Temporal lobe epilepsy; “deja vu/ auras”

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I decided to make a video describing one of the types of seizures that I experience regularly with temporal lobe epilepsy. Feeling a bit crumby so forgive my appearance but DO remember to subscribe! Raising awareness one video at a time 💜💪💜

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3 июн 2019

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Комментарии : 584

@ulrikezachmann7596 11 месяцев назад

Thank you for sharing. I have a daughter with Temporal Lobe Epilepsy and people keep thinking she has behaviour problems or needs a Psych. Helping me understand how you feel helps a lot. My daughter has disabilities and cannot articulate as well as yourself. Stay brave, you help and support people by sharing.

@colethomson7267 Год назад

I’ve only had these experiences when i was a child, and in my late teens. For me it started with a normal feeling of dejavu, but then very quickly just pulls you into what in that moment feels like real dream memories you’ve had and you remember everything about it. Then boom, it’s gone, and you just feel like you came back from a different plane of existence

@beckyfranklin6964 11 месяцев назад

Wow! Never knew this was epilepsy until now! No wonder my nurse practitioner put me on meds that help prevent epilepsy. I didn't understand why but I've explained so much to her about myself. Thankfully she pays attention!

@MalamuteMan1 11 месяцев назад

I had this too and then nearly always it caused me to faint/blackou when I was a teen.. I'm 44 now and have started to feel them happen again without fully blacking out.

@nicky132 Месяц назад

I have the same experience but I also get nauseated and distressed when "come back".

@mr.awesomecatfuzzypants2989 4 года назад

I just started having these symptoms. I sound freaking crazy trying to explain it to people. My doctor doesn't even have an answer for me. That's why I'm happy I found your video. At least I know I'm not alone or crazy.

@PaintingPowers 4 года назад

Mr. Awesome Cat Fuzzypants I kept it to myself for years. I started noticing a pattern in all of it but I still had a difficult time trying to describe it out loud. I would tell my family about it but it never sounded serious to warrant their concern, just ‘hmmm that’s weird’. I felt like I was seeing a dream in my head of something I felt like I dreamed before. Everything felt like it had happened before. Sometimes there would be words or phrases I was hearing in this dream state but I couldn’t even tell you what I was hearing. As it would come on, I would suddenly get very hot and slowly I’d feel sick in the pit of my stomach. And this overwhelming sense of doom would rise and it was terrifying while it was happening. Some are worse than others but when it’s happening, it feels like the world is ending. I would also smell a weird smell that I couldn’t describe either. Then as suddenly as it came on, it would go away. For years, I just figured it was something I would just live with and manage them by fanning myself until it was over. I didn’t really tell the doctors because it honestly just sounds crazy. Some people thought I was just having a panic attack but I knew that wasn’t it. One day I decided to google search exactly what I described to you, and I found temporal lobe epilepsy. My self diagnosis was eventually confirmed and an MRI showed that I have scar tissue on my temporal lobe which is what is causing the seizures. I can’t tell you exactly what triggers the seizures but I know stress, stimulants like caffeine and sometimes certain lighting trigger them. I notice I have them more often around my menstrual cycle as well.

@mystry9756 4 года назад

I started having similar symptoms when I was 12 years old. Then it would happen every once in every few year. It felt like the worst tummy pain and somebody put poison in my mouth. I didn’t know to describe it or never been to doctor for this.

@ilovedyou88 4 года назад

I started having these sort of auras years ago. At first they happened only once in a great while. Over the years they became more frequent with additional symptoms. I never took medicine since I wasnt losing consciousness. 10 years later the auras led into grand mal seizures and now I have no choice but to take medicine everyday 😩 but at least no more auras or full blown seizures

@c_dubbzz6127 4 года назад

@@ilovedyou88 can you stop these when they first start so they don't get worse?

@kristifrroku3170 4 года назад

I am also a victim of it...Surely...I have synesthesia and I see people's aura and object's halos ... I am seeing multi familiar things also...But it is a common thing...1/3 of the world have it...But we are the safest ones...We are lucky to have it because we have the warning from our inner intuition and that allows us to be protected and in a very safe place...That's how auras attack.

@ambermonterosso1225 3 года назад

I feel like crying. This is exactly what I’ve been experiencing.

@brandonbosworth1829 3 года назад

Same

@opalescentmica 5 лет назад

I appreciate the way you tell it as being "injected into a dream" and the "story set up" is a perfect description. Unknowing I had epilepsy, when I was younger I'd describe it "I'm going back into an old forgotten dream, I've been here before, but it was in a dream". I called them flashbacks. Thank you for sharing, April!

@jeterman29ny 3 года назад

Thank you both, I have this exact thing. The flashes of a dream you can't remember having is exactly how I feel. I always tell my wife that it's like i remember all the dreams I ever had and that its so scary that if these really are my dreams, that I dream this much. Also, whats really odd with me is sometimes at night when I dream, I literally feel like I'm in the dream for like months or even years. I wake up and its like I was in a coma for years or something and it really freaks me out bad.

@alyssalynn2040 2 года назад

This is exactly how it happened to me too. It was so strong I felt nauseous

@SoSweetKhryssie 2 года назад

This! So I’m not crazy.

