Thank you, Matt. Your honesty in the face of this horrible disease and your willingness to share your personal journey is beyond admirable. Please continue your videos.
Do you have swallowing issues? And pain sitting up? I am bedbound. Was diagnosed 15 years ago with severe RA but none of the biological meds worked. I pretty much became paralysed from waist down 2 years ago. I have gradually had symptoms like you, lots of falls , have drop foot. Haven’t been able to do stairs for years, fatigue is unbelievable and I have been stuck in bed like sleep paralysis a lot. My husband is my carer and I have 2 other carers. I have a permanent urinary catheter. My weakness is worse on the left side. I am 49 female, memory loss. But diagnosed with fnd at hospital after 21 day stay having 2 seizures a day and unable to walk . I really feel my diagnosis is wrong. I am on high dose prescribed cbd oil in Australia. Never had a spinal tap. I have trouble breathing and insomnia. Sorry this is a lot. Just feel I am misdiagnosed. I have kyphosis and scoliosis. You are so positive. I am in my bed 99% of my life it’s hard. I don’t know what the future holds. I don’t have private insurance took 2 years after long hospital stay to see neurologist again. I was given B12 shots every day in hospital then none. Was supposed to get them every 3 months but I am affected cognitively especially after seizures and can’t talk sometimes for days after and get confused so I forgot to get them. And my dr didn’t send me reminders or anything even though I saw her or had phone consultations every week. My eyes are very sensitive to light and my vision is affected. I just feel like no one believes me. I was a very independent, active person and get very frustrated and sad. I have lost a lot , the hospital staff were cruel and I was assaulted by nurses and my daughters were lied to about my diagnosis and haven’t spoken to me since, I have missed out on so many memories with them and their babies 1 and 2. Sorry for the life story but I related to everything you went through. All the best. Love your positivity.
Hi Susan I am an Aussie waiting on diagnosis of MS after being told I have Optic Neuritis and severe body pain and weakness. I originally went through Private specialist but ran out of money. Get your GP to refer you to the public hospital Neurologist and other specialists. All my scans and MRI's have all been through the public system. Can you try getting a Concession card through Centrelink? You may also be able to access disability pension through Centrelink also. Hope this information helps you. Amber
@@chicfromthesticks8900 done all of above. 2 years between my public neurology hospital appointments. I have NDIS too. Live in a high needs sda house. I was diagnosed with fnd.
Thank you for this story - I know this was 2 years ago but somehow I just found this video now. I have been struggling for 7 years and so many things you have said I have been having problems with - with no answers. How long did it take you to get the MS diagnosis after symptoms started?
I'm very close to a family member with Ms, her mother has it also. Her mother was bed bound, she took Elk antlers shaving's and she regained her walking. It must be a trusted source that does it proper, this is true research it please
Yeah I am sure this good man has heard all those snake oil pitches about what works for me or heals ms. Unless you have MS you will never understand what it's like. Your healthy be thankful .
@@harrybowlby1293 I'm sorry I didn't mean to offend you, I also have my share of trials in health. I'm very aware of scams & think there is a special place in hell for people who prey on the ill. This was a very close family member who was bedridden, had to have a nurse to help daily and she is walking now because she had access to authentic elk antler shavings. I wouldn't say this if it wasn't true and have been taken advantage of myself. That's why I said research it and may God bless you and this nice man
Thank you for sharing your story. However, I totally disagree with you about telling people at work. I strongly recommend dealing with your HR department and not your immediate supervisor. Or, you can disclose to the both of them at the same time. You have cheated yourself out of a lot of protections you are guaranteed by law, by not being upfront and honest in the very beginning. I also have received advice from a number of lawyers that state this is the best way to handle your diagnosis
