Syncope patient misdiagnosed with epilepsy 

Thank you for watching the video and for your response, if you would like further support or advice regarding TTT, please feel free to visit: www.stars.org.uk

Hello there. Me, 20 years of grand mal seizures. Getting worse and I'm really starting to believe it's this type of syncope. I am now good at feeling them come on and it feels like I'm about to faint because I feel a sense of weakness seconds before the seizure/faint happens. Been thinking it might be POTS for sometime. What type of salt tablets to you take? How many grams and how often?

@@markanthony9264 for me it's stress since I was a kid , stress and abandonment , salt and cooling down really helps , small portions of food , managing your childhood trauma is important

Hai provato dall audiologo?potrebbe essere una sindrome di Meniere o lermoyez

What is BP? I think I have a similar case so grateful to find this video

@@Dayasultanablood pressure

Did you figure out what it was?

Hi Sherene did you end up finding out what it was? Please let me know because I want answers for a family member, they are experiencing exactly the same since mid last year

@@ashpro94 No. But they believe it is due to low blood pressure.

@@sherellecampbell4036 Thanks Sherelle. I hope you feel better soon. And although I'm no doctor, since you have low blood pressure I think taking prescription meds to lower blood pressure will help relieve your symptoms, and eventually stop the fainting spells.

That or orthostatic hypotension

Thank you for your message, you may find our Reflex Anoxic Vasovagal Syncope booklet helpful to download from the STARS webpage: www.heartrhythmalliance.org/stars/uk/for-patients

Did you ever figure it out?

@@Autumn33 Yes! Each time I passed out/fainted/lost consciousness, the only telltale sign was low blood sugar. I was told there is a very rare condition, a tumor (usually on the pancreas,) that creates insulin, causing your blood sugar to drop to dangerous levels. I was told I most likely do NOT have this tumor, it is so rare. Doctors always asked if I was in the health field. They thought I was injecting myself with insulin. I finally found a Facebook group (!) of people either suspecting this tumor or confirmed. The name of this tumor is an insulinoma. I had several MRI/CT scans and an endoscopy to look at my pancreas. Trouble is, it's a weird organ and hard to see these sometimes tiny tumors. The Facebook group moderator is great and has a list of resources, including doctors who specialize in finding insulinomas. Lucky for me, one doc was in Ft. Myers, where I lived at the time. I emailed him, and he replied. I was dumbfounded. He set up an appointment for me, sent me to Moffitt Cancer Center in Tampa. They were excellent. Had another endoscopy done and the tumor was found. Within a week, I was at the hospital having a third of my pancreas and spleen removed. I am at high risk for developing diabetes now, but so far I'm just fine.

@@suzihagen amazing story! Congratulations. Happy they found the tumor

Hi there, any answers now?

@@FIBROMOM yes it was my heart just stopping . i had never herd of it before but apparently it is common , i now have a pacemaker since 1`4 feb 2019 .

did pacemaker stop the fainting / seizure like episodes?

deplin? I believe she called it deplin

I just heard tablets I know of many people with Ehlers Danlose syndrome of which POTS and dysautonomia where the blood pressure is very low and they take salt tablets.

@@bornawake4483 Thats very interesting, thanks. I thought she was the lady in the paper years ago (married to a famous football player) who had low blood pressure but Gutron raised her blood pressure and helped her situation.Maybe thats the same drug but different trade name.

@@sarasen8147 Could be, I had not heard about this lady. Might be similar to raise the BP.

@@bornawake4483 yes-its in the paper that it raised the BP very gently which is what helped her. :-)

Hello, there is further information in our 'Living with low blood pressure' booklet which can be found here: heartrhythmalliance.org/stars/uk/low-blood-pressure-hypotension If you have any questions or concerns please feel free to contact our Patient Services Team on 01789 867 503 or email: info@stars.org.uk

Different countries, different expressions.