I have to give it to you: You taught that lesson. I do telephonic nursing for SLE. I wish all my different trainings had been put in a concise but complete nutshell like you did. Amazing
Excellent information. I am a male, 65 and have SLE. My current rheumatologist and others I have tried, never take the time to explain anything. They just push drugs without explanation. I give up on their so called help. I quit all meds and only go in once a year for the regimen of blood work. Once again the doctor never comments on the results. Doctors....to hell with them!
I can't believe you just gave me more information than my rheumatologist and all the medical doctor videos I have watched! I'm so grateful for you taking your time to make this video. Thank you!
This was such a informative video, she did such an amazing job explaining Lupus so anyone can understand it. They definitely need her to do more videos, because most of them leave you more confused than when you started. Thank you for all the great information, I was diagnosed with lupus 4/14/22. So I’m trying to learn all I can.
Thank you for such an informative video! I was diagnosed in 1985, at that time I was told average lifespan after diagnosis was 10 years. I am now 72 still dealing with this extremely frustrating unpredictable illness.
I am wondering if I have lupus, but because I have Hashimoto's disease, my symptoms overlap. I had a distinct butterfly rash for a long time which I didn't know what it was so went to the doctor. He did the ANA test (or whatever it is called) and other tests, and he said, just because I had a negative ANA test, doesn't mean I don't have lupus. Fasttrack to a couple years later and I have new symptoms now. I have issues with my red blood cells count a lot, despite eating a healthy diet which includes red meat for iron. I now have Raynaud's. I have weird rashes that pop up on my body which I have never had. Etc. It just makes me wonder. I worked for a doctor (I supported her father as a home care worker) and she was telling me I probably have lupus that will come forward in the future. She told me usually people with one autoimmune disease will also get a secondary autoimmune disease, so it really makes me wonder about Lupus. I guess I will continue living with all these symptoms until one day I get more answers.
Great presentation! No one has ever explained to me HOW this attack is happening, and what each test looks for and why. Thank you so much, great eye opener!! Oh and I love the little faces on the diagram of the invader cells LOL so cute and helpful!
Is understandable that your rheumatologist don't give al the details of lupus, is more patients waiting for their time, I'm a 65 year's mail, I have 10 years suffering with lupus, us you must know is more severe in males, thanks to my medical team I'm managing, As a provider's, males ad the most elevated deprecion and suicidal thoughts, not being able to soporte your family is terrible, No one had talked about that because the concentration is more in women's than man, Please be patient you doctors are in your side, it may not have the time to explain so detailed like we see it in this video, but your doctor is doing the best for you, Refer to your rheumatologists to prescribe you Benlysta, is working great with me, it stop the increased damage to my keadny's, also the damage to my heart, Thanks for making this video you not only illuminated my soul, also helps to make family and friends to understand that we may looks healthy but no one no the suffering a lupus patients passing day by day🙏
Ayeeeeee I'm super early! How have you been? You helped me so much! I love nursing as a career I've been with you at the start at your channel so it's amazing you have a million followers 🙌
I keep fighting my GP, My hair is falling out, my joint are deteriorating , and had 2 surgeries this year, but getting worse, I have the rash on my face, my hair is falling out, I keep having thrush, I am exhausted, my gums are bleeding and teeth are breaking, I hurt so bad in every joint. I have shown macro anemia for 5 years, Fever for 5 months, brain fog so bad I forget my dr appointment, congestion in my lungs for months, and alot of chest pain ! I think I need a new gp. My ortho dr believes I have a CSF leak, I am testing positive for glucose from my nasal secretion for 6 month! I cant move from pain, I dont want pain meds nor have asked for them, I just want a dr to diagnose me! Its so aggravating!
I suffer from SLE effecting my liver and kidneys..my kidneys has too much protein in my urine and chronic arthritis pain...what causes too much protein..and I also have autoimmune hepatitis in my DNA
Thanks your explanation about Lupus very helpful.I know about this diseases but this is the first I understand what's lupus? I wanna ask you about sweating while you work out if sweating was very big amount is it sign that our body have water retention?
Hi Sara Thanx for Very informative and interesting video. My wife is also a lupus patient, she is 29 years old and has been fighting this disease for the past 9 years. I am from Pakistan and I want to know if there is any proper medicine for this disease which can eliminate this disease completely.
My sister is suffering from SLE and mysthenia gravice from last 2 months. She is now bed ridden please help to understand how much time she will take to get better?
my name is Michael Do you happen to know anything about osteogenesis Imperfecta I got it as I aged I didn't break much bones as a child but when I got older thats when I started fracturing a lot of bones luckily not a leg or arm yet I am 29 years old was told from a recent dexa scan I have Z score of -3.8 which means I also have osteoporosis and osteopenia I have been experiencing a lot of chest pain that goes into my back I am in constant pain I am taking forteo but i don't notice a change in the strength of the bones because I recently injured my spine again. Do you know if ppl with osteogenesis imperfecta live a long time I am actually walking with a cane because it hurts to walk I feel weak and it hurts to breath I have to sleep with two pillows because I can't lay flat I also have trouble swallowing I have the blue sclera
