Six months after Proton Beam therapy with SpaceOAR my PSA went below 0.006, which is the sensitivity limit of the test, and stayed there. My oncologist was surprised it went so low.
Toni Fanum I'm so glad that your husband is doing so well! My husband was diagnosed with 2 of 16 core biopsies, Gleason 3 + 4 grade 2 and Gleason 4 + 3 grade 3, respectively. We see the surgeon who did the biopsy and a rad. onc on 3/6 & 3/8. The surgeon already told us that he needs either surgery or radiation. (at UPenn). My questions are: Do some patients need HRT and Lupron after PBT? Is the gel the same as Space Oar and what is the balloon? Thank you for your help in advance.
@@LindaMadeline SpaceOar is an injected (procedure) and the first or most common “gel” that is used to put a temporary “spacer” between the rectal wall and the prostate and reduces the exposure and damage to the rectum. The balloon is separate and is used to protect the bladder. It is inserted (and removed) in the rectum for each radiation visit. Inflating the balloon pushes the bladder away. It is not painful but is a little uncomfortable and not fun that it has to be inserted before each proton treatment.
I have an appointment at the Texas Center for Proton Therapy in two days with Dr. Lee. I have been diagnosed high risk (4 + 4) but my tumor(s) are non-palpable which is good news I'm told. I have several questions I now know to ask thanks to this video.
How do proton and photon radiation compare in terms of increasing the risk of urethral strictures? And does either approach have the ability to radiate the prostate while simultaneously avoiding or at least minimizing radiation exposure to the section of the urethra located within the prostate? If so, which works better-proton or photon-at protecting the urethra from radiation exposure, and why?
Mayo Clinic in Rochester has the has a great procedure for Separator better that isn’t the balloon, its place once instead the ballon is “inflated” each procedure.
I am watching you from Europe and am pretty happy to check out that you, in America, have developed a superior technology of choice which is smarter and more selective with the cells. Thank You. Proton Therapy might be a better treatment than conventional radiation one 🌿
I had this done in 2017 in Hampton Va. No side effects or pain. Treatment ran from oct to dec. Five days a week. I lived 100 miles away but felt it was best approach. Story is too long but I felt God wanted me to go there, so I did. Cannot speak about ED as that train had left the shed before 2017. Problem is now in 2024 cancer has come back. Did not know they would not operate on you once you have been radiated. Also the Proton people do not want anything to do with it now. Going to see Dr. Freeze Aug 24.🦇
Remember, any external beam approach unavoidably irradiates everything between the emitter and the target. The beam has to be strong enough to compensate for the attenuation it will experience from the body parts in the way, and the mechanism of that attenuation is absorption. This risk is unavoidable. The only real way to mitigate it is to use multiple weaker beams that intersect at the target, but even then there will be some interaction between the radiation and non-targets. Brachytherapy could in principle be administered in ways that avoid having any radiation hitting outside the target, but I don't know if it actually is done that way. It could be impractical.
I was treated for prostate cancer at the Seattle Proton Center. Prior to Proton Radiation treatment: PSA = 12.35 After Proton Beam Radiation Treatment Jan 26, 2021 blood draw: PSA = 0.21 May 6, 2021 blood draw: PSA = 0.1 Aug 05, 2021 blood draw: PSA = 0.07 Jan 19, 2022 blood draw: PSA = 0.04 Aug 24, 2022 blood draw: PSA = 0.02 Aug 30, 2023 blood draw: PSA = 0.04 I'm absolutely thrilled with the results and lack of complications. No incontinence, no impotence. I tell everyone I can that getting regular PSA counts saved me. My father and grandfather both died of prostate cancer so even though I was being told that (the belief at that time) there was no genetic component I didn't believe it and expected to get prostate cancer. DO NOT expect your doctor to pay close attention to your PSA counts. If you can't easily recite your most recent PSA count when asked, you're not doing it right. It had only been about a year since I'd had one but I had a feeling that I needed a PSA count and requested one done. It was just over 6 and that set the ball in motion. When I had the biopsy done a short time later it was 12.35. Once it got to 6 it had been skyrocketing. I'm convinced that because I felt that prostate cancer was inevitable for me and that I needed to be vigilant and get regular PSA counts done I saved myself and I wish the same for you. Good luck!
So glad it worked out for you! I'm in Oregon and may be in the same situation. Can you tell me the name of the radiation oncologist you used (assuming you liked that person)-and any other helpful info or advice? Also, is the Seattle Proton Center part of the Fred Hutchinson Cancer Center? Thanks!
@@justme8953 I'm trying to give you my phone number but youtube doesn't like it. I'm going to give it to you in several pieces. I'm in Washington state and the Area code is 360
I had Proton therapy in 2015 at the University of Washington. I had some side effects but at 73 I noticed ED (2023) but that it may be the aging process. I am not married so not problematic.