@SoSweetKhryssie 2 года назад

@@alyssalynn2040 I throw up every single time!

@echastee 2 года назад

I'm getting an EEG because of videos like this that so intelligently described something so similar to my experience. Infected into a dream does describe these episodes I have of sudden dream recall and it's a lot like those deja Vu feelings and sometimes they're followed by a sudden sense of impending doom. I feel like something is messing with my head sometimes. But it has to be like this And I wonder if they'll have me do a sleep deprived EEG or how it all works. I'm nervous but I want answers.

@mickylove76 11 месяцев назад

I get deja-vu. A smell. A feeling like I’m falling. And a perception of looking at myself from above. All at the same time.

@elizabethrhodes6089 3 года назад

It's unfortunately very common for people to suffer with these deja vu auras for years before they're finally diagnosed with temporal lobe epilepsy (TLE)). Part of the reason is because people generally think epilepsy is just the dramatic fall-to-the-ground and shake kind of thing. They don't realize that there are many other types, too. And like in April's case, many of them don't cause unconsciousness. Thank you, April, for explaining what deja vu auras feel like. I also have TLE, but my auras present as waves of intense nausea and sweating lasting several minutes. I was misdiagnosed at first. Finally I saw a neurologist who tested me and put me on epilepsy meds. After trial and error with several epilepsy meds, my seizures are under control. I wish the same for you.

@blacktourmaline3944 11 месяцев назад

You are absolutely correct because I used to have vivid deja Vu dreams since I was a child at 45 I had my First seizure

@user-ih4fd9sf8x 11 месяцев назад

This 👏🏼 to me the worst part is that, the lack of awareness that causes to take so long to be diagnosed. It took them 7 years to diagnose me ( since I started going more and more at 14). However , counting the fact that I had always felt the same way, it took them 21 years.

@04Steph08 10 месяцев назад

Mind sharing what you tried and failed and what worked?

@ellaparrilla 7 месяцев назад

How did you get them under control?

@chasityj.4130 6 месяцев назад

Yep. When a therapist told me to get checked when I had one in front of her, I thought “she doesn’t know what she is talking about. I don’t collapse and stuff.” Long story short I blacked out while driving from having one. Thankfully the wires on the side of the interstate saved my life with my seatbelt as well. Got tested, yep. Temporal epilepsy

@JodellBells 4 года назад

I've been getting these since I was a child. Never knew what it was, called it "Deja Vu's". My parents didn't really believe me when I explained it to them! Feel so much relief hearing I'm not alone!

@whatyssjhsswhatsysys1504 3 года назад

Can u explain how urs was? I feel like everything I see I remember it. I feel like I have seen it and then I sit down and start to think where have I seen this. ITS LIKE THIS With everything in my life. It’s so exhausting I’m thinking all the time

@Maxi.Dounut 3 года назад

Same here, had it since I was a child and referred to it as “deja vu seizures”. My parents didn’t see it as something serious either, but I got checked for epilepsy two years ago In order to figure it out but they found nothing. I think this type of epilepsy isn’t very researched on and there’s little knowledge about it sadly.

@jeterman29ny 3 года назад

Omg you are literally the 1st person who was ever able to explain what happens to me!! Mine sometimes wake me up in the middle of the night and are super scary. Sometimes they happen in the middle of the day and I try to tell people what it feels like and they look at me like I'm nuts. To me it feels like DeJa vu mixed with remembering my dreams and they're usually the scariest dream ever I'm remembering and it feels like I'm in actual hell. I always say "I wouldn't wish this on my worst enemy." I also get visual auras where its like there's a ripple in my vision. Usually that goes away only if I go in a dark room for like a half hour with silence like a migraine. Super scary and I'm sorry you go through the deja vu part too.

@diannadolly 2 года назад

Sorry you’re dealing with this. Do you take any meds? I hope you’re feeling better

@jeterman29ny 2 года назад

@@diannadolly I don't take anything currently. Thank you for that

@diannadolly 2 года назад

@@jeterman29ny well i hope you're doing better :)

@takeanotherlook2065 2 года назад

Meds do help, but unfortunately this is one of the more challenging versions to manage.

@elisdeskovic2851 2 года назад

Omg I also woke up from dream once and had this feeling so Weird

@auntiegarfunkel 3 года назад

I actually understood and related to every word, its refreshing to hear it from another person and be reminded that I'm not going crazy

@gumpergumper2845 5 месяцев назад

I just forwarded your video to my wife to let her know what it feels like for me because your description is the best I’ve heard. I’ve learned to sit down immediately. I have also found if I’m dehydrated and or lack of sleep they are more likely to occur. Good luck young lady.

@MrStephenwatershed 3 дня назад

The best I've heard too. Thanks April.

@barryboudini Год назад

FINALLY!! Somebody describing exactly how I feel.

@jessejames7116 3 года назад

wow... the first time ive heard it described by someone other than me as "being injected into a dream that was already set up"... thank you im sharing this with my family to help give them context.

@Jaybird72 3 года назад

I have these exact same seizures. 20 years now. It’s awesome to know others understand the same experiences.

