In this video we meet the infamous Duke of Nuke, aka Phil McGreavy, and his wife Ksenjia to talk in detail about their son Harvey who was born with Duchene's Muscular Dystrophy and Polymicrogyria and the challenges they have faced in providing him the best care as well as a heartfelt thank you for the donations they received for his wheelchair. We hope this video will be informative and helpful and serve to support other parents of disabled children. Please let us know of your experiences in the comments section.
(NB The sound is not great in this video so you may want to put Closed Caption subtitles on)
Link to Harvey's GoFundMe page - gofund.me/7411c6d4
Links to some of the amazing organisations discussed.
New Life - newlifecharity.co.uk/
Acorns Children's Hospice - www.acorns.org.uk/
John Preston Medical and Mobility - www.johnpreston.co.uk/
PMG Awareness - pmgawareness.org/
PMG Family Support - pmgfamilysupport.co.uk/
Muscular Dystrophy Association - www.mda.org/disease/duchenne-...
29 июн 2024