The Role and Treatment of Autonomic Dysfunction in EDS-Associated Sleep Disorders - Dr. Alan Pocinki 

Hi, thanks so much for this very helpful video! just a few thoughts (as a Zebra, diagnosed 2015, at 45): I've struggled with sleep related issues even since infancy (night owl/chronic napper/overlseeper). Finally; after recent spinal surgery, I was prescribed methocarbomal (originally 750mg tabs) & find it REALLY helps with serious nerve pain that other meds miss. My pain management NP currently has me at 500 mgs, 750 mgs as needed. They make me VERY groggy though & make my dreams even more vivid & racing, slightly more nightmarish. Thx again for this very informative video 🦓🖤

So much of this resonates with me. I've had sleep issues all my life (I'm now 56, and was 53 when I finally received my hEDS dx). I'm tired. Really tired.

Oh, we know how much pain we are in! Finding real viable treatments is s the problem most times!

🎉

Thank you Dr. Pocinki for this info. Questions, do you see EDS patients that have mixed apnea, ie, both obstructive and central and does your protocol help them?

It's all connected

Awesome job as usual Dr. Pocinki!

I have Dysautonomia AND Sleep Apnea as well as Classical EDS. I sleep with a CPAP machine at night.

I wish they could help us in New Jersey! These doctor dont know how care for us ..except given pills..Im trying Holistic way..yoga!