@Themozartthug Год назад

Has it ever gone to tonic clonic? Have u been diagnosed?

@TruDis01 4 года назад

I've often thought of it as stepping into the body of an alternate version of myself who lives in an underlying, coexisting reality.. A much darker, almost hell-like reality that is always there and always _has_ been there.

@jeterman29ny 3 года назад

Holy crap. You hit the nail on the head

@njparady 3 года назад

Yes

@adrianacosta807 3 года назад

Been there, feeling is almost like claustrophobia.... but , I somehow tell myself right away to ignore it and it's " not happening " and seconds later it goes away... try it!

@CtrlAltDestroy 4 года назад

I've been trying to find answers for what's going on with me. I get deja vu, accompanied with anxiety, impending doom, and the feeling I am going to die soon. Really sucks ngl

@DanielMartinez-hr2zu 4 года назад

Yeah that’s where I am right now. Such a horrible place to be in.

@skao7089 4 года назад

I have that too m suffering

@jujuthatsme8867 4 года назад

I keep getting these deja vu episodes....a few days ago I had my first tonic clonic seizure.....waiting to see a neurologist now

@KingNeptune151 3 года назад

Lamictal kind of helps

@dalexa81 3 года назад

I’m glad I’m not the only one

@trinitylawrence1046 5 лет назад

Yes, I felt so alone about this. Thank you so much for sharing this. But no one would believe me. It started happening a year ago and did it ever since. And I hate it.

@callumsullyfitness 9 месяцев назад

"injected into a dream" is perhaps the best analogy to describe an aura that I have read 👍

@stephenmcginn6872 5 лет назад

11 years on since the SPSs began as a result of big brain aneurysm, I still return to these videos just to touch base. What is MOST important is the realisation that I am not the only one experiencing these crazy symptoms. Indeed when they started I was scared to share how they happened in case people thought I was making it up. Listening to you I feel like you do in that that we are not alone and know others who share the same condition, YET, when a seizure starts until back to normal (10-30mins) I feel as lonely as a person can feel. The sense of doom and the feeling of .....’why me?’......’oh no, not again’.....etc is irrational yet real. Yet also there is some strange sense of comfort when one begins ! A part of it is quite pleasurable! Perhaps the adrenaline rush? I don’t know. I do know that talking and listening and sharing is good especially with those who share the same things. Only those who do , could understand. Whilst others, even health professionals say the do....they don’t! You are clearly emotional and that’s normal. Suffering this is a burden know doubt and we all must share the burden for each other. Especially in awareness raising so keep posting and keep sharing your experiences with everyone you meet. It’s good for you. I will be thinking about you here in Scotland. Xxx

@kelley22189 3 года назад

You are not alone love, keep your head up beautiful!

@missdbanks25 5 лет назад

Hey! I was just diagnosed on May 12 2019. I have trying to find someone who understands. I haven't had my EEG yet but my neurologist feels that will give the answer. I have been struggling emotionally, short term memory loss, nauseous, uncontrollable pain in my head and leg. I'm so tired of it but I know I have to live with it. Your videos helped me tonight. You saved my life. Thanks.

@isabels2973 5 лет назад

Those are all symptoms of severe anxiety

@AminASTRIxXx 4 года назад

I did EEG the problem is that it’s just watching for brain activity for a certain timeframe, which usually doesn’t reveal much since the abnormal brain spikes are rare for some ppl like me.

@mamabear331 6 месяцев назад

@@isabels2973 if this is anything like what I have, it’s definitely not anxiety! I can actually feel the misfiring in my head. It tingles and tightens up in my temples and goes across the forehead. Is it triggered by anxiety, ptsd, abuse, head injuries? Possibly! Although it’s not anxiety alone! Definitely neuro and misfiring! I’ve had two separate , 2yrs apart, 7 day 24 hr EEGs that shows it.

@darkmarc 2 года назад

Thank you for this video April -- you are awesome! Those of us in similar situations (and everyone else) are pulling for you.

@FrostyJava 5 лет назад

You hang in there sweet girl! I'm beginning this journey in my late 50s and it's not fun. I am praying for you. 💖

@kevinwhite9195 2 года назад

I've been watching youtube videos of every topic imaginable for years and this is the best one I've ever watched because I don't feel alone or crazy anymore. Describing it to anyone is so difficult, and I'm good with words. Thank you so much for taking the time to verbalize the sensations because, I know all too well, it is so hard to do. The way you describe it is exactly how I experience it. I'm not on medication and haven't seen anyone about it because, though I've had them for years, I can go months without them. Anyway, thank you so much for giving me someone I can point to and say, hey, look, she has them, too.

@user-if3jq1ey1r 7 месяцев назад

Perfect description, I feel exactly the same but could never describe and put into words. Thank you

@nylevesemken 3 года назад

Thank you for the description. It has now given me the words to describe it to my GP and psychiatrist.

@njparady 3 года назад

Your description is very good.

@PoeLemic 3 года назад

Please, keep making videos about this. This helps me understand a friend that I met a school, who has this. They try to explain it to me, and I am trying to understand. This video helps.

