Dr. Beth Stein, Chief of Neurology at St. Joseph's Regional Medical Center, sat down with Rare Disease Report to discuss Myasthenia Gravis. In this video, she explains the complicated symptoms and disease course of the condition.
5 months of torture and being told it’s all in my head. Finally, got my diagnosis of MG today from a doctor that was intelligent who actually listened and didn’t judge me. I’m 29 and a male so I guess I got the super rare version lol. Seriously glad the mystery is over and I can finally get the treatment I need.
It took 6 years for my diagnosis. My symptoms were all over the place. But my first presenting other than blurry vision was that my right leg stopped moving one night. It literally could/ would not take another step. So the first neurologist that I saw told my husband and I that it was stress and that we needed to have more sex. We thought he was joking but soon realized that he wasn’t. We didn’t go back.
After a episode of not being able to breath and about four months of droopy eyelids I was told it was all in my head. I finally started researching my symptoms, most of which I had spoken to the doctor about, I stumbled onto Myasthenia Gravis and had about 80% of them I asked to be tested which then confirmed my research. I also was diagnosed with Autoimmune Hepatitis about twenty years ago. It's been almost three years since my M.G. diagnosis, I won't be insuring my motorcycle this year.
@@helenokezie1614 Hello Helen. My left eye is still almost closed but my vision has improved. I have myasthenia gravis so whole body affected. I get terrible fatigue, dizziness and leg cramps. But I still drive due to a prism on my glasses, and I still work a job with 12 hour shifts. I take high dose vitamin D daily and Mestinon which has helped tremendously. I cut out alcohol as well. It took a year to start to see an improvement. Good luck with your health.
@@Myworldmymind908 on its own a 3500 vit D tablet and there is some in my multivitamin. .i can say my eyesight is normal àgain. I went to bed one night, woke in the morning and my eye was fine.
