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The most important ME/CFS study EVER? And Taking Part in Decode ME Research! 

Elinor Brown
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2 окт 2024

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Комментарии : 25   
@manic_or_jack2333
@manic_or_jack2333 11 месяцев назад
Thank you elinor. I had no idea this was happening and had almost resigned myself to the fact this would never change.
@ElinorBrown
@ElinorBrown 11 месяцев назад
we are getting there!
@sarahh5988
@sarahh5988 11 месяцев назад
So excited for this study, thank you to all the DecodeME team
@beknight9399
@beknight9399 11 месяцев назад
I sadly cannot participate (wrong country), but I hope a lot of patients will do so. The project is hope. Thank you for your work and sharing this topic 🌻.
@jacks2222
@jacks2222 11 месяцев назад
Thank you for doing this Elinor. I didn't know about it but now I've signed up and completed the questionnaire.. You're an absolute star🌟and your vids have helped me so much xx
@ElinorBrown
@ElinorBrown 11 месяцев назад
I’m so pleased! Glad it was helpful!
@AlexClaire86
@AlexClaire86 11 месяцев назад
I've also taken part, so grateful it's happening
@ElinorBrown
@ElinorBrown 11 месяцев назад
me too!
@echognomecal6742
@echognomecal6742 7 месяцев назад
Looked up "Decode ME" & watched a video called "The most important ME/CFS study EVER? And Taking Part in Decode ME Research!" Flippin awesome, yay!
@WaterDay936
@WaterDay936 11 месяцев назад
Thanks so much for raising awareness of this vital study! I'm unfortunately not able to take part as I'm still waiting for a diagnosis but it's so amazing to see the community coming together to start solving this nightmarish condition.
@larenafiandes8057
@larenafiandes8057 11 месяцев назад
Ive taken part in this, its a wonderful study
@ElinorBrown
@ElinorBrown 11 месяцев назад
I know! I’m super excited!
@kaybrown3162
@kaybrown3162 11 месяцев назад
It great to think that eventually the scientific community are taking this seriously. 😁👏
@ElinorBrown
@ElinorBrown 11 месяцев назад
I know, right?
@Spoonietherapist
@Spoonietherapist 7 месяцев назад
Great video. I took part in the spit and 2 questionnaires, I’m so excited to see the results
@PhillipaHolly
@PhillipaHolly 11 месяцев назад
I hadn't heard about this study, signing up now!
@ElinorBrown
@ElinorBrown 11 месяцев назад
Yayy!
@SanjaySingh-n8q7g
@SanjaySingh-n8q7g 11 месяцев назад
you are doing amazing work🎉🎉🎉
@ElinorBrown
@ElinorBrown 11 месяцев назад
Thank you so much 😀
@MusicMatters_SC
@MusicMatters_SC 11 месяцев назад
Great interview! And cool earbuds! Fab to see the octopus taking part too 😁
@ElinorBrown
@ElinorBrown 11 месяцев назад
Glad you enjoyed it! 😂
@SanjaySingh-n8q7g
@SanjaySingh-n8q7g 11 месяцев назад
I am from India which test I do for diagonise cfs
@christafranken9170
@christafranken9170 6 месяцев назад
I would recommend finding a local support group for patients with me/CFS. They probably know how to find a doctor near you who can help. I got my diagnosis from an internal medicine specialist, but that may be different in a different country
@seansteckley
@seansteckley 11 месяцев назад
Is it worldwide?
@beknight9399
@beknight9399 11 месяцев назад
No, it's England, Wales, Ireland etc. In the future eventually worldwide (see FAQ on their homepage).
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