@whateveritis7351 4 года назад

Thank you for this video. I feel happy at least someone know what i feel.... When its happen. Thank you so much. Lets survive soldiers. 💪🏻💪🏻

@ambergelderbloem1849 4 года назад

I have this all the time, I'm so happy to have found this video because I always try to describe this to my family and they think I'm crazy. WOW THANK YOU. I no longer feel dumb!

@erikrodriguez7239 4 года назад

Lovely video, & thank you kindly for it. Been having this problem for 6yrs now myself, it's nice to know I'm not alone in this myself. Things can get pretty emotionally hectic sometimes. I hope and pray 2020 can be a better year for you and us all,

@mike8610 3 года назад

I've been looking for this description for 30 years. Exactly what I've experienced

@daisyfryberger7746 Год назад

Thanks for sharing. You just described what I am going through and it really is hard to explain. It is scary because it feels like your brain is being taken over. 😕

@chriskaiser1127 3 года назад

Best description I've ever heard. I've had "deja vu " as long as I can remember. I was told that it was because I'm an old soul and have been reincarnated many times. Then I explained it to mt neurologist after my first public seizure and he explained that it was an aura. My wife takes video and talks to him for me since I very rarely remember anything. Apparently I have a few different types. It is scary and I'm not legally allowed to drive making life even more difficult and scary. But I wouldn't want to put others in danger either.

@scoobydoogirl426 4 года назад

THANK you for this video. Ive been dealing with the deja vu feeling for years never understanding what was going on. It didn’t happen for awhile and then it started happening more and i would have 20 of these deja vu episodes in a row. I did research and found out about this epilepsy and i was in shock. I would have never thought this was what it was and i never thought i would be experiencing something like this. I have not gone to the neurologist yet but i Plan to after a bad Spell that left me very out of sorts. Its only been the deja vu feeling and nausea and heat and then not feeling like myself for days. God is good though and has helped me through some very difficult days involving these and i feel renewed knowing more about this. Thanks for this video tho bec it Does feel like your crazy sometimes when you describe it to others. I will be praying for you as well! Stress is definitely a trigger for me so take care of yourself! Its going to be okay and Gods got you and your gonna make it through! Sending love!

@jana3705 3 года назад

Thanks for making me feel better.. I feel so crappy due to seizure auras/deja vu. I literally get them so often and they are the same repetive thoughts as well. I loved the video very relatable. We'll get over seizures, fighting! 👍

@scarletfalanges Год назад

So sorry for your illness and thanks for this video. I feel lucky that sof at I'm only getting what you describe here and not the full seisures like you. Stay well, and I hope it improves

@lindadavian3149 4 года назад

These started for me after too much anesthesia after cancer treatment. You’ve helped me know I’m not crazy or alone in this. ❤️

@keithfree2449 2 года назад

Very good description, it sounded like you were exactly describing my experiences with TL seizures. The sudden flash of something “injected into a previous dream” is spot on. Also the depersonalization. Thanks for sharing your story, it’s good to know I’m not alone.

@ajmfifa7910 4 года назад

Everything you said is so accurate to what I get. How you explained it as you feel misplaced and not in the real world sense. Also, how it is so familiar and nearly like you’ve been their in a past life I haven’t been diagnosed but I have just turned 18 and I can remember having these ‘flashbacks’ or as my dad calls it ‘déjà vu’ moments for years. I feel as though mine come from things that trigger something inside me, I can feel it starting and a majority of the times I can stop it, sometimes I can’t stop it and sometimes if I feel safe and in the right place I let it be. But, it is scary! If I’m alone I feel as though something is going to take me away from this life, I hear voices and think I see these imaginary characters nearly like people are trying to abduct me and I feel as though I might die. I also feel as though when I get this that I am fully aware and not impaired, so I can do anything and I’m able to do everything but it feels like sometimes I’m not in control of my body and it feels as though something will happen. For example, today I had one and it was when my father was driving me to go to dinner, it happened randomly with no tell tail signs and I felt as though I was going to jump out of the car(even though I wasn’t and didn’t have the urge to) but it was like someone was trying to control me. I don’t know if anyone can relate but I’d love to hear what you guys have to say as it is something I am coming to terms with and trying to understand. The most important part is that I am in control and most of the times I can fight it when I feel the sensation start.

@jujuthatsme8867 4 года назад

Thank you so much for posting this. I've been having these deja vu experiences intermittently since Feb this year. I had my first tonic clonic seizure in the supermarket a few days ago and am awaiting a neurology appointment. I felt I was going mad and am so relieved to find other peaple who understand how these episodes feel. Take care xx

@quinnfoster5929 5 лет назад

I really appreciate you posting videos like this. I go through the same thing, and can relate so well. It’s so comforting knowing there are other people out there describing the same feelings that I have. I wish you the best 💕 sending good vibes

@aprilcoles 5 лет назад

Quinn Foster 💜💪💜 Taking one for the team! 😅 It’s difficult discussing things that make me feel so, well, disabled! But I KNOW our community needs more visibility; there just isn’t enough awareness and support 💜💜💜💜💜

@Jacqueline_Oat 6 месяцев назад

I been having my symptoms or whatever it is getting really frequest this past month/week, im happy i found your vid because it helps me know im not just going insane and is probably worth getting looked into.

