I just wanted to clarify - I am doing so much better now (this was two weeks ago) and am long off of pain medication. They did give me some more medication to make it through the weekend, which is all I needed it for. By Monday I was done with it. I wanted to show the importance of adequate pain management for patients in need. I recognize the abuse issue, but unfortunately it has left post-op patients and chronic pain patients to suffer.
Thank you for bringing this problem to light, it’s absolutely criminal what they are doing with pain meds and people who are suffering . I’m also in pa and it’s bad here but even much worse in other states. I know and follow people with cancer and debilitating illnesses and can’t get enough or even any😞 I wish there was something we could do to help and I’m so happy they gave you enough to make it through the weekend. That earthquake was crazy for us right😵💫😳 Im rooting for you Maggie it’s tough but you so deserve to be a mom and a wonderful mom you’ll be❤❤❤ 🤞🤞🤞
You are incredible and courageous and strong. I am in the boat with you and fully get it and agree .❤️🩹 Sending so much continuing love, light and healing. Hugs, Kimberly.
Maggie, you make such a valid point about appropriate and adequate pain management. I’m over doctors who refuse to use opioid pain meds when I’m suffering. Just had major foot surgery (but have had 3 c sections so I get your pain). Nonetheless, I had a discussion with him prior to surgery about what I wanted prescribed. Fortunately, he agreed with me but in a case of emergency surgery, there’s no time for that discussion. NOBODY should have to suffer like you and thousands of others because a doctor decides what will work for your body. Even the pain management doctors only want their patients taking Tylenol. Bless your heart! I’m so glad you’re feeling better now.
It's completely unacceptable that doctors leave their patients in pain after having major surgery laws need to change. My heart goes out to you sweetheart ❤
Eight 5mg pills are not enough. I leave the hospital ASAP after all my surgeries, by choice. I'm begging to leave the moment I wake from surgery, so I can't complain about my experiences but when my mother was dying of stage 4 terminal lung and brain cancer, we had to outright beg for medications. They are just so afraid to give anything due to drs being blamed for so many individuals abusing them. We were first told no by her doctor. Neither she, nor anyone in our family, have ever had an issue with addiction. The dr, a freaking oncologist, told us he wanted to wait as long as possible due to the dangers of becoming addicted if she took what we asked for, a pain medication and an anxiety med because knowing you are dying causes extreme anxiety. Addiction? She was bedridden and terminal. If she became addicted before she died, so what? No one should die in pain and in fear. It took her hospice nurses helping us fight until she was finally given Morphine and Xanax, dying just 5 weeks later. The pendulum has swung way too far in the other direction where those in true need are now not getting deserved and needed pain relief. 😥😥
Same thing happened to my mom before she died. The dr was concerned about addiction. In a hospice patient? My mom and I were both like “Bring on the drug addiction then!” I told them to keep her as high as possible so she didn’t suffer. And they actually listened. Probably because they had my signature telling them to do it, so their butts were covered.
My mom has a crushed spine (spinal fusion), nerve damage pain (neuropathy), and on a slew of heart and blood medication. She only gets Tylenol 3 times a day. She can't do physical therapy. She was finally improved for back injections for pain!
Sadly, pain management these days is a joke. I’m a recently retired nurse with an end stage disease, and a back that is not operable, with painful degeneration. The amount of difficulty I have getting pain medication is ridiculous. I’m treated worse than the worst addict that rolls in from off the streets. I took the smallest dose of hydrocodone for 7 years, no change. When I asked for one dose extra if needed, it was absolutely awful. It took family members intervention to get this done, and now I’m treated worse. As soon as I’m able, I’ll go on hospice.
@sarah Sullivan. I am so sad for you. I know there is a need to watch for abuse but the government is making a mess of legitimate users lives. I think that also affects suicide numbers as well.
