The Myositis Association, Patient stories, Inclusion-body myositis 

Sadly that test fell in a hole theres a couple of things in the wings but im not holding my breath as i am sure its to late for me as i ve had this ibm for about 30 years possibly longer it is now 2022 and life isn’t looking very rosey for the future keeping active both physically and mentally has been the key for me. Good luck and best wishes to patients and careers 💕

How are you doing now? I was diagnosed in January at John’s Hopkins.

Hi, One of my relative having Myositis. We are seeking help from doctors here, but due to multiple guidance, we are confused now. Could you please help us if we can arrange a virtual meeting ?

Pls tell us what symptoms you had before diagnosis. Also I never hear of a prognosis. Is there a typical prognosis? Thanks