@garrymckee1249 2 года назад

Reminds me so much of trying to explain this to a doctor when I was 8 and first starting having seizures, so hard to get out into words and that can be quite isolating in and of itself. I just found your video as I've been having auras recently again for the first time in years, was really helpful to find you talking about it, Hope your managing with your own epilepsy and hanks for making this!

@rjvowels 5 лет назад

You've got this girl! I know you don't know me but im also epileptic and I've got your back!!!

@larrykanner37 Год назад

Thank you, April. Awesome job describing the experience! Very difficult to explain to others. I get a lot of comfort hearing others talk about it and that I'm not alone. We'll get thru this together!

@Arch-AnglGabriel 4 года назад

Sending my love I know exactly how it feels. Best of wishes, I subscribed

@aprilcoles 4 года назад

Kakolukia thank you for the comment! And thank you for subscribing 💜☺️

@melearina 4 года назад

Thank you so much for sharing what you experience in those symptoms or what my doctor call as "auras". It just made me realize that I really am not exaggerating for the same feelings like deja vu and that "injected into a dream" feeling until this time. Though my medications have decreased my generalized seizures, these auras are still in me. Hope we get through this together.

@apache6167 2 года назад

Thank You!!! This Really helped and explained A Lot of what or how I can describe to my family of how I feel. I had my first chronic seizure 16 months ago and have these minor episodes I can not explain.

@lindiekeely7428 2 года назад

I have been having seizures for a few years now. They have been changing lately. I have been going through this aura you are having plus auditory issues, feelings of anxiety and hysteria, chest pain... I am praying for you. Thank you for posting this. I feel less alone now.

@Ziggy.rabbit 3 года назад

I had my first one last night. I usually have grand mals. It was honestly terrifying and the most confusing thing I’ve ever been through. Thank you for talking about it. I’m still so new to it. It helped me understand it more. Thank you

@rudieopperman4388 3 года назад

It's like you read my mind. Exactly how I feel and glad that I am not alone. Someone told me the other day that I inspire them because if I can do it then so can they. Know that you are not alone and that we will all get through it together. Keep going for as long as you can. Focus on the moment. Yesterday is history and the future can wait. Remind yourself of what you have also made it through like if yesterday was a bad day for example. That will make you feel strong. You are not crazy or weird. This is something that we can not help and did not ask for.

@starrnicholle4836 3 года назад

watching this actually made me bawl, i am 18 and struggle multiple times daily with the temporal lobe seizures very badly because of a 45 minute grand mahl seizure Get better lovely - you are SO strong.

@blcollardude 2 года назад

Thank you so much for the way you’ve describe what’s happening to you. This started happening about 3 years ago. My doctors said I was having stress seizures. I did some research and it kind of described what I was going through. But I knew it wasn’t everything I was experiencing. I started crying when you talked about twitching And the way you talked about being injected into a dream. Because that’s a indication, that I’m leading into seizure. I have felt so alone for the last three years. Thank you so much for making this video. And making me feel like I’m not alone.

@mrwoodrow 4 года назад

Thank you! I don't get out much either. Be well. Yes we are friends.

@rparker8761 9 месяцев назад

Wow, this video was great!!! I am going through the same exact thing----for 50 years. You will make it! I have had soo many seizures of various types, but the way you describe the deju vu kind is spot on.

@reverendrobertparsimony8475 3 года назад

It's very hard for me to covey the feeling to people who ask but you explain the experience so well. Thank you for posting this, although I wouldn't wish epilepsy on anyone it's reassuring knowing people are dealing with the same thing and getting through it. I wish you the very best and hope you've been doing well!

@eduardojackson88 2 года назад

I feel a sense of relief having a better understanding of what's going on with me and knowing that there's others that experience the same thing. I remember the first few times, thinking to myself that maybe I was having early schizophrenia or dementia and feeling scared that maybe I would go into that deja vu/dream state and not come back. The immersion feels so intense that I was worried I would get stuck there permanently and my physical body would be here, like a vegetable or something, with no way to communicate what happened to me. Now that it's happened several times I feel like I'm able concentrate better during the immersion and I make an effort to remember bits and pieces of the "dream". I'm trying to make sense of where I'm going off to but then the nausea brings me back to reality and I feel completely exhausted and disoriented afterwards. It only last a few seconds but the fatigue lasts for a while after it's over.

@remo4248 4 года назад

Was just randomly browsing and I came across this. Logged in to drop you a quick message. The "dream" description is quite a good way of putting it. Its like as soon as I get there everything has been pre-written and I know exactly whats about to happen next. It doesn't matter where I am, everything just feels like im viewing it through a familiar lens again. My aura is around 1/2 minutes so I always get a chance to have a walk around this dream world and gently, steadily prepare for the seizure thats about to come. I usually find a safe space, make it comfortable, lay down and then prepare for the chaos thats about to ensue lol. Theres a bit of fear but each time im actually surprisingly calm and collected about it. I describe it as the feeling of walking down the street, turning the corner and realising you left your keys in the front door! It's actually quite funny coming back around afterwards and looking at the horror on peoples faces if they have never seen one before. If its a really strong one i'll be knocked out for the rest of the day/night. Your not alone. We are out there too. Just keep on doing your thing you will be ok :D.