Hey there fellow retired RN! I suddenly had to retire early at age 55 (in 2015) & found myself on permanent disability. There was a time shortly thereafter (in 2015/2106), that I was sent to a pain clinic. They were pushing Oxy on me, and in massive quantities. Every time I went back they'd prepare to give me more, and I would say I still had some and they'd still give me the Rx. Then things change throughout the country and all of that stopped. Then when I needed it, I couldn't get it - or at least not enough - just 7 days worth. 🤦♀ I now have several additional diagnoses and with that came a hypersensitivity to meds. If I ever develop anything that requires what I already know my body can't handle (such as even the lowest dose Methotrexate or Levflunomide) - I will not be accepting the treatment plan. I was literally in a fetal position in bed for 6 months on treatment, and couldn't even swallow my own spit. I will NEVER go through that again. Thinking of you during these difficult times. Vent any time.....💕
C-section mama tip: roll up a bath towel and press it up against your abdomen when walking, sneezing, coughing. Helps tremendously with countering the pressure 😊❤ I know this might be a little late to help so much now based on the timeline, but hopefully it can help you or someone in the future. Edit to add: I am so sorry you had to go through this Maggie. My heart goes out to you. xoxo
@@LetsTalkIBDanother c-section experience tip, although I know its probably too late now but may help others, use a puffy maternity pad once you’ve taken your dressing off across your wound with the absorbent side facing the wound. It helps keep it dry and also pads it from being bumped or rubbing against clothing. I’m so sorry this happened to you Maggie. I also went through a lot of fertility troubles, it’s a heartbreaking journey and I do underestimated the mental toll it would take beforehand. I wish you and Zak all the best ❤️
I cannot believe hospitals don’t wrap your stomachs? After both of mine I was wrapped with a Velcro stomach sucker thing before I woke up. When I removed this to shower I felt horrific, moment it was on I didn’t even need the narcotics.
My husband just had a total knee replacement and my husband got enough pain meds for 3 days after a 12 hour discharge after surgery. They were also 5 mg oxys. He called and told the doctor how much pain he was in and they told him to go to the ER if he was in pain they could not give any more pain meds. He’s been miserable. He did go to the ER and got relief for 6-8 hours V and they sent him home and told him to take Tylenol. It’s so sad how they allowed to make people suffer after surgeries. I’m glad you are feeling a bit better Maggie….sending love and hugs❤
Had a knee replacement 10 years ago here in the uk was expected to be in hospital for 2 days but stayed in for 5 and was taking oral morphine and was sent home with it but only took it for a further day because I was worried about becoming reliant though the pain was for me never really bad I moved around the hospital ward on crutches and once home did exercises 4 hourly for months also did weekly rehab for 6 weeks and 1month after the op was using one crutch .
I can not believe that you were prescribed so little pain medication. This medical system has really swung too far from using pain meds especially with such quick discharges. My heart goes out to you having to go through this.
I'm stunned you were released this early after major surgery and then given inadequate pain management. Women's pain is often disregarded by the medical profession. Study upon study showing that sadly. So glad you are feeling much better. You are a warrior queen. ❤
As a Pharmacy Tech for 27 years, that is terrible!! The least I've ever seen is 10-12. You had surgery. Major surgery. I'm so sorry that happened to you ❤❤
Oh gosh Maggie. That was crazy with the inadequate amount of pain meds. There was a law passed last fall in PA that put even more restrictions on controlled substances. I am not sure if they lowered the amount of pain meds given at discharge from surgeries, but that is scary. I am on a controlled substance, and I have to jump through hoops to get it refilled at times - I am talking I never have gone over the dosage. The one thing the law did was prevent transfers from pharmacies of controlled substances. I was staying in Pittsburgh and wanted my meds transferred to a pharmacy that was owned by the same company, and they said they were no longer allowed to transfer from one store to another due to the new restrictions. I have had surgery where I did not get an adequate amount of pain medication (actually the dosage was low). It sucked and I was up crying all night. Having to fight for that stuff is a pain when you are already in pain physically. I am so glad you are on the mend now.
The amount of chronic pain warriors in the comment section is staggering. I’ve been on a controlled substance for chronic pain for about 20 years. I too have felt the noose tightening around narcotic use for chronic pain. Finding a sympathetic doctor is one thing; living in a state that allows your doctor to treat you appropriately is another. For reference, I live in AZ and have the best doctor. Living with a chronic illness is depressing, but we do the best we can, folks. One day at a time. ❤
I live about 50 miles south east of Pittsburgh Pennsylvania. I am so sorry you had such a hard time with meds. I had an extremely low dose of a med for anxiety/insomnia and it’s a bear getting it filled since it’s a controlled substance as well. I only take it maybe once a week but they are so careful filling scripts anymore. You have to jump through hoops just to help yourself.
OMG I had a C-Section and my 1st bottle of Tylox had 30 in it. That was in 1997 so I don't recall the milligrams but you say that you only had 8!!??!!! That's stupid for a doctor to think that was enough. So sorry
Never heard od doctors waiting to see if an etopic pregnancy would rupture. Usually operate immediatef. You are looking much better Maggie. Your emotional attitude is beyter also. Pretty flowers behind you. 💕 Oh and of course Zak is such a blessing for you. Lovely man.
This is just cruel. I went through this after my second C-section. The laws in WVa are equally draconian. I feel so much empathy for you. The inadequate prescribing has to STOP. You were NOT being whiny, you were in LEGITIMATE PAIN. I hate that you had to go through this. You do not need to justify feeling miserable. ❤ Wishing you as comfortable and speedy a recovery as possible. You are a warrior.
