Hi friends! Shane here! I just wanted to quick put up some reflections on my day today. I got my 7th Spinraza injection and it was quite a long day! I’m so thankful for Hannah and Liz, for keeping me in good spirits during these challenging days. Thank you!
Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon: / squirmyandgrubs
Thank you SO much!
You can follow us on Instagram at:
Shane: / shaneburcaw
Hannah: / hannahayl
SUBSCRIBE for more! 👉 / squirmyandg. .
Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: / pinkietoons
Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.
Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
25 ноя 2018