@ErikaMayX Год назад

Thank you for the video, it helped me. I've been experiencing what I call "flashbacks" for the past year. It's the aurus but it's like a dream inside my head. I see people who I know and I think I can explain it to my husband and then I can't remember the stuff I've just seen so I sound crazy. Just last night I had an actual seizure in my sleep that caused my entire body to get stiff and I couldn't breathe. My husband was there for me thank God. I'm going to see the doctor tomorrow. I hope you're feeling better.

@kathleendallas3937 3 года назад

Thank you for sharing this. It's not something they go into detail in nursing school. I really appreciate your explaining what it is about.

@rjvowels 5 лет назад

I know exactly what you're talking about....

@caitlynmarie2677 Год назад

Thank you very, very much for sharing your experience. I’m in the midst of trying to untangle the mess of strange symptoms I’ve been living with for years and my doctor finally told me that he thinks this might be what is going on… I’m torn between relief and despair, thinking of all of the years I’ve spent suffering and begging for doctors help and being told I’m mentally unstable and nothing more, thinking of all of the pain I’ve suffered struggling .. there might be an answer, perhaps even help if this is the correct diagnosis. So, simultaneously relieved and terrified, (and a little angry, admittedly) and grateful to you for sharing something incredible difficult to explain and unimaginably difficult to live through.

@tommoorcroft2026 6 месяцев назад

Thank you so much for this video. You've helped me so much, I've never been able to put into words exactly how these symptoms feel but you've hit the nail on the head. It really is like Deja-Vu in like a daydream form. I used to get it bad as a kid, roughly 8 years old, but it soon went away. I'm 24 now, and it's started coming back. However now I'm going to be able to go to the Doctor and explain myself now. I honestly can't thank you enough! I hope you're doing okay!

@meeneasy 29 дней назад

Thank you for helping me not feel alone and crazy

@michaelquentin3782 Год назад

You are not alone. You explain it well. Even talking about it…

@derekxiaoEvanescentBliss 4 года назад

I don't know if you will see this comment, but I just wanted to say that I really appreciate your courage to share this online even though you sound like you feel so vulnerable. It really helps people like me who are not familiar with epilepsy learn what symptoms may look like, and it looks like there are a lot of people in the comments going through something similar who've found comfort in your video. Hang in there, I hope things are better now. All the best to you. edit: I was just reading all the comments. you are doing amazing things, honestly changing a lot of people's lives. stay strong!

@cashhall8514 2 года назад

I hope you're doing really well. I started getting them from decongestants. I collapsed in September and was unconscious. All tests came out good. They recently started again and they are terrifying. I've been depressed and hope I don't lose consciousness again. I got hurt pretty bad. Anyway, thanks to all for sharing their stories. I'm sorry anyone is going through this, but it's comforting to feel less alone. My best to all.

@lisaballard9672 3 года назад

Thank you for describing what you have experienced! I am having a difficulty explaining to doctors. Hopefully I will get some answers soon

@benruegg Год назад

I really appreciate this video. It’s hard to explain what happens to me when I get a seizure come on. And you explain it perfectly. Thank you. Stay safe

@thech33f39 4 месяца назад

Feels so good knowing what these are finally.

@SoSweetKhryssie 2 года назад

Been experiencing this since I was a small child, 3 or 4. Thank you so much for this!

@jaaaaetter Год назад

Refreshing hearing from you. the auras I have are very euphoric. It feels like people are trying to reach me. I’ll have the same aura over and over throughout a time period. Strangers appear to me in this state, yet I feel like I know them. I also have tonic clonic seizures, all of which increase around my menstrual cycle

@JB-hj3xj Год назад

I’m glad to see a recent response. I think I got mine because of Covid.

@suzanneporter7907 10 месяцев назад

You did a wonderful job explaining the deja vu seizures. I've had to live with them and Jamius vu seizures for over 40 yrs. but then my neurologist told me that the moment I started to feel any type of seizure start up I was to tighten up all the muscles in my body and make my hands into tight fists for a few seconds and if I did it fast enough it would stop the seizure and take my word it has stopped many of these seizures so give it a try. I wish you and everyone out there only the best it's time for the world to wake up and learn about epilepsy and how we are normal everyday people just like them.