@@kimbo500 thank you 🥰 I just hate it when people have to jump through hoops for legitimate pain control. My late father had to go through the same thing, continually and agonizingly, in the last years of his life. It still makes my heart hurt to see such good people like Maggie going through the same thing.
@@paisley1053 My mom just passed away in Dec. Her only hospital admissions had been to deliver her 4 babies, and 1 additional time about 20yrs ago... until this last winter. She was admitted for terrible pneumonia. (It was a shock to all of us... she had no cough, and we just had a few different batches of relatives visiting over the last few weeks - which she seemed to enjoy). She was in ICU for a week (had her birthday there). She managed the antibiotics well, and was transferred to a progressive care unit...but her body just started shutting down and she had sudden major cognitive decline for her remaining days. She had 3-5 quite painful days. She normally was not a complainer, so it was something else to see her in so much pain. I do count my blessings it was short lived in the big picture. I was present the first painful evening and I couldn't get a response from the staff (it was in the ICU still). I had already pushed our call light a couple of times for our nurse, and had gone to the station and s/w someone else. Finally, I walked to my niece (also an RN), who was caring for patients on the other side of the unit and apologized for interrupting her but....!! As soon as she heard about the pain & I couldn't get a response, she was taking her phone out of her pocket to call the doctor and receive orders. This should never happen (in many regards), but to happen in ICU, I was really surprised. I was grateful when an analgesic patch arrived and relieved when it provided my mom relief. 2 weeks from her admission date she peacefully passed away at 93. I KNOW that we have been so blessed. I am grateful beyond words. However, I'll never forget how I felt seeing my mom in so much pain, and not getting a response. I also remember my family being in those same shoes when I was the patient (way too many times!), and had subpar responses. When it is someone else other than ourselves....it really rattles those of us who truly can relate ..... right!?!? I'm so sorry to hear about your dad's tough journey, I truly am. I'm thankful you managed to hang onto your caring heart! 💕
I had a similar experience many years ago.My ectopic pregnancy was due to scar tissue from multiple surgeries related to endometriosis. Regardless, I had an ectopic pregnancy and methotrexate to treat it like you and lost a fallopian tube in the process. It was so sad and painful as well. I wanted to say that our daughter (from third attempt IVF after the ectopic) just turned 26, and our son (the most amazing young man adopted from South Korea) just turned 21. If you want a family you will make it happen! And beautiful families can happen in so many different ways. Keep up your amazing attitude. You are very inspiring!
Maggie, I’m a nurse too (retired). Our health care system is failing us. And gee, It’s wondered why people hit the streets for drugs. I’m so sorry that you are going thru all of this. 💞
It’s always the ones who really truly need pain relief that are not properly given what they need for comfort. I go through it all the time with chronic pain. I’m so sorry you had to experience this.
I’m so sorry. As a chronic pain warrior myself it sucks how horribly they treat patients in true verifiable pain. We have to advocate for ourselves which is sad especially right after surgery. Sending you prayers & healing vibes.
Maggie the general public and a lot of doctors don't have a clue with what you have been through. Yes your pain med dose and length of time is incompetence at work. For a section of doctors It's almost like the less pain meds they give you the more righteous they are or virtue signalling. Just moronic doctor ignorance at work. Your teaching and testimony is invaluable. You are amazing!!!
