the grief they would be experiencing. Lord God, be with each and every one of them.
@@carina_loves_cats yes I agree! it's not that you want to be sad all the time BUT it's cruel to just pretend there aren't people suffering horribly in the world better to have compassion for them then to just ignore there pain and pretend it's not happening
Jill Farwell, the founder of this hospice (alongside her husband Eddie) sadly passed away from cancer in 2004. May she rest in peace, alongside the children she showed so much empathy for.
No one is dying for you. They are already going to die but their liver won’t go to waste. It is not your fault. You didn’t kill the person who gave/gives you a liver. I know you know this but maybe it’ll be good to hear it from someone else.
JJ R I wish everyone thought like you. I cannot tell you how many times I've read "why waste your money" or msgs of disgust on my friends' pages, directed at the parents and kiddos. My daughter's old insurance rep once asked her colleagues, "why buy one [in regards to a medical stroller aka wheelchair] if she is going to be dead soon anyways?" Also, "If I were her mom I wouldn't be taking her (or traveling with her)". Something like that. Calling me either selfish or irresponsible. Granted I was flying her to a medical conference, at 12 mos old, to see how to save her or give her the best fighting chance possible. The woman was a disgusting moron, and yes I blocked her from working on my child's case. Without all the knowledge we gained or the connections we made or the intervention from the top doctors in the world at the conference, my daughter would have survived to maybe 14 mos old max. She is now 8 1/4 yrs old.
I'm thankful I live in Canada and we have socialized medicine ❤️ We all put in the pot and everyone benefits when they need care. I wouldn't have it any other way.
When my Dad was diagnosed with terminal cancer 3 years ago, he and my Mom broke the news to me and my brother and I screamed out "Why?! Why you?!? I will never forget his words...he said, "Why not me?!? Why do these little children have to have it? I'm 65, I've lived a good life.." He died 15 months after his diagnosis but I will NEVER forget those words...he was right...why these little children?
I was a hospice nurse, occasionally had children and eventually I burned out, the respect I have for those who persevere in this profession is immeasurable, I wish I had the strength to return 💔
My sister went to a children's hospice for 12 years. It was just like a holiday and it meant that my parents could spend time with me. The staff took me and my sister out on trips, they visited us when my sister was in hospital. The best memories I have of us as a family with my sister are all at the hospice. When my sister was in intensive care and it was very obvious she wouldn't survive it, she was transferred to the hospice, had her ventilator turned off and she died the next day. The dignity and respect that they gave my sister throughout was something that you'd never get in hospital, and the support that they gave myself and my parents made everything easier. They helped us to arrange the funeral, they gave us information about who we needed to notify, registering the death, about sorting benefits, etc; I don't know what we would've done without their support. Everyone thinks that children's hospices are these depressing places where kids go to die, and yes that happens there, but that side is hidden from the day to day life of the hospice where kids are having fun on respite; you know it happens, but it's tucked away, away from the main bit of the house so you don't see it unless it's your relative that's died.
That was absolutely beautifully put. Losing a loved one is just jarring- it shatters and fragments your world. Especially somebody so little.💔 My genuine condolences
@@greenspark101 Thank you. She was only 15, although mentally 2-3. I promised to never let her life be forgotten. She loved life and was always happy. ❤️
America needs to their $h**t together and start having care homes like this for children all around the country. It’s insane that families have to choose paying their mortgage and buying groceries for their families or getting their dying children the right medical care they need. They shouldn’t have to deal with the stress of having to choose! They are going through enough as it is!!
@@livhines5629 taxes go up and down all the time, imagine having to choose between dying and being homeless, starving to death. every other first world country has free healthcare, it is human right to be cared for. look what happened to this girl...
@malcolm caden yeah my mom and dad have to pay tons of money just to find out if im gonna die by 48 and spend money on therapy so I have less pain till I die or if I get to live a long life and pay even more on therapy 😅
@malcolm caden don't bother. This country is finished with logic, science, or reason. We designed the systems we use and then complained that they don't work right. We are taught growing up that this is "the greatest country in the world" and if you so much as suggest that another country has anything better or more efficient you're unAmerican. We've gotten exactly what we fucking deserve for the last four years.