@mirandachumee1410 Год назад

I’ve been struggling.. for soo soo long. I got diagnosed with Idiopathic Epilepsy [tonic clonic epilepsy] at age 14 and I’m now 26. I was seizure free for 5 years thinking I was one of the special ones to grow out of the dam Illness. I just recently started having my episodes again. What I get before my episodes are Dej ja vu / auras.. they scare the living crap out of me. You described them perfectly and to hear someone say it makes me feel a little better. I’ve talked to some others with epilepsy and they don’t get what I get and it made me feel so out of place an so confused. These auras have been happening more an more recently and makes me feel like a zombie.. like I’m in another world. Thank you so much for sharing this takes a lot to do ❤ I hope you’re doing well

@ek_kahani_sunata_hu Год назад

Also having same kind of symptoms

@stefanopiccagliani 4 года назад

I'm 55, writing from Italy. I've tried to describe this stuff for 40 years. Those 'crisis' started when I was 15, in 1979. They went on for 5 or 6 years, then stopped for a while and came back when I was 24. After a couple of years they were gone. Sometimes I still can 'smell' them coming, but they don't. I seem to remember a parrot and and a white corridor, the feeling of deja vu was unpleasant but I had to go through it all, there was something irresistible. After each crisis (sometimes 4 or 5 every day) I felt exhausted and sweaty and all the 'dreamy images' were instantly impossible for me to remember. I'm very touched by your video: after 40 years I've found someone able to tell my story. Thank you, and sorry for my bad english.

@katiekonopka5646 4 года назад

So so happy I found this. Now I can show my friends and mom how it feels! I could never describe it well enough but you did perfectly! Have you ever noticed it come on when you may be stressed or anxious? That seems to be when it happens to me the most. I gotta get to the doctor! Thank you for sharing your story. Definitely makes me feel better to know I'm not alone!

@aprilcoles 4 года назад

katie konopka Stress is definitely a factor for me but I’ve noticed that I’m even less resilient on days when I haven’t slept well. I’m still trying to get into a good self-care routine because I went from 2013-2017 without any grand mals but I was very staunch about my self care during that period. I wasn’t aware at that time that I was epileptic and it has become quite a challenge since My seizures have become uncontrolled. I now deal with the impediments of memory loss, migraines, and limitations related to the condition like my inability to drive. It makes it difficult to scout out affordable organic foods, engage in community, and find friends-even taking a bath in an empty home is no longer a relaxing option; all of these things were a big part of my stability before. Im still hoping to overcome these things to establish a schedule that can help me reduce my stress and anxiety. I’m glad my video helped, I must admit I still feel very vulnerable in front of the camera.

@stephenmcginn6872 4 года назад

Oh yeah Katie! Stress and anxiety are major triggers for me. Hard not to be stressed sometimes but getting to the Doc is step one buddy. Keep in contact.

@Dredziowata 4 года назад

You are not alone , and you are not freaking out . Jeez I remember me having my first attacks and I thought I will be crazy till the rest of my life XD hahaah

@elisdeskovic2851 2 года назад

I noticed it come when temperature are high in my case,in summertime

@arashmousavi 2 года назад

I had a right temporal lobe intracerebral hemorrhage almost a year ago that destroyed most of my right temporal lobe. It has left me with similar seizures to yours. I totally understand what you mean. hearing these from you is like someone explaining my seizures. It is devastating. Mine first started with auditory hallucinations but now it starts with the Deja Vu thing. Sometimes it is accompanied by a train of racing thoughts. I hope your situation has gotten better now.

@rowdyrudy3761 4 года назад

So cool to find this video. I've never known anyone else to experience this. And yes, it's very hard to describe.

@robinkok8006 4 года назад

Helps me a lot. Thank you.

@yetibigfoot7350 4 года назад

I totally understand what you mean. I'm having it now. I had surgey and now wondering how things are going to go. But, thank you for being here for us. It's important!

@aprilcoles 4 года назад

Bigfoot thank you for the comment 💜 let me know how the surgery works out! 👍 I’ve heard some great things about surgery outcomes and it’s something that I’ve thought of. Doctors were able to find the origin of my partial episodes in my right temporal lobe but they’ve yet to have me monitored during a generalized seizure. I had to move for financial reasons before I got a chance to see if I am eligible for surgery 🤷🏼‍♀️🤦‍♀️

@yetibigfoot7350 4 года назад

@@aprilcoles it took me living in Arizona and my heart stopping during an status episode. That was crazy! But, it's been a few weeks and I'm almost healed enough for the surgey. Seems our seizures come from the same area. I'm honestly still learning. Ha ha not sure if it's the heat cooking my brain but my seizures are certainly changing. So, I love these videos. Again, thank you!

@yetibigfoot7350 4 года назад

@@aprilcoles hoping that changes for you!

@dysknect4571 Год назад

I have this exact same condition And I have to say that you explained what's going on better then any1 I've herd yet. I call it an ACID TRIP when the aura hits. But just know ur not alone. Much luv 🙏🙏🙏

@DeezTuck78 3 года назад

I hope that you are getting better. Tonight is the first time I found other folks dealing with this exact strange thing. Going to make an appt with a neurologist. Thank you .

@jaumepp1975 2 года назад

Brilliant, girl. Very brave, very well done.

@ichabod13 4 года назад

I was getting these, increasing in frequency. Great description of what it feels like, it is very hard to describe. EEG came back showing slowing in the temporal lobe for me, so past damage basically. I've been having good luck on anti epileptic meds so far, going on 5 months without the feeling. Hope you got some relief!