The pain you are going through & not getting adequate pain control INFURIATES me! Im so sorry. I am a 4x cancer survivor. Been fighting for my life for 24 years. At 23, I was diagnosed with squamous cell carcinoma on the right side of my tongue in 5/2000 & again in 2005. I had surgery to remove portions of my tongue both times, as well as, a radical neck dissection & the max dose of radiation I can ever have to my head & neck area the 1st time in 5/2000. Then in 5/2009, it was discovered I had papillary thyroid cancer. Again, I had surgery to remove my entire thyroid & as many lymph nodes as possible that were left in the area. Then in 12/2009, the squamous cell carcinoma came back with a vengeance & spread to what was left of the right side of my tongue, the floor of my mouth on the right side & alot of my right lower mandible. I ended up having my jaw bone removed & replaced with bone from my left forearm held in place with hardware & tissue from my left wrist area to fill in the hole that was left from the cancer being removed from what was left of the right side of my tongue & floor of my mouth. I now have a metal rod in my left forearm which unfortunately, has fused to the skin graft I had to have done to compensate for the tissue that was taken from my wrist area which is extremely painful. I also no longer can move the left side of my tongue either. The amount of nerve damage I have is extreme & out of this world. I wouldn't wish this pain on my worst enemy. My mouth feels like I have millions of paper cuts in it, burns as though it's on fire, as well as tingles & itches 24 hours a day/7 days a week. I had been on oxy for 13 years & not even on an adequate doseage at that but hey at least I had some pain relief until suddenly my insurance started refusing to pay for it within the last year so then had to switch to oxymorphone. Well, now my pain doctor at the University of Kansas Hospital is retiring probably because of the DEA/CDC bs of threatening/ putting doctors in jail & have been being weaned off my pain meds the last 4 months because I can't find any doctor or pain clinics in the Kansas City area to take over prescribing my meds. I also have arthritis, degenerative disk disease & get epidural shots for it and severe muscle spasms due to dystonia which when I had adequate pain meds was somewhat manageable. Buckle up everyone because it's only going to get worse with nobody being prescribed adequate pain meds for anything. People are dying by suicide for not having adequate pain control. My mental health & depression has suffered greatly since being weaned. The opioid crisis is STILL happening due to ILLEGAL narcotics from the streets not from those of us who are getting prescriptions legally from our doctors whom are being threatened by the DEA/CDC. We are just trying to be able to function on a daily basis. The opioid crisis has NOT improved since the DEA/CDC started coming down on doctors and that is a fact. Of course, I'm sure there are doctors who over prescribe opioids. However, I should not have to live with extreme pain & high blood pressure that could cause me to stroke out because of inadequate pain relief especially, since I have been drug tested every few months all these years. This is infuriating!!
In the United Kingdom pain medication (I am a cancer patient that just had a major operation recently) you get nothing no care no healthcare nothing. Luckily I bought supermarket pain killers like paracetamol
@@kristys7172 I was also, but know the boosted price of any meds/supplies coming out of a hospital so I declined politely. I do not know about your "offer", but mine was your basic same potency that any store that carries acetaminophen would have...and amusingly it was generic, not branded!😉
I am so terribly sorry for all you’ve had to endure. No one should feel the loss of a child, no matter the child’s age or gestation. You are so strong Maggie. Thank you for showing the tears and not so good stuff. It keeps things in perspective for sure. I believe one day you will hold your baby earth side. Take care, heal, and face the world again. Children are blessings. I lost my 1st at 5 weeks gestation, had 2 healthy boys (not twins), and had the privilege of helping raise my now 20 year old bonus daughter. You and Zak are so sweet and kind and deserve the world!
I've had two surgeries on my neck an it was sooooo dang painful. It's like time stands still. I did alot of crying. Feel blessed because I had no one to console me. My husband passed away twenty-two yrs ago. Praying you will find a way to have a child of your own. I enjoy watching. Take care
Kudos to Zac and all of our significant others who help us through the difficult times! I don’t know how I would have made it through any of my surgeries without my Chas. Sending love. positive healing thoughts and prayers from Seattle and a big gold star for your prince Zac!🌟
I feel you! I had emergency surgery in November, like legit moments from death. I had an incarcerated hernia so my ostomy was moved from right to left with hernia repaired but not with mesh. Then I was left with (and am still healing from after having a second surgery in due to complications in February) and they sent me home with NO pain meds! I was in tears for 2 days because I hurt so bad. Praying for you lady! ❤
I had a C-section and my husband helped me with my bandage. I had clips. I had one side that was harder to heal. Thank goodness I had help because I had to take care of me and baby. Cannot remember how many pain pills they gave me. I am glad you are are in the mend. My daughter underwent fertility treatment twice. The first one ended in the baby passing at 22 weeks. She had lots of birth defects but the doctor told them it was nothing that they did wrong. They tried a second time and it was successful. They now have a beautiful little 3-year-old girl. She truly is a miracle baby because she is the only one that survived out of all the eggs my daughter had. She is such a blessing.
Oh my God I cannot believe the earthquake just hit you while filming! I'm in NYC and I felt it pretty bad too. Sending all the love in the world. I'm so sorry with this whole situation, this is so devastating. We're all behind you and rooting for you. ❤
I'm so sorry you've had this experience. I've been holding off on saying anything, because it just wasn't the time or place. As an OB/NICU RN, I have given Methotrexate for ectopic pregnancies in the hospital, but only in the hospital. I have never cared for someone who was monitored as an outpatient, and your experience is exactly why it makes me so nervous! (I myself have had a ruptured appendix while mowing my yard and didn't have timely surgery - and what a chaotic mess!!). I am SO sorry to hear of your experience. This is probably a good time to say, my views are likely very tainted from having working in this specialty for decades! 🤭 Having had something rupture that shouldn't have, is also likely causing my views to be tainted! I'm obviously not a fan of outpatient methotrexate for ectopic pregnancies! 😬 I'm so pleased to hear you are now on the mend! Keep hanging in there - and I'm sorry for your loss. 💕🌷
I had open heart surgery (mitral valve), they sent me home with 10 pain pills! The medical profession has taken the opioid thing to the extreme. I'm so very sorry for the pain you've had to endure. God bless you sweet girl. Sending you a hug. Please just rest, let youtube to the side for a bit. Much love to you.
