I feel this... been taking antihistamines for 4 days straight, twice daily. Its like a new life. Honestly. Doctors NEED to wake up to so much, but also this condition.
I am in Australia and have been suffering terribly for 3 years. I have finally worked out I have MCAS but same problem here with not being believed- even by specialist immunologists! I too have spent thousands with no answer as yet. Slowly getting to the right people for a diagnosis. We have a support group The Australian Mastocytosis Society TAMS which I've just joined. Support is so essential for this tough tough journey.