Jenny, such a pretty young lady. All of these children are beautiful. I cannot even imagine. Blessings to all of these families and the families to come.
A little over 1month ago , I was diagnosed with terminal cancer. We were all very surprised because I’m still fairly you and up to a year ago I’ve felt, fine, just my normal happy go lucky, bubbly young woman. I am 36years old, I was the youngest person in our immediate family until my little nephew was born Jan 31, 2018. I still feel like the youngest for my parents. My parents are older than most of peers, and because I’m so big (I have lost a good amount weight, so that’s good), so now I’m living in a long care facility in hospice program, there are not many on hospice her, most live here in retirement, or have been injured and are in the rehabilitation program. I don’t know how long I have left on Earth, but I take one day at a time and just try to be positive, and still treat others the way always have, treat other how you want to be treated (the golden Rule). I have some good days and some bad days, but it’s ok.
Can you believe she was diagnosed ON THE DAY Little Bridge House opened its doors? Yet she still had the strength to do all we saw in the video AND carry on for another eight years (despite losing Tom 2 years after this video was made). Incredible woman.
7.756.935 he was profiled in the British media as an adult. Apparently he had a brain tumor that damaged the part of his brain that regulates hunger. So he was hungry like the wolf all the time and never satisfied. When he was profiled he was trying to get into a group home for people with Prader Willi Syndrome. He insisted if someone else weren’t in control he’d eat himself to death
I'm so sorry for your loss. I to lost a son he was adult 36 years old. But the loss of a child no matter their age is so hard. But so sad your son was so so young. Prayers for you.
How these folks can do this work is amazing. I'm6'3 230lb truck driver tough guy type and I'm weeping at the thought of having one of our daughters in a place to make them comfortable before death. Bless there work
I understand. I'm a wannabe tough gal (kind of...lol) and ride my Harley for charity events to do with children whenever I can. I get so weepy watching anything to do with children and animals.
I guess everyone is strong in different ways, and it's ok. Weakness and love is what makes us human, you should be proud for feeling so that much love for you daughters :) they're in good hands with you
Jenny, such a brave girl, to choose to die. I can't even begin to imagine how hard that must be and yet she was so calm and certain about it. And the guy with the x-men shirt, such a lovable, sweet character. It's so unfair that children have to go through this. Respect for that hospice, they provide a happy and peaceful place when it's really needed.
You would be surprised what a kid knows. Perhaps she just saw that her liver wouldn't get better, no matter how many times she got a transplant, or perhaps she actually understands. Don't wave off a child's decisions just because of their age. Sometimes, they know more than you ever could.
Native But Jesus called the children to him and said, "Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these.
NativePrairieWolf I'm sure a 14yr old understands death just as much as an adult. The only difference is death is usually harder for a child to accept as a reality..I'm sure this child had more time than most adults to accept this reality
Andrea King you can find a Bible verse to fit any narritive - that's the whole point of the book to give people 'answers' who can't find them within themselves - or who are easily manipulated Death with dignity like said by the families should be of universal importance. Let's leave the Bible out of it, religious voters serve something but it's not a God or people in pain. They are the reason there is not a universal healthcare system -better everyone suffer rather than those without means have access to family planning. On the backs of these poor brave children and those like them.
4 minutes in, and im already tearing up, the little girl singing happy birthday as we find out she died soon after is not a good scene to watch at 6 am
all these workers are so compassionate and kind ...it breaks my heart to see all these children but this is one of the most touching videos i have seen on yt thanks for sharing this
That little Jenny touched my heart. Her sweet demeanor and just so precious as all the children are. Amazing place, amazing staff. It takes a special kind of person to do this work,
I just sent this video to my boyfriend. I asked him to watch the video and to please realize how lucky we are to have our health. We have something these kids don't. Our health and yet we choose to be unhappy we choose to do drugs we choose to be selfish. I'm so disappointed in myself. God please forgive me for I have sinned. I repent from my sins. God bless everyone.