Sorry you're going through all this. I had a ruptured ectopic with my first pregnancy in 2017 that I had laparoscopic surgery for and the pain afterwards was much worse than either of my C-sections. There's such a tough component to ectopic pain because it's emotionally heart wrenching as well. Expecting to be acceptably free of pain after a surgery is something we all deserve. Hope that there are better days on the horizon for you!
To share, I actually feel your pain on this specific one. I had a total hysterectomy-oopherectomy-cervix removal during Covid (due to cancer- all good now). I was in the hospital for 6 hours total, it felt like drive through surgery at like a Wendy’s. I was given 6 pills for pain. Thank God I have a brother who is a doctor/pain management- he blessed them out for it , and I got more. But it was CONTENTIOUS! and in my opinion (as well as his) it was RIDICULOUS. I’m sorry to say, I think it’s a Women’s health issue.
Bless your heart ❤️. I am so so sorry that you are going through all of this. Yes, C-sections are rough to say the least 😢. I have had 3. My first was the absolute worst! Was so hard to care for a baby and the surgery site. I have had 5 total abdominal surgeries and they're the hardest surgeries to recover from in my opinion. You involve your core in every movement. Praying for you. ❤❤
Amen girl! I have had to fight with doctors since I was little with having RA and no immune system. They never listen! I have one doctor at a store here in Houston that listens to me! She also has RA. thank you for sharing your journey ❤🙏
This reminds me of an infuriating RU-vid video I saw of a doctor specialising in autoimmune diseases (can’t recall if Sjogren’s or Ehlers Danlos). He was presenting at a symposium and proudly stating he NEVER prescribed oxy no matter how much pain his patients were in. “All pain can be handled with ibuprofen or paracetamol.” Instead, he advocated prescribing antidepressants so patients felt better about their situation. I was in shock. Woman after woman in the audience spoke up during the question section at the end, imploring him to reconsider his stance, citing medical studies to support pain management. Unfortunately, I don’t think they changed his mind. Common sense, folks.
I wish the world saw this; a person so devoted to teaching others about an ailment. You're a good person, and that is what matters, if you adopted. that cgild would be a lottery winner.
Maggie, never forget that your health is the most important thing on this road as well. Everything must be subordinated to it, despite all the pressure you feel.
Ugh why can’t we find a middle ground when it comes to meds? First doctors overprescribed opioids to anyone and everyone for basically a hang nail. Now, you have to beg for any pain relief. The last surgery my daughter had for her bone disorder the nurse would not give her anything other than Tylenol and treated us like junkies for asking 😢. I’m glad you made it through it all. I had a c-section with my first son and was in hospital for 5 days with lots of pain meds but that was 28 years ago
The medical system is crazy. After having a C-section they now only send you home with 800mg of ibuprofen. This is after major surgery. We had a huge argument about it. And yes the treat you like a drug seeking addict. It is very sad. I know several people who have decided not to have any more children because they require a C-section and they don’t want to go through the pain afterwards. Knowing it wasn’t like this when they had their first and maybe second child but were treated this way with their last child. It’s heartbreaking to have to make that kind of decision.
You would have been in hospital a week in Australia. Im always shocked with the quick discharges in the US. Sending love. I hope you're on the mend Maggie.
Thank you as always for your openness… Hope you heal well and soon…it is heartbreaking that they didn’t give you the proper pain medication. Doctors and hospitals seem to be going too far in the opposite direction now… when you think of the smaller percentage of people that abuse opioids compared to the people that don’t and really and truly need the pain meds. It’s not fair to punish everyone… that’s what it feels like. I had back surgery in 2002 , colectomy (UC) in 2015, breast cancer in 2016, emergency hernia surgery 5 months ago, and I learned from the last surgeries to save any leftover pain meds I get from now on. I still have pills left from my breast cancer. I am not getting rid of them. I don’t care how old they are. By the way, I felt that earthquake too. I’m in Bergen County… pretty nerve-racking for me😅
C section Mom’s have to deal with this regularly. And they expect Mom’s to care for babies on top of all of this. Ugh. I’m so sorry you had to go through this. The path to parenthood is a hard and painful one. Hang in there, Maggie ❤
I am so sorry you have gone through all of this. I did want to say, whenever you have a baby or anything related to maternity… They get you out quick and leave you with very little pain medicine as you stated. I don’t know what that’s about, but it should change. I remember when I was in the hospital with my last baby, I would buzz for my pain medication every four hours and one of the nurses said “you don’t actually have to take it every four hours.” And I basically told her “yes, I do.“ Like I don’t even understand what her problem was. That’s what my doctor ordered for me, and I needed it. I hope you’re feeling better today!