@crystalep.1934 Год назад

OMG first time I can hear exactly what I feel.... That s a real other world during this times and.... Ya.. Thanks to explain that with your words, bless you 🙏

@angeladelmar9362 3 года назад

Thank you for sharing this. I somehow relate to you. I do have auras and 'blank' spatial moments. There are times I felt like I'm just a floating being/onlooker inside this form and I'm not really here in this reality yet it's familiar and not at the same time. That felt nauseous. I have migraine/vertigo attacks that made it worst. Two years ago I was rushed to the E.R. because I was very exhausted and probably reached a burn-out from my career and all sorts of very vivid dreams just couldn't stop my head from spinning and continuously thinking night and day. My face felt numb, my eyes very hot, unrelenting headaches, my right foot would twitch from time to time, I spoke inaudibly at times. The doctors could not even give a decent diagnosis (except deficiency, exhaustion and vertigo). I couldn't explain but it was more than that. But now, I am able to better manage all this - I meditate a lot and try to free my mind from thoughts whenever I can. It's not very easy to control one's thoughts and I don't even know if it's chemical-based or not. We all have our burdens to share. I don't want others to experience the torments of my attacks but it feels somehow relieving that others are fighting just as much as I am.

@jazuzzle 11 месяцев назад

i suddenly get deja vu and a sudden roller coaster feeling that makes me feel nauseous and hot for a minute. while it happens i kinda stop in my tracks. the tiles on my floor and sometimes the lighting in the room or the smell might trigger me. it feels like im put into a dream (but i cant even remember when i had the dream or if i even had it). it goes away after 2 minutes at the most but after i have it i try thinking about what actually happened and i cant describe it to anyone. the 2 worst parts are the nausea and the fact that i feel i cant really go to the doctor and get a proper treatment if the doctor is incompetent and that itll get worse and i lose my memory and stuff

@echastee 2 года назад

Thanks for sharing. I appreciate that. I isolate too but I see something in you shining bright. 😎

@TulipWife 2 года назад

You describe these perfectly. kinda teary eyed here.

@AshfaqWazir 2 месяца назад

Thanks for sharing your experience along with history and the symptoms. Wish you full recovery and good health.. I'm also epileptic (tonic-clonic seizure) since 11th of February, 2019 and the journey is really is really difficult and feels pessimistic most of the times. Because of the insecurity you feel that doesn't let you believe on your oneself..Better if you note down the triggers, situations and things that triggers seizure can be easily avoided. And please set your diet plan, its really effective.

@Leon-ko5so 4 года назад

I get this same exact feeling with the auras. I've been having these partial seizures for years (probably 11 or so years). I'm conscious throughout and can speak etc just very confused and find it hard to string a sentence together. I get the 'dreamland' feeling u describe too where I can be sat in my house and know exactly where I am just everything seems very strange and a little unfamiliar. I've have an MRI and EEG with no luck of diagnosis so far. I assume it is from a traumatic brain injury i sustained when I was 10 years old. Maybe from, like you, scar tissue on temporal lobe.

@gabegoodyke6862 4 года назад

i’m 14 i have this too and it’s frustrating that people think i’m just insane trying to explain it to them but my main question is if i should be worried

@kyliejacobs6817 Год назад

Great job April . Keep your head up xxx from Perth Australia 🇦🇺 I really hate auras big time

@grendel7360 8 месяцев назад

The way you speak reminds me of the way I speak when I am hanging on by a couple threads. All I can say is that the Lord has gotten me through everything thus far and I pray you believe and that He helps you too.

@tessil2148 3 года назад

I know exactly what you're talking about I have recently come down from some meds I was taking for my seizures I thought I was doing well but I was wrong I'm starting to have them again.I hope you're feeling better i send you much love.it's not an easy condition to deal with God bless you.

@buddydorsey2825 2 года назад

I absolutely have this too. It's impossible to explain, it feels strange yet soothing in a strange way I'll sometimes see people from my past when it goes deep ( not every time) and I'll recognize them when it's happening but not after it ends I know I recognized someone but not who it was. Sometimes hours later I'll have a horrible headache, it took me a long time to realize they were connected. I always say to my wife, that deja vu thing is happening even though it's not deja vu it's the closest way I can explain it. I don't get seizures but I do suffer from vertigo. I wonder if it's related. I really like how you said injected into a dream. Thank you for making this video 😊

@jaaaaetter Год назад

I understand this euphoric sense you describe. For years I always called them “strange episodes” but I felt familiar with the images I was seeing. Wasn’t until I had a tonic clonic that it all made sense. I tell people I’m being visited from another dimension 😁

@chasemol3187 2 года назад

Well said, quite a terrifying experience. I know how you feel.

@devilonyourshoulder8845 5 лет назад

It's always been difficult for me to describe as well. Even last night (June 13) I got that "Deja's vu" at work, but couldn't describe it to my coworker, then I had one of the biggest seizures in the last 6 months. Afterwards I didn't remember a thing and could hardly move, think, or speak. I barely recognized the two coworkers who were helping keep me from getting hurt during the convulsions for 15 minutes after it ended

@sheldon958 Год назад

As I have searched for reasons of what has been happening to me. You have put good words in explaining the auras that I have had also in this new journey. Getting medical reason is difficult as well other than take this to see if it works? Thank you for your sharing your experiences that have touched base with many others...........