Daniel O’leary Williams was a beautiful soul. I could tell that just from the first two minutes of hearing him talk. If he’s gone now, may God rest his soul ❤️ As well as all other the other children blessed to take their last breath in this wonderful place. Thank you for sharing!
Apparently he's still alive! From what I understand by other comments, he has to use a wheelchair to ambulate, but he's still kicking it. AND he's MY AGE! What a surprise!
the dad asking his wife so nicely and excitedly if he could go down the pub really made me cry. It hit home how strong and amazing these people are, and how they are gasping for some normality amidst all the grief they must feel constantly
They reminded me of two little boys- so excited to go out and about for a few hours, after getting ‘permission’ (and money!). I found it absolutely adorable. There are so many things we don’t realize we take for granted. So many, many things.
We lost my sister to leukemia in 1989 when she was 4. Places like this is a godsend for the family. No child should have to suffer. My heart breaks for these little kids and their parents.
I did the same thing when i was pregnant. Hell its even worse now that my daughter is 2 around the age of these kids in the video and im still watching making myself sad.
Thank God Jill and Eddie had one surviving daughter, Lizzy, who is continuing in her parents' footsteps now working with their hospices. Jill passed away in 2004, unfortunately.
You dedicated 4 yrs to something truly amazing and needed! I can barely get through watching this video so working a day in children’s hospice is something I can’t fathom, working 4 yrs?! Your remarkable!
This is not fair, children shouldn't be dealing with debilitating diseases 😡 it breaks my heart. God bless all you little angels & their family along with wonderful nursing staff & doctors
My god, if the US military cut their spending on war itself in half and put it into caring for their ill and injured veterans alone that would be a major step.
At 11:58, they're playing Sonic 2 and they're at the Mystic Cave Zone. Awesome game, awesome level, awesome music in that level and in the whole game. No wonder those beautiful kids are excited. Also, this is a remarkable documentary. It's extremely touching and shows the best in human nature.
This reminds me of the Ronald McDonald house in Albany. I spent a couple weeks there when I was 6 because my younger sister was hospitalized due to complications from pneumonia. You'd expect a place that families go to be closer to their sick and possibly dying children would have a very depressing atmosphere, but that was not the case at all. The staff there were very kind and supportive, and there was an air of solidarity among the parents as well.
Was this the Ronald McDonald house in Albany NY? I had to go there my daughter was born premature just 4 pounds and needed the extra support that the local hospitial could give I was in Green Island at the time but I couldn't be far from Albany med due to the possibility of her heart stopping and a parent needs to be there ASAP And you are 100% right they were so nice and at the floor level by the premature unit there is a Ronald McDonald room with food drinks and a huge toy room and TV and phone ot was great what they do. Did your sister get better? I sure hope so,
A particularly toxic friend called as I was watching this, beginning the call with his usual "I'm so depressed" greeting, which meant he was about to launch into yet another delighted rendition of that day's petty annoyances, most of which, as experience has shown me, he will have forgotten about by tomorrow morning. I could tell he was annoyed when I quickly cut him off and I'm pretty sure that I won't be calling him back later. Life's too short and precious to allow miserable narcissists to steal even a moment.
When my brother was 15 he had a marrow bone transplant and so he spent some time living in a hospice like this as well as in the hospital, he was very close to dying a few times but luckily he survived and is now alive and well. What I remember the most is going to visit him and seeing so many little kids there, I was little as well so I didn't quite get the whole situation but watching this video made me think of them. So heartbreaking, God bless them and their families.
I just Googled him and holy crap, he's my age! Wow, that really brings things home to me. Anyway, he was the perfect tour guide for the facility during this documentary and I'm so glad they got him involved with things at the facility.