Maggie, I know you are feeling a LOT better now (thank God!) as of today's post. You came up against the current mind-set for prescribing narcotics to anyone. All the docs are afraid to give more than 8 pills (that's all I got for a radical cystectomy and a 10 1/2 hour surgery!). I pretty much had to stay in bed in the one comfortable position I could find. When I did get up, I tried to do everything in one go (water, toilet, food, etc.). When you do get a chance to talk to your surgeon, please make them aware of what you went through. It's so sad that the people who DO have pain, can't get get appropriate treatment.
I actually just did today! They asked about me asking for more and I told them this was one of the most painful incisions I have had (and they knew I've had a few). I'm not sure it made a difference as I understand their fear with the abuse of narcotics, but at least I was able to get enough to be comfortable through the weekend! The extra 10 was all I needed (and I didn't even need all of it thank goodness)!
@@LetsTalkIBD I'm so happy you got extra meds. You're like me (a nurse) so hyper-aware of how to use narcotic appropriately. After my radical cystectomy with ileal conduit formation I didn't have an epidural OR a morphine/dilaudid pump. I only too about 3 oxys during my 4 day stay as I was very concerned about developing an ileus or nausea. I took a couple once I was home and moving around more (at least more than in the hospital) but sending you home on a weekend with just 8 was unconscionable. Fell better, young lady! ❤😘
I'm so sorry you had to go through all this. I've been there done that, and it really is a rough surgery. It hurts to sit and stand and walk no comfortable position. Your a lucky lady to have such a caring husband to take such good care of you after surgery. I wish you the best as your journey goes on. The flowers behind you are beautiful. I'm praying for good things in your future. Hugs!
Oh Maggie, I'm so relieved to know you're feeling better now. That was awful! Pain relief is crucial to the healing process. My daughter has EDS, and had a partially dislocated shoulder in January, which was impinging on a nerve. I had to drive her to the ER. She was in agony, and it took 2 hours for a Dr. to even see her. He said he would order pain meds, and then left us in the hallway. An hour later, I got a nurse's attention, to ask when my daughter would be getting pain relief. She went to investigate, and came back saying the Dr. had forgotten to put in the order for pain meds, and all she was allowed to offer was Tylenol (which doesn't work for this level of pain). I went looking all over the emerg. dept. to track him down, and when I found him in an office, I went full on 'Shirley McLaine from the movie, Terms of Endearment', all over him. She got her meds. (Pain is no joke, but now that you're on the other side of this, I hope this gives you a laugh.)
Mastectomy is now an outpatient surgery. I had just woken up from surgery and the nurse was already trying to get me out of bed and in a chair. I was in so much pain and thank God my husband was there to advocate for me…. He forcefully but nicely said that I needed some pain meds and to let me lay down until I was ready to move.
God they are evil. Pump our foods fully of chemicals and hormones to cause cancers, tell us to take birth controls for half our lives that cause cancers and then use us as piggy banks when we need treatment for the cancer 😢 so evil. Big pharma and big food and our government that’s suppose to protect us from them but instead takes bribes from them is so so wrong and just evil
Stomach surgery is one of the worst things ever. I have had over 60 surgeries kind of all over. But for some reason I can say... When they mess with the stomach... It's just one of the worst. No matter how Minor. I am so sorry you are going through this Maggie.
@@TerriWelsch, Thank you so much for your prayers. I have many Angels in my life. I have had a lot of bad luck with Spina Bifida. I am just an odd ball medically. Maggie is an angel. When I got my Stoma for different reasons then her Thank God. But she has taught me a lot about stomas and what I need to look out for. So I feel great full. Her doctors did her dirty with her pain management. 🙏❤️🙏❤️🙏❤️
C - section mum here! Here in the UK, I was discharged from hospital within 24hours of having surgery with NO pain relief at all. I remember being in pain & discussing with midwife on home visit couple of days after & was only given Naproxen. I also remember feeling numb around the area & sometimes still do & it's been 11 years next month. Hope you have a speedy recovery
I am in the UK, I know what it is like here as well 👍🏻. I had a C section as well I was out in 8 hours and I was given nothing. Our healthcare is appalling. It's crazy USA gets pain relief and medication I never have anything. Also, I am now a cancer patient I get zero medication appalling healthcare and I had a major operation recently.
