Maybe you could let every doctor and healthcare worker in this country aware and knowledgeable about this LC so they can at least be have compassion and empathy for all of who suffer from this There are so many doctors that are denying if even exist
i had long covid and caught covid again back to back. I almost died 3 weeks in hospital. I have a hard time just getting to bathroom now. My life has changed. It is horrible. Fatigue I mean severe fatigue is just one of the symptoms.
As a chronic fatigue syndrome patient of 20 yrs. I surely hope you are given help more then we received. at least they believe you and don't just make fun of you like they did us. This is serious and you deserve better. We were not treated fair mostly because we were mostly female. Wishing you good health.
I've had long covid since 2022. My only symptom is insomnia. I used to sleep 7 and a half hours, now I sleep only 6 hours, plus I sometimes wake up in the middle of the night. Maybe it doesn't seem so terrible to some, but it happens every night. I'm getting desperate. I hope someone can help me.
Look, she seems sincere and clearly trying to help, but saying there's been "a lot of progress" is pure B.S. There's still no reliable diagnostics nor treatments. Millions of Americans suffer from Long Covid, many of them so debilitated they can't work. This current Dec 2023/Jan 2024 wave/surge is going to create several million more LC cases. We need more urgency for clinical trials.
The truth about Vaccine injury is being suppressed so unfortunately, people are not getting the help they really need. There are many treatments that only people who are willing to face the truth have access to.
Correct, its shamefull how LC has been so neglected. People have been suffering for years now, the misery is unfathomable. Doctors donnt even know the simple stuff, like trying antihistamines and niacin, and calming mast cells. Its not good enough!
Mine presented as severe Mast Cell Activation Syndrome 1 WEEK INTO COVID INFECTION. Also have extreme fatigue and brain fog and my astma is 10 times worse. Please do more research for us,
Im at three years with dibilitating long covid , dizziness, brain fog shortness of breath, and alot more symptoms i appreciate how fast they are working
I have been sick and have severe pain. Most of my life I have lupus fireman alja epilepsy. When I got COVID 2 different times it made it 10 times worse. When you look at medical papers for me from 20 years ago that I filled out. It sounded exactly like I had COVID. I don't have a doctor anymore after years of over medication. Miss diagnosis, I can't get SSI I'm homeless staying in an RV that's broken. Now, now I'm at the Cracker Barrel. It was supposed to be temporarily in a motorhome until I found a place but I just can't get a freaking doctor and SSI is just running around sucks so bad I don't know what to do.
another informative AMA update on LC with Dr Akiko Iwasaki - thank you both 🙏... please keep up the great work, we in the LC community are greatly appreciative...
Fourteen months. Totally active. Exercise six days a week. Now constant headaches, mail aide and pain after any exercise or activity. Thanks to these great researchers for their amazing work!!!
This weeks especially hard because now it's starting to get hot. And I have such a high intolerance for hot or cold smells. Sites vibrations over over stimulated
Good question, I wonder the same. About 3 months into it and I have had some improvement but still have substantial PEM, hoping that will continue to improve with the therapy. How long did it take for you to see improvement?
Possibly because it is not a good option for some people. Personally I'd take it if it's curative but comes with a 15% minor to major bleeding increase. "According to the 2020 ACC Expert Consensus Pathway for Anticoagulant and Antiplatelet Therapy, TT is not recommended for most patients."
Where did you find such treatment and how did you know what kind of a doctor to go to with your symptoms? I would appreciate it so much if you could tell me.