I have had proton therapy two months ago. I finished 38 sessions for prostate. My big problem is fatigue. It’s been two months since the last session and I get better start feeling good and then I get real tired. When will that end?
you seem like an old person with a kind soul who would trust other people but this person seems like a scammer. He said the reason he believes his method is good as the other methods is because he said so. In modern day that is not good enough. You must be credible and have papers published why its you and why you should give him your money. Lots of things are fake on the internet.
If proton beams are hitting less healthy tissue than photon that's a good thing to me. Radiation of any kind has been described as inflammatory to the body for decades so why splash photon beams onto the bladder, rectum, pelvic bones, etc.? The main question I have is why comparative studies have not been done. Sounds like a turf battle between photon and proton specialists. THAT is not doing any good for patients.
@@funnycatvideos5490 as much as I want to believe that common decency and fate would dictate to find a cure because it will hit home sooner or later.......
Hi. I am a 64 year old diagnosed with prostate cancer with Gleason score from 6 to 8. I underwent 25 sessions of Proton beam therapy, over 5 weeks @ APCC Chennai with rectal balloon insertion to create space between rectal wall and prostate. But after completion IMPBT, last week- , my rectal column feels inflamed with constant urge to pass stools. In addition the frequent urge to pass urine( no incontinence yet). When can I expect these symptoms to subside/ wear off ?
@@Energyequalsmc2 Urispas 200 mg twice day. Symptoms subsided after 6 weeks from end of proton therapy. Concurrently I am on Lupron depot injections once in 3 months( started off in july2022, ), 6 injection in 18 mths( last one due in Oct 2023)!
Planning on Proton at Mayo Clinic in Sept. for prostate cancer. My Gleason is 4+3=7 and decipher score is .67. If I did Photon, hormone therapy is recommended. Is hormone therapy also recommended for Proton ?
If after three years of receiving the radiation therapy and are receiving the Lupron Depot injection which gives a PSA reading of 0.1 for the 3 years but then the PSA begins to rise will the oncologist recommend another radiation therapy.?
We have this video (and some others) on treating ED after prostate cancer treatments: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-f4URCnFhGjg.html You are also welcome to contact our free helpline at pcri.org/helpline.
I completed my Proton therapy 1 year 9 month ago. I had 0 side effects. This Dr. Like many is spouting old info. The major studies he says haven't been done were completed in june 2023 You should look up what Federal Judge Scalera was quoted saying about Proton therapy.
There is no scattered x rays with proton therapy. You can probably be in the room and suffer no increase radiation dosage in proton therapy room assuming you stay out of the beam
Hi Billy. This is not true. Proton therapy will have secondary proton and neutron radiation from protons colliding with other atoms and scatter (including any air gap from the exit of the vacuum beam pipe to the target). This is why a patient must be searched alone in the treatment area. And thick concrete walls, floor and ceiling are all surrounding the room as this is good material for shielding neutron radiation
I was 65 when I had Proton therapy and ED was the least of my worries. What I didn't want to have was incontinence and thanks to Proton beam I don't have that. I don't have ED either.
Again, so awesome to have this as a quick and precise form of resource. We don't ask to be born, but once we get here, I feel it is everyone's obligation to help others with their own specialties. You two are doing this every time you sit down and have these conversations, and it is helping so many people, so thank you.
The PCRI series with Mark Scholz MD are uniformly excellent. His information is current and state-of-the-art, he gives his opinions and recommendations very clearly and precisely without equivocating and has an uncanny knack of anticipating the questions a viewer will want answered.
This question is about the role of PSA in Active Surveillance. If one is on AS for a few years and multiple MRIs and biopsies indicate stable low risk (3+3) disease including low risk Decipher Score. The only negative seems to be an increasing PSA, at about 0.8 per year. Is there a PSA level or PSA density that would indicate consideration of radiotherapy.
It can depend. My proton therapy was 28 daily treatments. They can also due 5 high dose treatments. Some machines may require 38 or 44 treatments. It depends on the diagnosis, type of machine, amount of radiation needed, etc.
I had Proton treatment back in 2011 at the Proton center in Burlington, Indiana at the University of Indiana for prostrate cancer and have been cancer free ever since. PSA did slowly decreased to around .25. No major side effects. I’m glad I chose Proton over surgery , two of my friends died from prostrate surgery. I have tried to be a good champion of proton treatment ever since.
My mom was diagnosed with squamous cell sarcoma in her left sinus, around her orbital nerve and to the base of her brain. She beat the cancer. Had 35 treatments of Proton therapy and it is eventually what hurt her in the end. She passed away in March. -her throat was so weak from the radiation she couldn’t cough, swallow, talk, hear. She was supossed ti be getting better. Life is cruel
I'm sorry to hear about your Mom. Please accept my deepest condolences. I recently lost someone very close to me from cancer as well and I'm trying to deal with the grief by finding out as much as I can about treatment options. May I ask you a question about your Mom's cancer journey? Thank you in advance for taking the time to read my comment. I wish you all the best during this most difficult time.