@@LetsTalkIBDin Canada. The hospitals don't provide pain medication here for after discharge, but on all my abdominal surgeries related to pregnancy and gyno, (3+ incisions in the same spot), I was provided with a prescription for about 5 days of Tylenol plus codeine. Which really got me through the worst of it. I have chronic pain now from a few autoimmune conditions, IBD, as well as instability in my neck vertebral area, affecting nerves. I can go to my local ER and receive compassionate treatment that doesn't involve opiates. (Trigger shots, other medications that help). BUT, I have a good education and can advocate for myself. I never ask for pain medication. EVER. I end up there regularly enough that they know that about me. But, I have to acknowledge the privilege I've been afforded. Not everyone is treated equally, even though we have a national healthcare system. It is sad that if you look different, can't express what you need very well, or other factors that put you at a disadvantage, the outcomes are very very different. So I can't claim that it's all rosy here. People fall through the cracks. Advocating for yourself is very very important......
Horrible. I live in Massachusetts in America and we get pain meds at some hospital and not others. I got too much and dumped it. Also they do NOT seem to use a Velcro stomach wrap! They put it on me before I even left the OR. It was amaizng. If I took it off to shower I wanted to die. I had 2 c sections like this. Immediately got up and totally cared for the babies alone and did everything happily. If I wasn’t wrapped I would have struggled. All mothers should either buy their own and bring it to the hospital or ask for it
My heart breaks to hear the horror you went through with your hospital visit, I was in the hospital for removing my colon recently, and luckily I was treated well with my medication, but it was still painful, I cant even imagine getting home the THE NEXT MORNING! and almost no pain meds!!! this is cruel, Im so sorry you have to go through that, I pray you find some sort of relief soon
So glad you are doing much better! Watching the video and seeing how much pain you were in was so heartbreaking. I have been through a lot of surgeries and can understand the pain and frustration you were going through. You went through so much in such a short period of time. Pain management is so important after surgery. Glad your doctor was willing to give you some more medication to get you through the following few days. May your healing be quick. Hugs from NJ. ❤🌹
I know what it feels like. I had my chest open up and he said it was not painful no need for pain meds. I went home without anything. Good thing a friend a boob surgery not long before so she gave me her left over pain meds. I cried it hurt so bad. Hope your recovery got easier.
Take your time toe heal physically and mentally. Take a break from the pressure of getting pregnant. You are young and have time. Sending you a tight bear hug.
It's heartbreaking how when people need pain meds, they can't get them, because everyone's afraid of people becoming addicted. So the ones who truly need the meds are denied quality pain control. Also, not sure if you were back at Abington, but they were bought out by Jefferson, and it's turned from a great place with wonderful care and physicians, to being sub par at best. It was definitely an earthquake. We felt it here too. Maggie, did your dr ever get back to you about upping your pain meds? You could clearly see the pain on your face. I'm so glad that you are feeling better physically. I know that emotionally, it will take more time. Hugs. ❤🫂
Hi Bonny lass! I recently had to have a sub total colectomy after my ulcerative colitis went beserk. I found your channel shortly after the op. You really helped me embrace the fact that one can get on with life with the ostomy bag . That’s something I would like to thank you for. So I’m sorry to hear about your recent pain and trauma. Thanks again! 🇬🇧🤝🇺🇸 big hug!
@@LetsTalkIBD Thank goodness. 8 pills is ridiculous! I hope you are doing better. I’m keeping you and Zak in my thoughts! Between now and 5/21 I am having a proctocolectomy with a peristomal hernia repair and they are having to move my stoma to the left side in order to properly fix the hernia. I am so nervous. It would be so awesome to ask questions about it if you plan on going live anytime soon.
Im so incredibly sorry you went through all of that. I went through ectopic pregnancy and tube removal and it was one of the most debilitating things I ever went through so i do understand. I was given a morphine watch post op and I don't know how I would have coped with the pain otherwise. It's excruciating. I'm also so sorry for your loss. Please be aware if you're not already that you will get to where you grieve the loss of your baby. I'm only a third of the way through your video as I write this so forgive me if you covered this already. I send heart hugs to you and i hope you're feeling a good bit better. God bless 💞
You have be a strong advocate for yourself when talking to your doctor. Don't be shy. Tell them like it is scream and shout. I feel sad you have to deal with this. Despicable!😢
Girl give yourself permission to be as upset as you need to be. You had a pregnancy you had been waiting for, the joy that comes with that, then a tragic emergent end to it. That is trauma! Trauma for anyone but especially for someone who has been through the medical system and is a chronic illness patient. I'll pray for comfort and peace, pain relief for you. If you can, I think it'd be worth it to seek counselling at least short term to process this. For you and for Zach. This happened to you, but he watched you and is likely also very traumatized. Counseling could really help you two grieve in a healing way that "fingers crossed" hopefully allows you to continue down the road of becoming a parent without such fear and ptsd like symptoms when it comes to pregnancy or other parenting subjects. Hang in there. You are so so strong.
