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I went through CCL in September 2021 after being finally able too due to Covid. Prior to that my keratoconus was progressing quick in both eyes(worst in my left). So after my CCL treatment was done and went through the healing phase, right after that I was fitted for normal corneal RGPs. For the first time I could actually see. In December of 21 I received my lenses and at first it was painful and there was plenty of adjustments made, but only up until 2 weeks ago my doc recommended that I was to be fitted for scleral lenses. I got them this past Friday and apart from learning to put them in properly they are so amazing! The comfort level is 20x’s more comfortable than the others. The difference already has improved my day.
Very informative video about ways to treat keratoconus. Our patients with keratoconus mostly do scleral contact lenses if the astigmatism is high enough and, like you said in the video, they find it comfortable and can often times see better than with their glasses on even.
Guys, please do not wait until you require a corneal transplant. Get Crosslinking to strengthen the cornea from degradation. It's a very quick and easy procedure and if your surgeon knows what they're doing, we can fix your prescription at the same time with LASEK or any ASA. Take care of your health.
I wear RGP lens. My optometrist says I can't use RGP anymore. Why do they disagree with you on this option? I would prefer to have RGP lens sine I've had them for over 40 years now.
I wore RGP for 40 years to correct my KC until I suffered pain every day. When I complained to my doctor, he said it's time for transplants. I was 20/200 unaided going in. The transplants were awesome! I passed the driving test unaided, not 20/20, but still pretty good. But, because KC is congenital, my own cells slowly replaced the transplant cells and my vision deteriorated. I got glasses about 10 years after the transplants, but never liked them and never felt like I was seeing well. I just went into scleral contacts and for the first time in my life, I can see 20/20. For the most part, they are comfortable, and there is a learning curve in insertion and care. Due to my age, 74, I do use readers for small print. I'm tickled pink about them. It's a far cry from my first pair of glasses in the second grade which were bifocals.
Cross linking prevented my kerotoconus for worsening but made my eyesight muchworse...cant drive at night at all because of it. Next option is scleal contacts but affraid of how uncomfortsble they will be it really sucks i was delt a bad hand. I hope a scientist finds a cure.
They are actually not uncomfortable at all. Will take some time getting used to but basically your eye is sitting in liquid. I have had them for over 3 years now. They do help vision alot. I recommend giving them a try.
@@Idk-lx3rs i now have a permanent haze that i did not have prior to cross linking, its worse at night, the haze/glow from lights is enhanced, its like looking through a foggy lense. Did not have this prior to cross linking. Luckily i chose to only do one eye my non dominant eye, they wanted me to do it om my dominant eye but me being wary i opted against it. Thank god i did.
It was not painful at all for me as they used numbing eye drops and it’s not meant to improve vision it’s to halt the progression of the disease and preserve your current level of vision
My caruncle is currently a reddish brown colour and my eyes have been constantly watering since June 2021. They're also extremely itchy, too sometimes to the point i have no choice but to scratch. I've been diagnosed with keratoconus recently after visting the hospital. The doctors I've spoken to keep ignoring and brushing off my main concern which is this iching and constantly watering that makes me scratch repeatedly throughout the day. My possibly blocked and damaged tear ducts and extremely itchy redding brown coloured caruncle are the issue here. I'm so frustrated and angry with the British health system they've not helped me or eveh observed my issue. I have to wipe My eye every minute otherwise, tears stream down my face. The lower part of my eyes are covered in a rash and are also itchy, wrinkly and dark no2. I don't know what to do. What condition is this? I know ribbing my eyes caused thw issue with my sight but, the source of the issue is the tear duct and caruncle, please help me. I've been given Alomide eye drops and before this I've been using Systane, Hyco San dual and Opticrom. Nothing is working my eyes itch, my sight is blurred with ghost images likely due to the scratching. I'm worried I'm going to be like this forever am I going to go blind? Please if you can advise me.
@@daniellerako6369 it's the worst now. I've got double vision, which seems to be getting worse. But I blink. Sometimes, it goes away, and my vision gets back to normal for a few seconds.
This diagnosis is depressing, it literally takes a toll on my every day life it’s exhausting. I’m so uncomfortable in my scleral lens to the point I completely stopped wearing a lens in my right eye for over a year (I know that’s terrible) because of the pain, swelling, excessive tearing my lens would cause. Now my left eye does the same thing. I feel like the only relief is when I don’t wear a lens for 3 + days mind you I can’t see without my lens so I can’t do much. I spend so much money on otc eye drops even allergy medication nothing seems to help. My eye doctor says i experience these symptoms because of the dryness of my eyes but i cant help to think it’s much deeper than that. He’s given me vizia eye drops didnt help and now he wants to me try ketorolac for the pain. Feel so helpless Does anyone else experience this kind of pain? I would love to hear other experiences
Do you advise cross-linking for a 38y old. I just got diagnosed... got a little blur on eye, other eye i dont have any complains. Still read without glasses, never worn glasses in my life...
Look into vitamin deficiencies too, there was a doctor who spoke a lot about vitamin A and E for keratoconus. He mentioned if caught early enough , it looked like it reversed or at least stopped the progression.
I was diagnosed with Kc in 2016 I’m not 28 y/o and was told by my doctor cross linking wouldn’t do anything for me they usually recommend between the ages 15-20 not too sure if I should get a second opinion though ☹️
Literally no where in the UK that I can find who do digitally designed glasses in the form the doctor mentioned. I recently picked up a pair and the prescription was in my right eye only since my left eye is 20/20 and I'm seeing double vision so bad, I told the optician and assistant right there but they said it takes time to get use to so said give it a go for 2 weeks. I said fine. Now I go home and if I tilt them up slightly, I see fine! in fact my right eye is better than my left! (with the glasses on). I suspect she got the PD wrong. she didn't even mark it out with a pen she just measured by hand. I knew something was up.
Did they change cross linking? They did my both eyes same day. Scraped(this gave me nightmares) my eyes after numbing drops and then put riboflavin and uv treatment. Was like having severe arc eyes for 3 days. Scraping tool looks like a tiny sharp putter. It sucked so much.
I have a very poor eyesight (one eye has a number 12) and I do have keratoconus and now I am having a lazy eye too. My doctor has suggested me rigid lenses and honestly I am a little nervous because of the reviews I have read online that those are not comfortable. Can I hear something hopeful about my eyes condition from you? I am literally thinking about it almost all the time.
I hear your concerns about keratoconus and a lazy eye. I hope you are able to try some of these newest contact lens innovations like rigid lenses which may be more comfortable than you imagine.
@@sarrahaseen9200 Gas permeable lenses are rigid lenses. However, with the right lens design we've had many patients who have previously failed in "uncomfortable" lenses do quite well!
