The 5 Most Common Problems With M.E/CFS | The CFS Health Podcast (Episode 37) 

Thank you all for watching! It would mean so much for us if you commented below your biggest takeaway from this episode! So others can benefit too!

I would say that friends and family NOT believing in you is one of the hardest barriers to getting well as you really are on your own. All you have to do is be more positive, exercise more etc etc.

Wow I think my biggest takeaway was to stop counting the time. That’s been so hard for me to let go of! I’ve been putting so much pressure on recovery and almost dreading the process because I’m so far from where I want to be and I know that it’s going to be a lengthy process. I’ve almost been viewing the whole recovery process as a big, long, effort that I don’t have energy for. After watching & listening to videos from Toby, I’ve been getting better at focusing on what I can do each day, but I definitely need the reminder to come back to it every now and then. I know without the reminders I’m still focussed on what I want my life to look like and not being able to see the plan of how I can get there. In many areas of my life I’ve always been looking for the next bigger and better thing, but funnily enough, the one thing I want to get back to the most (elite sport), is the one thing that really taught me how to be process driven and to “trust the process”. Hopefully I can start applying those learnings from my sport into all these other areas of my life. Thanks for the reminder Toby!

I like the bit in there somewhere about giving our bodies a chance to heal. I think if we are constantly going beyond our bodies capacity, forcing it into a state of constant repair and correction where is it going to get the energy to use on healing? We have to learn to let go of doing what doesn't serve us. Let others help do, they want too.

The key points that hit me today were, ‘What are you doing to work on your health?’ ‘What are you focusing on?’ For a long time I haven’t been focusing on the right activities. Also what you both said about having a time constraint to recovery not being helpful, and which for me has been for me an enormous pressure and constraint really hit a nerve. The anxiety that comes every month or so renewing my sick note is horrible. I’ve decided to leave my job and I really do think I’ll make a better recovery without that time pressure to go back. Thank you 😊

I've had M.E for over 25 years, went undiagnosed for first 4, over the years tried everything (apart from electic shock treatment. I now just work and do things when i can, which is even more difficult now as in final months of COPD stage 4. Just remember to appreciate and enjoy the small things in life 🥰

Always so helpful. I appreciate you and your team for all you do.

Thanks so much! This was very helpful and inspiring! I have been enduring a crash lately and this gives me hope to keep moving forward! John

Do you know about aromatherapy .. a friend of mine has healed herself of CFS with a mix of aromatherapy oils and flower essences and nutrition ... she is now out of her wheelchair after a year of working with these.

Thank you Erin and Toby for this episode.❤ Those little reminders are often so helpful getting me back to being aware of patterns which aren't conducive and letting them go. In this case counting the time since the last bigger crash and unconsciously comparing the progress with the process before...I know it comes from the same performance related mindset that got me here in the first place..but it's okay, I can laugh about it and let it go. So thanks for the reminder.🙏

How do I know if I haven’t put enough work into the current program I am in or if I am in the wrong program? I made progress with anxiety, which is huge, but seem stalled with everything else.

Hi. I got fibromyalgia. I enjoy watching your videos, Toby.

I guess the counting time is something I’m guilty of and thinking I need to plan for when I’m better. I shall try to focus more on the Day to day, promise 😊

Within the first few minutes, I heard exactly what I’ve heard here on the US I’ve had every test done and I’ve tried literally everything and my doctor doesn’t know what to do for me and I just wish I wouldn’t wake up most days because it’s just daunting to do even every day things. 8 years very few good days 😢 out of money and insurance in the us covers nothing but pharmaceuticals. If that

Not easy when doing it all on your own when peeps including medical offices look at you like you have six heads and blame you ….. 😩💞💙🙏🏻🙏🏻🙏🏻👊

I struggle with an old mentality, aswell as feel like ME/CFS has become a trend. Like adhd, ptsd, borderline and all those has been. My problem is that I have ME, had it for years since i was a kid most likely, but just recently got my diagnosis. However when I actually start saying it example : I cant plan bc I have ME and don`t know how I`ll be at that time! The other person replied: oh I have ME too, I just decide to be well that day and i push through! This makes me doubt they speak the truth! This is not something you just push through. Sometimes i cant even get my legs to move! The second example is this (I had been working 60%that week and my collegue probably close to 100%): I am so exhausted! Im not going to be able to walk tomorrow, or get up in a while! She responds with: oh im tired too! But ive been working more than you, so im more tired! Its not the same working so little! (The words where in different language and doeseent translate direct. But this was what she said. That she must be more tired than me). So I realise these people dont truly understand! But when they say things like that i truly dont know how to respond. I excuse their sayings by thinking they dont know what its like, but how do i express how they totally misunderstand? Like this is a real problem!! It doesent really matter to me tho, but i would like to express to them the difference bc I want them to know how bad it actually is when you go through this, in a flare or constant period. Another thing is that most ppl dont know how to communicate. If someone spoke about themselves i wouldnt automatically turn the convo about me! Its kinda tiresome aswell. This is actually one thing that really bothers me, as i get very tired hearing about ppl just talk about themselves so i zone out when they do. Unless its a mutual respected convo, where the talking goes healthily both ways, like one day we talk about me and another about the friend! However talking in all other topics doesent give the same energy at all. I dont get tired from a convo on politics or nature or exercise or anything, aslong as its not just «me, mine, myself in past prensent or future».

For me trusting the process didn't really happen. I just made small changes and maintained it. Seeing real progress over time. Being future focussed without the pressure of a time frame is helping a great deal.

doctors words can be so powerful !!! every disease can be healed when you go from the [erspective that you are treating the PERSON rather than teh disease alone

Hit singles not home runs was a perfect analogy for me. Looking forward to getting to know my new community. Thank you!

They’re not limiting beliefs if they’re real on the daily. I’m worse instead of better. 😢

This episode was incredibly important for me to listen to and take in. It was literally hitting every nail on the head. From the counting of the time to letting go and leaning in, and just trusting the process. The Ahh haaa moment of the trust fall. I have tried so many things and the continuing of searching for answers and trying to get help. It’s been extremely exhausting trying to find all the answers on my own. To then here from your Dr. Who means well. That there’s nothing else we can do for you or I don’t know how to help you. What I do know is I get to help myself by listening inwards so That I can move towards the healing journey. Thank you Erin and Tobey …. Extremely grateful for both of you 🙏💕 35:00

How can i access all the episodes pls?

What are the causes of CFS, is it from a virus or trauma from an accident, operations or childbirth ? Thank you in advance 🙏

😢.

Great video, thanks. The emphasis on time was valuable to me, as was your video on identity.

If you aren’t able to fix your diet completely will this program still work for me? This might be a weird question but I have a condition called hypophosphatemia and I need 1.5 cans of normal coke each day to get my phosphorus so I can’t cut that out until my reaction is over (it’s been 6 months already) as my kidneys keep dumping it daily. So my diet still needs to include that