My brother was in a special program where he was a sort of big brother to a disabled child he was partnered with, his "little brother" had hurler syndrome like Emily, I think he is still alive, which would mean he is almost 14 now, pretty unheard of. But last time I saw him he didn't look so good :/ these poor, sweet, innocent children, the world is so unfair.
Children should never die before their parents That's what I would tell God if I saw him My heart goes out to all the families that have dealt with this
I'm crying, but I'm smiling.... I'm crying at the thought of the emotional pain all these parents went through ( and still go through cuz you never completely heal from losing a child) but smiling at all the love , compassion and dignity this place gave these beautiful children
Narcoleptic Mama *At least you will be with your child until the end in a beautiful caring place surrounded by other parents who goes through the same hell, it must be very relieving to support each other with people who know how you are feeling. It's a place of love.*
i pray these kids are still living or at least got a little longer in life than expected. it's weird to wonder what the families must be doing now and what continued on in the house after this documentary :( i couldn't even imagine what this must feel like, but know you're not alone, but stronger than anyone else could ever be
I know this documentary was shot in 1995 or 1996 because at 12:27 you can see a poster of Mariah Carey's Daydream album on the wall. The funny thing is, I was thinking of the song, "One Sweet Day" as I watched this! What a coincidence!!!!!
Two words that should never go together! I've got a friend who lost a child to cancer when she was 8. One of the hardest things a parent can do is say "yes" when a kid asks, "Am I going to die?" Personally I have no idea how I could do that myself.
Kids are so precious and watching these Documentries I find really hard to do yet these kids deserved have as much of a normal life as possible. With each case I grieve for the kids and families that ❤️ Them so 👼👼👼👼👼
I was only 18 when my dad died at age 47 of terminal lung cancer. We only learned of his condition 12 months before his death. It was the most devastating period of my life and we watched him deteriorate before our eyes until he just stopped breathing. Just to make matters worse, he died on his 25th wedding anniversary. Its been over 50 years but I still have trouble talking about him.
For part of my nursing career I was a hospice case manager, mostly for adults, in Alaska. The population that I worked with were mostly indigent people, who were younger, from late teens to 40's. I loved that work, I loved that population. I learned so much about human life, myself, love and respect. This hospice is amazing and I am so delighted with the young tour guide. ❤
As a flight medic II hope this finds everyone happy and healthy.... kids ALWAYS got treated with nothing but TLC in my rig....They deserve it.... i am under the care of hospice out of Hartford Hospital as we speak and I will never forget my nurses whom has played a part in my continuos recovery and they bring us joy and happiness.....So kids? Take care....And know i love you all....
I agree and Bless his heart when he calls the others "Children" this place looks spectacular,I am dying I have terminal Cancer and I also have a new baby ,so I'm looking at Death full on.We need to live each day to its fullest ,something that I never did before my diagnosis.After watching this I almost wish that I was a child again ,to receive such wonderful care in a loving environment,sheer bliss.
Marta Motevassel sometimes the cancer isn’t detected easily, the baby could be a few months old and the cancer only just diagnosed - i doubt she would have done it on purpose, think before you comment because comments like that are unnecessary
God bless these people! Boy, do they all have a special place in heaven or what! I so wish places like this existed all over the world, and not just for kids. Adult hospices are awful -- even the top notch ones.
Alice H. I actually work at an adult hospice and it's not horrible, it's a beautiful building there's nice activities for the people and most of the family's and patient's love it.
I was with my grandfather when he died in hospice in February... It's of course not as cheerful, because most people really only go there to die, and not to take a little weight of their parents shoulders (of course that also a point, but most people in Germany only go on hospice when they are about to die in the next weeks. That said, the hospice my grandpa died in was wonderful. Especially the people working there. Very heartfelt and empathetic. The room was also very peaceful. So I just wouldn't say they are all horrible... Dying in a hospital bed is probably more horrible...