My immediate thought is they didn't prescribe enough pain relief is because it's a "women's issue". I'm always amazed how quickly they discharge people after C-sections and how anyone is able to function after having a baby! I had a simple IUD placement and was offered 200mg of ibuprofen when I was about to faint from pain. Never even knew 200mg ibuprofen existed! And then I got a whole packet of codeine that I didn't really need when i had a tiny surgery on my foot.
I think that you were way much better advised by the fertility clinic than the hospital, includind the lab tests. The pity is that the "normal" procedure is not good for you. I hope that safer medication is found for people like you, and that you NEVER have to go through this hell again. Hugs from Spain.
Thank you Maggie for posting such an honest video. My daughter lives in Edinburgh, Scotland and she was discharged the day after her C section. Unfortunately for her she experienced complications and had to be readmitted as an emergency four days later. The health service in the UK is on its knees after a decade of government underfunding and hospitals are pressured into discharging patients as early as possible. I am so pleased to see you looking better and I wish you well with your recovery. Take care.
You sweet sweet girl you have gone though so much and continue to be so kind and letting us all know how you are doing. I feel for you but i know you will get your happy ever after. You are going to be a wonderful mom. Hugs
Wow what a lot to go through, and then all these hoops to go through! I'm surprised they didn't check your throat or something, that is kinda scary. Sending you so many healing vibes Maggie.
You are so right about advocating and researching for your own particular issues. I know people seem to think that doctors should be aware of everything happening to a patient but you have to realize you are not their only patient and they are human as well. Therefore I always research everything my doctors tell me to make sure it is right for my situation. You have to be proactive with your health. Thank you for pointing this out to others. You are very smart and brave to handle the situation you've been dealt. God Bless You!!!!
I truly pray you and your just will be blessed with a new baby. I've had my stoma 13 years through cancer though. I believe you have been through so much more pain. I hope you get what you wish for.X
Our system is so messed up with pain meds. The ones suffering are the ones with chronic pain and post op pain. I understand there is an epidemic going on. But there HAS to be a better solution. I’m a chronic pain sufferer. It’s hard and I feel for you during this time♥️
I remember after my 2 c-sections I wanted to refuse pain meds. They told me in order to heal I needed to take them b/c pain puts our body in stress and we can’t heal as well. That was 20 years ago. Now, the system has done a 180. So sad
I’m so sorry for all you have gone through and the most recent loss. Prayers always. Zak is your guardian angel. Thankful you have him. My sister had crohns and gastroparesis and her husband helped her all through her illness till she passed a year ago. Family members who are the backbone for patients need more thank yous
I SO admire you sweet lady!! God Bless you!! You're such a strong soul!!! With EVERYTHING you're going thru, you are so selfless & continue sharing your journey & teaching those who may be sharing your similar experiences..Praying for you & the journey you're on... God Bless you, may He direct you & give you complete healing & His total peace!! Thank you So very much!!!
Another thing about taking pain meds is it's better to keep them in your system enough to evenly cover the pain. It's 100 times worse trying to play catch-up than to keep things at an even level
I am so glad that you are open and honest. I can’t imagine how many people you helped. I hope things get better for you and able to be a mom, because you want to. Thank you for all your videos.
It's good to see that you are doing better now. Recovery always takes longer than we want it to, but at least you have Zac to recover with you. Sending hugs.
As a C-Section mama, you can ask for a block on the incision to help manage the pain for longer. If you had to have a C-Section, definitely ask for one. It will help, you will get your rainbow baby. 💕
I’ve just been catching up on these videos and it’s been an emotional rollercoaster as a viewer. You are so strong Maggie to get through all this. I feel so sad that firstly the pregnancy ended how it did, but to then have the additional trauma of a near death experience, emergency surgery and then they don’t give you enough pain meds! The universe needs to give you some good vibes! Wishing you a speeding recovery and sending you positive energy and healing ❤️🩹
Doctors are human and they deal with a lot of different things. We as chronic illness survivors sometimes,often, know more than they do. We are the specialists. It’s ok to push back sometimes. Btw - you aren’t too far away from me. I have an ileostomy due to FAP and am a stage 4 cancer survivor.
