Spinraza dose #6 side effects

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I mentioned this breifly in some other videos, but here is the full scoop of my experience after Spinraza dose #6.
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Опубликовано:

28 июл 2018

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Комментарии : 8

@user-fc1tn4po8q 6 лет назад

Hello Courtney. My name is Julia. I'm from Russia. I have the same SMA 3 type. I look at you and admire you, you have a very good state of health. Well done. I'm 35 and I've been 10 years since I'm not walking. Tell me what? the main thing in your treatment, gymnastics, medicines ....

@CourtneyFrazer 6 лет назад

Юлия Сергеева Hi Julia, it's nice to meet you! So the main thing is Spinraza, the medicine that was recently approved for SMA. I also was actively involved in a lot of sports growing up, before I knew I had SMA. Now, I try to stretch every day if nothing else. I also try to workout in one way or another at least once a week. I do a lot of yoga these days.

@angelpearl5410 4 года назад

Hello i really like your personality so iam type 3 and I did spinraza on 11 of September it was my first dose but I have so much pain was it you case too ??

@CourtneyFrazer 4 года назад

Hi Asma. Congratulations on receiving Spinraza! Oh no, I'm sorry to hear about your pain! The pain from Spinraza? Is it your back where the injection site is? I learned to stay on my side and not lie on my back after a dose. Ice on the back also helps. Or do you have a headache?

@angelpearl5410 4 года назад

Courtney Frazer Hello yes I have pain on my spinal and also headache since 4 days no thing have changed and my next dose gona be on 25 so iam wondering it was your case first time you did spinraza?? How was your experience with the first dose .?? You giving me so positive things thank you