RIP to all these kids. This was made in 1996 and I'm very sure most if not ALL has passed away by now. even our little tour guide. They were all such cute and sweet kids. May they all rest in eternity now with Jesus. now they have no more pain or sickness. They are playing in the most soft greenest grass we ever seen. They are living still just they are in heaven and you cant see them right now but you will see them again, and what a great day that will be. To these brave parents you did what you could and you all are wonderful parents. God Bess all these parents and the donors that make this hospice possible and the volunteers that come in and hep cook and clean and stay up all night with these kids that cant sleep God Bless you. AMEN
Who could dislike this angelic video smh wish it showed all the names of those who hit the dislike button..God bless all the beautiful precious kids in hospice
Selena Grinage they probably dislike the idea of kids being sick, and they wish that the hospice wasn’t needed.And not the actual video. That happens a lot on these types of videos. But i agree with you it’s a beautiful place. So caring thoughtful and kind.
1996… Jenny was 14, would be about 40 now. She looks like she’s no older than 10. She stuck with me the most. Those doe eyes. I wish she had survived somehow & she’s out there but I know that’s not the case.
It’s so sweet to watch the life and joy breathed back into these parents, you almost get a glimpse of who they used to be before they were worried and sad all the time
There needs to be many many more of these facilities for children. I've stayed in a Ronald McDonald house in Nashville Tennessee and they're wonderful places as well.
This is an AWESOME videos. How WONDERFUL to have a place like this where parents can go and relate to others going through the same things in life. We need more places like this for parents and the children going through these devastating times. 💕
Thank God for giving me 2 healthy babys and I pray they will continue to stay healthy. These parents are Angel's and I dont know how they do it. I cqnt imagine wanting to make your child better and not being able to. No one can even imagine what they are going thru and the babies are so strong its incredible poor babies. Pray for all dealing with sick children and also sick parents!
+oksdhs61 I get that you're trying to be sympathetic but I don't understand comments like this. Why do you ask god to send them to heaven, shouldn't that be be automatic, are you saying he might send an innocent child to hell? And why did he send them to hell on earth and cause them so much suffering?
Privacy Lover, You make no sense. Why are you asking him/her questions that, as a mere human, he/she does not have the answers to? Did I miss where we were in a Philosophy or World Religion class? More importantly, why are you assuming that he/she believes any of the things you've asserted? Those ideas came out of your head and were never actually expressed by this person. He/she simply expressed a hopeful sentiment for these children rooted in his/her own faith. Nothing more, nothing less.
Amazing people, are the ones who can watch children die. My earliest memory is of my little brother Jeremy, suffering and dying from a rare form of leukemia. I was 5 at the time, and he died one week before turning 3 years old and in mother's day in our home. I could never forget the horror, pain and sinking feeling that I felt the night he died. My dad running screaming pulling his hair, my mom throwing up as she continued to hold little Jeremy's lifeless limp and battered body. Although home should be the first place tried for keeping a dying child, if some parents don't have the gull and strength to overcome and deal with their dying child's suffering, a child hospice should be available. I just turned 40 this year, and little jeremys suffering as well as my parents, goes through mind daily. To this day, I find it difficult to find happiness, without feeling guilty of little Jeremy's voice saying, "I want to go to heaven, but I don't want to leave mommy and daddy forever."
Hospice helped my mom thru my dads empysema his 3 last days he went into a coma in his recliner. she shaved him while he was in his coma. I love every one that is hopspice people that care is my heart to sick kids even when I not have my own. I want see sick kids as the truly make me human. I love them all.
To learn how to handle it better... ? IDK. In my culture, death is a part of life and I feel free to talk about my deceased parents without bringing people down or feeling like I am, in any case. My dad was in a hospice the last days of his life and it was an amazing place, and I wish I had had that opportunity with my mom. Most contemporary hospices are like a home away from home for the family members, which helps them just as much as they help the patients.
@@ladyi7609 Thanks for sharing your views and your story. My sister volunteered at a hospice at the age of 18 for a long time (I don't know how she coped with it all so strongly..) I was also wondering what your culture is? I too have a long way to go when it comes to letting go of those who passed tragically, but it's okay
